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Journals
The Journal of Haemophilia Practice
Volume 9 (2022): Issue 1 (January 2022)
Open Access
Key challenges for hub and spoke models of care – A report from the 1st workshop of the EHC Think Tank on Hub and Spoke Treatment Models
Amanda Bok
Amanda Bok
,
Declan Noone
Declan Noone
and
Naja Skouw-Rasmussen
Naja Skouw-Rasmussen
| Mar 29, 2022
The Journal of Haemophilia Practice
Volume 9 (2022): Issue 1 (January 2022)
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Article Category:
Systems Change
Published Online:
Mar 29, 2022
Page range:
20 - 26
DOI:
https://doi.org/10.2478/jhp-2022-0003
Keywords
Bleeding disorders
,
Rare diseases
,
Gene therapy
,
Health care facilities
,
manpower and services
,
Tertiary healthcare
,
Hub and spoke
,
Organisation of care
,
Long-term follow-up
,
Comprehensive care
,
Multidisciplinary team
,
Treatment centre networks
,
Data sharing
,
Patient pathways
,
Patient management
© 2022 Amanda Bok et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.
It is important that the hub and spoke model continues to be effective in delivering high quality care for people with rare diseases. As gene therapy and other new specialised treatments become available, understanding the potential challenges associated with how the model will work is key.© Shutterstock
Figure 1
Template for identifying challenges for hub and spoke treatment models