Disease Knowledge and Treatment Adherence among Adult Patients with Thalassemia: A Cross-sectional Correlational Study

1. Cao A, Galanello R. Beta-Thalassemia. Genet Med. 2010;19(6):61-76. doi:10.1038/gim.2016.17310.1038/gim.2016.173Open DOISearch in Google Scholar

2. Al-Kloub MI, Abed MA, Al khawaldeh OA, et al. Predictors of non-adherence to follow-up visits and deferasirox chelation therapy among Jordanian adolescents with thalassemia major. Pediatr Hematol Oncol. 2014;13(7):624-637. doi:10.3109/08880018.2014.939792.10.3109/08880018.2014.939792Open DOISearch in Google Scholar

3. Alenazi SA, Ali HW, Alharbi MG, et al. Prevalence of thalassemia and sickle cell disease in Northern border region of Saudi Arabia. Kashmir J Med Sci. 2015;1(1):3-6.Search in Google Scholar

4. Memish ZA, Owaidah TM, Saeedi MY. Marked regional variations in the prevalence of sickle cell disease and beta-thalassemia in Saudi Arabia: Findings from the premarital screening and genetic counseling program. J Epidemiol Glob Health. 2011;1(1):61-68. doi:10.1016/j.jegh.2011.06.002.10.1016/j.jegh.2011.06.002Open DOISearch in Google Scholar

5. GBD 2015 Mortality and Causes of Death Collaborators. Global, regional, and national life expectancy, all-cause mortality, and cause-specific mortality for 249 causes of death, 1980-2015: A systematic analysis for the global burden of disease study 2015. Lancet. 2016;388(10053):1459-1544. doi:https://doi.org/10.1016/S0140-6736(16)31012-110.1016/S0140-6736(16)31012-1Open DOISearch in Google Scholar

6. Alsaeed ES, Farhat GN, Assiri AM, et al. Distribution of hemoglobinopathy disorders in Saudi Arabia based on data from the premarital screening and genetic counseling program, 2011–2015. J Epidemiol Glob Health. 2018;7(1):S41-S47. https://doi.org/10.1016/j.jegh.2017.12.00110.1016/j.jegh.2017.12.001738644229801592Open DOISearch in Google Scholar

7. Olwi DI, Merdad LA, Ramadan EK. Thalassemia: a prevalent disease yet unknown term among college students in Saudi Arabia. J Community Genet. 2018;9(3):277-282. doi:10.1007/s12687-017-0351-3.10.1007/s12687-017-0351-3600230529238908Open DOISearch in Google Scholar

8. Kingdom of Saudi Arabia-Ministry of Health (MOH). Response to medical advice offered by the healthy marriage program on the rise. Retrieved March 9, 2019, from http://www.moh.gov.sa/en/Search in Google Scholar

9. Trachtenberg FL, Mednick L, Kwiatkowski JL, et al. Beliefs about chelation among thalassemia patients. Health Qual Life Out. 2012;10:148. doi:10.1186/1477-7525-10-148.10.1186/1477-7525-10-148354584123216870Open DOISearch in Google Scholar

10. Burkhart PV, Sabaté E. Adherence to long-term therapies: Evidence for action. J Nurs Scholarsh. 2003;35(3):207.10.1111/j.1547-5069.2003.tb00001.xSearch in Google Scholar

11. Borgna-Pignatti C, Rugolotto S, De Stefano P, et al. Survival and complications in patients with thalassemia major treated with transfusion and deferoxamine. Haematologica. 2004;89(10):1187-1193.Search in Google Scholar

12. Lemay J, Waheedi M, Al-Sharqawi S, Bayoud T. Medication adherence in chronic illness: Do beliefs about medications play a role? Patient Prefer Adherence. 2018;12:1687-1698. doi:10.2147/PPA.S169236.3023314910.2147/PPA.S169236613027030233149Search in Google Scholar

13. Pakbaz Z, Treadwell M, Yamashita R, et al. Quality of life in patients with thalassemia intermediary compared to thalassemia major. Ann N Y Acad Sci. 2005;1054:457-461. doi:10.1196/annals.1345.059.10.1196/annals.1345.05916339697Open DOISearch in Google Scholar

14. Awwad O, Akour A, Al-Muhaissen S, Morisky D. The influence of patients’ knowledge on adherence to their chronic medications: A cross-sectional study in Jordan. Int J Clin Pharmacol Ther. 2015;37(3):504-510. doi:10.1007/s11096-015-0086-3.10.1007/s11096-015-0086-325708124Open DOISearch in Google Scholar

15. Lee YL, Lin DT, Tsai SF. Disease knowledge and treatment adherence among patients with thalassemia major and their mothers in Taiwan. J Clin Nurs. 2009;18(4):529-538. doi:10.1111/j.1365-2702.2007.02150.x.10.1111/j.1365-2702.2007.02150.x19192002Open DOISearch in Google Scholar

16. Yang HC, Chen YC, Mao HC, Lin KH. Illness knowledge, social support and self care behavior in adolescents with beta-thalassemia major. Hu Li Yan Jiu=Nursing Research 2001;9:114-124. (Original Work Published in Chinese)Search in Google Scholar

17. Patton DE, Hughes CM, Cadogan CA, Ryan CA. Theory-based interventions to improve medication adherence in older adults prescribed polypharmacy: A systematic review. Drugs Aging. 2017;34(2):97–113. doi:10.1007/s40266-016-0426-6.10.1007/s40266-016-0426-6529006228025725Open DOISearch in Google Scholar

18. Vardaki MA, Philalithis AE, Vlachonokolis I. Factors associated with the attitudes and expectations of patients suffering from beta-thalassemia: A cross-sectional study. Scand J Caring Sci. 2004;18(2):177-187. doi:10.1111/j.1471-6712.2004.00267.x.1514748110.1111/j.1471-6712.2004.00267.x15147481Search in Google Scholar

19. Nazir SU, Hassali AM, Saleem F, et al. Disease related knowledge, medication adherence and glycaemic control among patients with type 2 diabetes mellitus in Pakistan. Prim Care Diabetes. 2016;10(2):136-141. doi:10.1016/j.pcd.2015.09.004.10.1016/j.pcd.2015.09.00426476867Open DOISearch in Google Scholar

20. Patel AP, Parmar PH, Patel RB, et al. Factors influencing beta-thalassemia awareness in Western India. Natl J Community Med, 2016;7(3):193-197.Search in Google Scholar

21. Colah R, aItalia K, Gorakshakar A. Burden of thalassemia in India: The road map for control. Pediatr Hematol Oncol J. 2017;2(4):79-84. https://doi.org/10.1016/j.phoj.2017.10.00210.1016/j.phoj.2017.10.002Open DOISearch in Google Scholar

22. Kourorian Z, Azarkeivan A, Hajibeigi B, et al. The effect of knowledge, attitude and practice on the function of thalassemia patients. Iranian Journal of Blood and Cancer. 2014;6(4):177-181.Search in Google Scholar

23. Maheen H, Malik F, Siddique B, Qidwai, A. Assessing parental knowledge about thalassemia in a thalassemia center of Karachi, Pakistan. J Genet Couns. 2015; 24(6):945-951. doi:10.1007/s10897-015-9830-z.10.1007/s10897-015-9830-z25843562Open DOISearch in Google Scholar

24. Kosaryan M, Vabidshabi K, Siami R, et al. Knowledge, attitudes, and practices of reproductive behaviours in Iranian minor thalassemia couples. Saudi Med J. 2009;30(6):835-839.Search in Google Scholar

25. Abolghasemi H, Amid A, Zeinali S, et al. Thalassemia in Iran: Epidemiology, prevention, and management. J Pediatr Hematol Oncolo. 2007;29(4):233-238. doi: 10.1097/MPH.0b013e3180437e02.10.1097/MPH.0b013e3180437e0217414565Open DOISearch in Google Scholar

26. Hinkle JL, Cheever KH. Brunner and Suddarath text book of medical surgical nursing. 14th Ed. Lippincott Williams & Wilikins: Philadelphia; Pa; 2017.Search in Google Scholar

27. Pedram M, Zandian K, Keikhaie B, et al. A report on chelating therapy and patient compliance by determination of serum ferritin levels in 243 thalassemia major patients. Iran J Pediatr Society. 2010;2:65-69.Search in Google Scholar

28. Zeydi AE, Moonaghi HK, Heydari A. Exploring Iranian β-Thalassemia major patients’ perception of barriers and facilitators of adherence to treatment: A qualitative study. Electron Physician. 2017;9(12):6102–6110. doi:10.19082/6102.10.19082/6102584344029560166Open DOISearch in Google Scholar

29. Pai ALH, Ostendorf HM. Treatment adherence in adolescents and young adults affected by chronic illness during the health care transition from pediatric to adult health care: A literature review. Child Health Care. 2011;40(1):16–33.10.1080/02739615.2011.537934Search in Google Scholar