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The Journal of Haemophilia Practice

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Open Access | Jun 18, 2021
Personalising haemophilia management with shared decision making
Leonard A Valentino

Leonard A Valentino

Rush University, National Hemophilia FoundationChicago, USA
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Valentino, Leonard A
, 
Victor Blanchette

Victor Blanchette

Department of Pediatrics, University of Toronto and Division of Hematology/Oncology, Hospital for Sick ChildrenToronto, Canada
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Blanchette, Victor
, 
Claude Negrier

Claude Negrier

Unité d’Hemostase Clinique, Hôpital, Louis Pradel, Hospices Civils de Lyon, Université Claude BernardLyon, France
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Negrier, Claude
, 
Brian O’Mahony

Brian O’Mahony

Irish Haemophilia SocietyDublin, Ireland
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O’Mahony, Brian
, 
Val Bias

Val Bias

National Hemophilia FoundationNew York, USA
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Bias, Val
, 
Thomas Sannié

Thomas Sannié

Association française des hémophilesParis, France
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Sannié, Thomas
 and 
Mark W Skinner

Mark W Skinner

Institute for Policy Advancement Ltd, McMaster UniversityWashington,
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Skinner, Mark W
  
Open Access | Mar 14, 2018
What is a nurse-led service? A discussion paper
Kate Khair

Kate Khair

Nurse Consultant, Haemophilia Centre, Great Ormond Street Hospital for Children NHS Trust,London, UK
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Khair, Kate
 and 
Steve Chaplin

Steve Chaplin

Medical writer,London, UK
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Chaplin, Steve
  
Open Access | Jun 08, 2020
“What more can we ask for?”: an ethnographic study of challenges and possibilities for people living with haemophilia
Thomas Hughes

Thomas Hughes

ReD AssociatesCopehagen, Denmark
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Hughes, Thomas
, 
Mikkel Brok-Kristensen

Mikkel Brok-Kristensen

ReD AssociatesCopenhagen, Denmark
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Brok-Kristensen, Mikkel
, 
Yosha Gargeya

Yosha Gargeya

ReD AssociatesCopenhagen, Denmark
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Gargeya, Yosha
, 
Anne Mette Worsøe Lottrup

Anne Mette Worsøe Lottrup

ReD AssociatesCopenhagen, Denmark
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Worsøe Lottrup, Anne Mette
, 
Ask Bo Larsen

Ask Bo Larsen

ReD AssociatesCopenhagen, Denmark
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Bo Larsen, Ask
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Ana Torres-Ortuño

Ana Torres-Ortuño

Department of Psychiatry and Social Psychology, University of MurciaSpain
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Torres-Ortuño, Ana
, 
Nicki Mackett

Nicki Mackett

Liverpool Paediatric Haemophilia Centre, Alder Hey Children's NHS Foundation Trust
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Mackett, Nicki
 and 
John Stevens

John Stevens

Swedish Orphan Biovitrum AB (Sobi)Stockholm, Sweden
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Stevens, John
  
Open Access | Apr 21, 2018
The role of the European haemophilia nurse
Liesbeth Schrijvers

Liesbeth Schrijvers

MSc RN Van Creveldkliniek, University Medical Center Utrecht, Room C01.425, PO Box 85500, 3508 GAUtrecht, Netherlands
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Schrijvers, Liesbeth
, 
Martin Bedford

Martin Bedford

Canterbury Christ Church University,Kent, UK
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Bedford, Martin
, 
Petra Elfvinge

Petra Elfvinge

Coagulation Unit, Karolinska University Hospital,Stockholm, Sweden
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Elfvinge, Petra
, 
Karin Andritschke

Karin Andritschke

University Hospital Frankfurt,Frankfurt, Germany
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Andritschke, Karin
, 
Bert Leenders

Bert Leenders

University Hospital Leuven,Leuven, Belgium
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Leenders, Bert
 and 
Christine Harrington

Christine Harrington

The Katharine Dormandy Haemophilia Centre & Thrombosis Unit, Royal Free London NHS Foundation Trust,London, UK
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Harrington, Christine
  
Open Access | May 22, 2018
Pain: the voiceless scream in every haemophilia patient’s life
Masoume Rambod

Masoume Rambod

PhD Candidate, MS in Nursing, Student Research Committee of Shiraz University of Medical Sciences & Community Based Psychiatric Care Research Center, Department of Medical Surgical, School of Nursing and Midwifery, Shiraz University of Medical Sciences,Shiraz, Iran
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Rambod, Masoume
, 
Farkhondeh Sharif

Farkhondeh Sharif

PhD, Community Based Psychiatric Care Research Center, Department of Mental Health and Psychiatric Nursing, School of Nursing and Midwifery, Shiraz University of Medical Sciences,Shiraz, Iran
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Sharif, Farkhondeh
, 
Zahra Molazem

Zahra Molazem

PhD, Community Based Psychiatric Care Research Center, Department of Medical Surgical, School of Nursing and Midwifery, Shiraz University of Medical Sciences,Shiraz, Iran
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Molazem, Zahra
 and 
Kate Khair

Kate Khair

  • Consultant Nurse Haemophilia, Great Ormond Street Hospital for Children NHS Foundation Trust,London, UK
  • Visiting Professor of Health and Social Care, London South Bank University,London, UK
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Khair, Kate
  
Open Access | May 02, 2021
The patient gene therapy journey: Findings from qualitative interviews with trial participants at one UK haemophilia centre
Elsa Aradom

Elsa Aradom

Katharine Dormandy Haemophilia and Thrombosis Centre, Royal Free London NHS Foundation TrustLondon, UK
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Aradom, Elsa
 and 
Keith Gomez

Keith Gomez

Katharine Dormandy Haemophilia and Thrombosis Centre, Royal Free London NHS Foundation TrustLondon, UK
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Gomez, Keith
  
Journal Information
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The Journal of Haemophilia Practice is covered by the following services:

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eISSN:
2055-3390
Language:
English
Publication timeframe:
1 times per year
Journal Subjects:
Medicine, Basic Medical Science, Basic Medical Science, other, Clinical Medicine, Clinical Medicine, other, Pharmacy, Pharmacology
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