Those diagnosed with hemophilia | 9 | 45.0% | 44 | 81.5% |
Anyone on infusion therapy | 9 | 45.0% | 46 | 85.2% |
Anyone interested in learning | 8 | 40.0% | 29 | 53.7% |
Those diagnosed with von Willebrand's Disease | 7 | 35.0% | 34 | 63.0% |
Those on prophylaxis | 7 | 35.0% | 40 | 74.1% |
Carriers | 6 | 30.0% | 19 | 35.2% |
Does your Camp Health Center have guidelines or policy on the storage of controlled substances (ADHD medications/opioids/benzodiazepines/etc.)? | ||||
Yes | 18 | 90.0 | 45 | 60.0 |
Don't know | 2 | 10.0 | 26 | 34.7 |
No | 0 | 0.0 | 4 | 5.3 |
Does your Camp Health Center have guidelines or policy on who can dispense medications? | ||||
Yes | 19 | 95.0 | 49 | 65.3 |
Don't know | 1 | 5.0 | 23 | 30.7 |
No | 0 | 0.0 | 3 | 4.0 |
Does your Camp Health Center have guidelines or policy on who can dispense controlled substances (opioids/benzodiazepines/etc.)? | ||||
Yes | 18 | 90.0 | 38 | 50.7 |
Don't know | 2 | 10.0 | 31 | 41.3 |
No | 0 | 0.0 | 6 | 8.0 |
Medical HCPs from HTCs | 86 | 85.1 |
Volunteers from HTCs and chapters | 48 | 47.5 |
No affiliation with bleeding disorders community but PWBD are invited | 9 | 8.9 |
Chapter personnel only | 2 | 2.0 |
Other: | 15 | 14.9 |
Other health care professionals | 5 | |
Unknown/not sure | 4 | |
Industry staff |
3 | |
Home care staff |
2 | |
Medical or nursing students/residents | 2 | |
Specialty pharmacy staff |
1 |
Over-the-counter medication | 13 | 65 | 8 | 40 | 6 | 30 | 6 | 30 | 1 | 5 |
Supplies | 9 | 45 | 9 | 45 | 7 | 35 | 9 | 45 | 1 | 5 |
Prescribed medication | 2 | 10 | 19 | 95 | 2 | 10 | 2 | 10 | 0 | 0 |
Factor | 0 | 0 | 19 | 95 | 0 | 0 | 1 | 5 | 1 | 5 |
My HTC required I use personal/vacation time and I was not willing to do so | 7 | 29.2 |
I did not have time to participate | 4 | 16.7 |
The timing just hasn’t been right | 4 | 16.7 |
I am not licensed in the state in which camp is held | 4 | 16.7 |
I can’t leave my family for that length of time | 3 | 12.5 |
My HTC would not allow for time off to participate | 3 | 12.5 |
I don’t like going to camp | 2 | 8.3 |
I don’t work with children, so I don’t go to camp | 1 | 4.2 |
It is too far to travel | 1 | 4.2 |
I can’t bring my family | 1 | 4.2 |
Other | 6 | 25.0 |
HTC | 65 | 86.7 |
Hospital (not HTC) | 5 | 6.7 |
Neither hospital nor HTC | 5 | 6.7 |
Full-time | 66 | 88.0 |
Salaried | 47 | 63.0 |
Hourly | 28 | 37.0 |
20–35 hours/week | 8 | 10.7 |
Less than 20 hours/week | 1 | 1.3 |
Camp counted as work time | 61 | 81.3 |
Compensation time given | 8 | 10.6 |
Used vacation time | 4 | 5.3 |
Combination of work time and compensation time | 1 | 1.3 |
Allowed 8 hours/day | 55 | 88.7 |
Allowed 12 hours/day | 5 | 8.1 |
Allowed 24 hours/day | 2 | 3.2 |
Allowed 8 hours/day | 8 | 88.9 |
Allowed 24 hours/day | 1 | 11.1 |
Allowed 8 hours/day | 2 | 40.0 |
Allowed 24 hours/day | 2 | 40.0 |
Allowed 12 hours/day | 1 | 20.0 |