Open Access | Jun 18, 2021
Personalising haemophilia management with shared decision making
Leonard A Valentino
Rush University, National Hemophilia FoundationChicago, USA
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, Victor Blanchette
Department of Pediatrics, University of Toronto and Division of Hematology/Oncology, Hospital for Sick ChildrenToronto, Canada
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, Claude Negrier
Unité d’Hemostase Clinique, Hôpital, Louis Pradel, Hospices Civils de Lyon, Université Claude BernardLyon, France
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, , , Thomas Sannié
Association française des hémophilesParis, France
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and Mark W Skinner
Institute for Policy Advancement Ltd, McMaster UniversityWashington,
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Open Access | Jun 08, 2020
“What more can we ask for?”: an ethnographic study of challenges and possibilities for people living with haemophilia
, , , , , Ana Torres-Ortuño
Department of Psychiatry and Social Psychology, University of MurciaSpain
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, and John Stevens
Swedish Orphan Biovitrum AB (Sobi)Stockholm, Sweden
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Open Access | May 02, 2021
The patient gene therapy journey: Findings from qualitative interviews with trial participants at one UK haemophilia centre
Elsa Aradom
Katharine Dormandy Haemophilia and Thrombosis Centre, Royal Free London NHS Foundation TrustLondon, UK
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and Keith Gomez
Katharine Dormandy Haemophilia and Thrombosis Centre, Royal Free London NHS Foundation TrustLondon, UK
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