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Journals
The Journal of Haemophilia Practice
Volume 7 (2020): Issue 1 (January 2020)
Open Access
Treating for stability: an ethnographic study of aspirations and limitations in haemophilia treatment in Europe
Thomas Hughes
Thomas Hughes
,
Mikkel Brok-Kristensen
Mikkel Brok-Kristensen
,
Yosha Gargeya
Yosha Gargeya
,
Anne Mette Worsøe Lottrup
Anne Mette Worsøe Lottrup
,
Ask Bo Larsen
Ask Bo Larsen
,
Ana Torres-Ortuño
Ana Torres-Ortuño
,
Nicki Mackett
Nicki Mackett
and
John Stevens
John Stevens
| Dec 17, 2020
The Journal of Haemophilia Practice
Volume 7 (2020): Issue 1 (January 2020)
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Article Category:
Community Focus
Published Online:
Dec 17, 2020
Page range:
165 - 172
DOI:
https://doi.org/10.17225/jhp00169
Keywords
treatment goals
,
haemophilia
,
metrics of success
,
flexible treatment
,
annual bleed rate
,
ethnography
© 2020 Thomas Hughes et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.
Thomas Hughes
ReD Associates
Copenhagen, Denmark
Mikkel Brok-Kristensen
ReD Associates
Copenhagen, Denmark
Yosha Gargeya
ReD Associates
Copenhagen, Demnark
Anne Mette Worsøe Lottrup
ReD Associates
Copenhagen, Denmark
Ask Bo Larsen
ReD Associates
Copenhagen, Denmark
Ana Torres-Ortuño
University of Murcia,
Spain
Nicki Mackett
Alder Hey Children's NHS Foundation Trust
UK
John Stevens
Swedish Orphan Biovitrum AB (Sobi)
Stockholm, Sweden