<abstract xmlns="http://www.w3.org/1999/xhtml"><sec id="j_jhp00107_s_004_w2aab3b7c21b1b6b1aab1c14b1Aa"><h3>Background</h3><p>Pain management can prevent long-term burdens in haemophilia patients and improve their quality of life. The present study aimed to describe and interpret pain experiences in haemophilia patients, focusing on pain self-management in their lives.</p></sec><sec id="j_jhp00107_s_005_w2aab3b7c21b1b6b1aab1c14b2Aa"><h3>Methods</h3><p>This was a qualitative study undertaken using a hermeneutic phenomenological approach. The study involved 14 haemophilia patients referred to a haemophilia clinic affiliated to Shiraz University of Medical Sciences in Iran. Data were collected using semi-structured interviews and field notes. Thematic analysis with van Manen’s methodological framework was applied. Data analysis was performed using MAX. QDA qualitative software (2010).</p></sec><sec id="j_jhp00107_s_006_w2aab3b7c21b1b6b1aab1c14b3Aa"><h3>Results</h3><p>Four themes emerged: a sense of self-awareness and recognition of pain and the factors that affect it, the ability to control and self-manage pain, gradually achieving self-efficacy in pain control, and using cognitive and spiritual strategies for pain relief.</p></sec><sec id="j_jhp00107_s_007_w2aab3b7c21b1b6b1aab1c14b4Aa"><h3>Conclusions</h3><p>The study highlighted the essence of the lived experience of pain self-management and generated its linguistic description. By providing complementary therapy interventions, healthcare providers and family members could increase patients’ self-awareness, recognition, ability to self-manage and control pain effectively, and competence in developing cognitive and spiritual strategies for pain relief.</p></sec></abstract>

BackgroundPain management can prevent long-term burdens in haemophilia patients and improve their quality of life. The present study aimed to describe and interpret pain experiences in haemophilia patients, focusing on pain self-management in their lives.MethodsThis was a qualitative study undertaken using a hermeneutic phenomenological approach. The study involved 14 haemophilia patients referred to a haemophilia clinic affiliated to Shiraz University of Medical Sciences in Iran. Data were collected using semi-structured interviews and field notes. Thematic analysis with van Manen’s methodological framework was applied. Data analysis was performed using MAX. QDA qualitative software (2010).ResultsFour themes emerged: a sense of self-awareness and recognition of pain and the factors that affect it, the ability to control and self-manage pain, gradually achieving self-efficacy in pain control, and using cognitive and spiritual strategies for pain relief.ConclusionsThe study highlighted the essence of the lived experience of pain self-management and generated its linguistic description. By providing complementary therapy interventions, healthcare providers and family members could increase patients’ self-awareness, recognition, ability to self-manage and control pain effectively, and competence in developing cognitive and spiritual strategies for pain relief.

Pain self-management experiences in haemophilia patients: a qualitative study

The Journal of Haemophilia Practice

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

{"article-title":"Pain self-management experiences in haemophilia patients: a qualitative study"}

BackgroundPain management can prevent long-term burdens in haemophilia patients and improve their quality of life. The present study aimed to describe and...

Pain self-management experiences in haemophilia patients: a qualitative study

Article Category: Clinical Research

Published Online: Oct 18, 2018

Page range: 76 - 82

DOI: https://doi.org/10.17225/jhp00107

Keywords
Experience, Haemophilia, Pain, Self-management

© 2018 Masoume Rambod, Farkhondeh Sharif, Zahra Molazem, Kate Khair, published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

Pain self-management experiences in haemophilia patients: a qualitative study

Article Category: Clinical Research

Published Online: Oct 18, 2018

Page range: 76 - 82

DOI: https://doi.org/10.17225/jhp00107

KeywordsExperience, Haemophilia, Pain, Self-management

© 2018 Masoume Rambod, Farkhondeh Sharif, Zahra Molazem, Kate Khair, published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

Keywords
Experience, Haemophilia, Pain, Self-management