Caregivers’ awareness regarding the care of dementia and the coping strategies among the caregivers of people with dementia: a cross-sectional study in Udupi District, Karnataka

1. Alzheimer’s Disease and Healthy Aging. Center for Disease Control and Prevention; 2019. Alzheimer’s Disease and Healthy Aging . Center for Disease Control and Prevention ; 2019 . Search in Google Scholar

2. Dementia Key Facts. World Health Organization; 2022. https://www.who.int/news-room/fact-sheets/detail/dementia. Accessed October 21, 2022. Dementia Key Facts . World Health Organization ; 2022 . https://www.who.int/news-room/fact-sheets/detail/dementia . Accessed October 21, 2022 . Search in Google Scholar

3. Zacharopoulou G, Zacharopoulou V, Lazakidou A. Quality of life for caregivers of elderly patients with dementia and measurement tools: a review. Int J Health Res Innov. 2015;3:49–64. Zacharopoulou G Zacharopoulou V Lazakidou A. Quality of life for caregivers of elderly patients with dementia and measurement tools: a review . Int J Health Res Innov . 2015 ; 3 : 49 – 64 . Search in Google Scholar

4. Brodaty H, Donkin M. Family caregivers of people with dementia. Dialogues Clin Neurosci. 2009;11:217–228. Brodaty H Donkin M. Family caregivers of people with dementia . Dialogues Clin Neurosci . 2009 ; 11 : 217 – 228 . Search in Google Scholar

5. Duggleby W, Williams A, Ghosh S, et al. Factors influencing changes in health related quality of life of caregivers of persons with multiple chronic conditions. Health Qual Life Outcomes. 2016;14:81. Duggleby W Williams A Ghosh S Factors influencing changes in health related quality of life of caregivers of persons with multiple chronic conditions . Health Qual Life Outcomes . 2016 ; 14 : 81 . Search in Google Scholar

6. Rodrigues L, Mathias T. Effectiveness of planned teaching program on knowledge regarding Alzheimer’s disease among the family members of elderly in a selected urban community at Mangalore. Indian J Psychiatry. 2016;58:44–48. Rodrigues L Mathias T. Effectiveness of planned teaching program on knowledge regarding Alzheimer’s disease among the family members of elderly in a selected urban community at Mangalore . Indian J Psychiatry . 2016 ; 58 : 44 – 48 . Search in Google Scholar

7. Jorge C, Cetó M, Arias A, et al. Level of understanding of Alzheimer disease among caregivers and the general population. Neurologia (Engl Ed). 2021;36:426–432. Jorge C Cetó M Arias A Level of understanding of Alzheimer disease among caregivers and the general population . Neurologia (Engl Ed) . 2021 ; 36 : 426 – 432 . Search in Google Scholar

8. Pleasant M, Molinari V, Dobbs D, Meng H, Hyer K. Effectiveness of online dementia caregivers training programs: a systematic review. Geriatr Nurs. 2020;41:921–935. Pleasant M Molinari V Dobbs D Meng H Hyer K. Effectiveness of online dementia caregivers training programs: a systematic review . Geriatr Nurs . 2020 ; 41 : 921 – 935 . Search in Google Scholar

9. Lindeza P, Rodrigues M, Costa J, Guerreiro M, Rosa MM. Impact of dementia on informal care: a systematic review of family caregivers’ perceptions. BMJ Support Palliat Care. 2024;14:38–49. Lindeza P Rodrigues M Costa J Guerreiro M Rosa MM. Impact of dementia on informal care: a systematic review of family caregivers’ perceptions . BMJ Support Palliat Care . 2024 ; 14 : 38 – 49 . Search in Google Scholar

10. Hurzuk S, Farina N, Pattabiraman M, et al. Understanding, experiences and attitudes of dementia in India: a qualitative study. Dementia (London). 2022;21:2288–2306. Hurzuk S Farina N Pattabiraman M Understanding, experiences and attitudes of dementia in India: a qualitative study . Dementia (London) . 2022 ; 21 : 2288 – 2306 . Search in Google Scholar

11. Teichmann B, Gkioka M, Kruse A, Tsolaki M. Informal caregivers’ attitude toward dementia: the impact of dementia knowledge, confidence in dementia care, and the behavioral and psychological symptoms of the person with dementia. A cross-sectional study. J Alzheimers Dis. 2022;88:971–984. Teichmann B Gkioka M Kruse A Tsolaki M. Informal caregivers’ attitude toward dementia: the impact of dementia knowledge, confidence in dementia care, and the behavioral and psychological symptoms of the person with dementia. A cross-sectional study . J Alzheimers Dis . 2022 ; 88 : 971 – 984 . Search in Google Scholar

12. Ritchie L, Jack-Waugh A, Devi ES, et al. Understanding family carer experiences of advanced dementia caregiving in India: towards a vision for integrated practice. J Integ Care. 2020;28:337–348. Ritchie L Jack-Waugh A Devi ES Understanding family carer experiences of advanced dementia caregiving in India: towards a vision for integrated practice . J Integ Care . 2020 ; 28 : 337 – 348 . Search in Google Scholar

13. Arai Y, Arai A, Zarit SH. What do we know about dementia? A survey on knowledge about dementia in the general public of Japan. Int J Geriatr Psychiatry. 2008;23:433–438. Arai Y Arai A Zarit SH. What do we know about dementia? A survey on knowledge about dementia in the general public of Japan . Int J Geriatr Psychiatry . 2008 ; 23 : 433 – 438 . Search in Google Scholar

14. Werner P. Correlates of family caregivers’ knowledge about Alzheimer’s disease. Int J Geriatr Psychiatry. 2001;16:32–38. Werner P. Correlates of family caregivers’ knowledge about Alzheimer’s disease . Int J Geriatr Psychiatry . 2001 ; 16 : 32 – 38 . Search in Google Scholar

15. Dai Y, Zhao J, Li S, Zhao C, Gao Y, Johnson CE. Caregivers’ dementia knowledge and care approach in residential aged care facilities in China. Am J Alzheimers Dis Other Demen. 2020;35:1–7. Dai Y Zhao J Li S Zhao C Gao Y Johnson CE. Caregivers’ dementia knowledge and care approach in residential aged care facilities in China . Am J Alzheimers Dis Other Demen . 2020 ; 35 : 1 – 7 . Search in Google Scholar

16. Eisenmann Y, Golla H, Schmidt H, Voltz R, Perrar KM. Palliative care in advanced dementia. Front Psychiatry. 2020;11:699. Eisenmann Y Golla H Schmidt H Voltz R Perrar KM. Palliative care in advanced dementia . Front Psychiatry . 2020 ; 11 : 699 . Search in Google Scholar

17. Amado DK, Brucki SMD. Knowledge about Alzheimer’s disease in the Brazilian population. Arq Neuropsiquiatr. 2018;76:775–782. Amado DK Brucki SMD. Knowledge about Alzheimer’s disease in the Brazilian population . Arq Neuropsiquiatr . 2018 ; 76 : 775 – 782 . Search in Google Scholar

18. Márquez-González M, Vara-García C, Romero-Moreno R, Losada-Baltar A, del Sequeros Pedroso-Chaparro M, Barrera-Caballero S. Associations of knowledge about Alzheimer’s disease, dysfunctional cognition, and coping with caregiver’s blood pressure. Clínica y Salud. 2021;32:79–87. Márquez-González M Vara-García C Romero-Moreno R Losada-Baltar A del Sequeros Pedroso-Chaparro M Barrera-Caballero S. Associations of knowledge about Alzheimer’s disease, dysfunctional cognition, and coping with caregiver’s blood pressure . Clínica y Salud . 2021 ; 32 : 79 – 87 . Search in Google Scholar

19. Suriastini NW, Turana Y, Witoelar F, Sikoki B, Wicaksono T, Dwi ME. The prevalence, risk factors of dementia and caregiver knowledge of the early symptoms: evidence from a large-scale survey in Yogyakarta. Aging Med Healthc. 2020;11:60–66. Suriastini NW Turana Y Witoelar F Sikoki B Wicaksono T Dwi ME. The prevalence, risk factors of dementia and caregiver knowledge of the early symptoms: evidence from a large-scale survey in Yogyakarta . Aging Med Healthc . 2020 ; 11 : 60 – 66 . Search in Google Scholar

20. Samy Atta N. Caregivers’ burden and needed support for the care of dementia patients attending Ain Shams University hospitals. Egypt J Geriatr Gerontol. 2021;8:30–36. Samy Atta N. Caregivers’ burden and needed support for the care of dementia patients attending Ain Shams University hospitals . Egypt J Geriatr Gerontol . 2021 ; 8 : 30 – 36 . Search in Google Scholar

21. Ahmad Basri MA, Subramaniam P, Ghazali SE, Singh DK. A review of knowledge and attitudes towards dementia among college and university students. J Clin Diagn Res. 2017;11:1–7. Ahmad Basri MA Subramaniam P Ghazali SE Singh DK. A review of knowledge and attitudes towards dementia among college and university students . J Clin Diagn Res . 2017 ; 11 : 1 – 7 . Search in Google Scholar

22. Annear MJ, Eccleston CE, McInerney FJ, et al. A new standard in dementia knowledge measurement: comparative validation of the dementia knowledge assessment scale and the Alzheimer’s disease knowledge scale. J Am Geriatr Soc. 2016;64:1329–1334. Annear MJ Eccleston CE McInerney FJ A new standard in dementia knowledge measurement: comparative validation of the dementia knowledge assessment scale and the Alzheimer’s disease knowledge scale . J Am Geriatr Soc . 2016 ; 64 : 1329 – 1334 . Search in Google Scholar

23. Alzahrani MM, Alghamdi AA, Alghamdi SA, Alotaibi RK. Knowledge and attitude of dentists towards obstructive sleep apnea. Int Dent J. 2022;72:315–321. Alzahrani MM Alghamdi AA Alghamdi SA Alotaibi RK. Knowledge and attitude of dentists towards obstructive sleep apnea . Int Dent J . 2022 ; 72 : 315 – 321 . Search in Google Scholar

24. Carver CS. You want to measure coping but your protocol’s too long: consider the brief COPE. Int J Behav Med. 1997;4:92–100. Carver CS. You want to measure coping but your protocol’s too long: consider the brief COPE . Int J Behav Med . 1997 ; 4 : 92 – 100 . Search in Google Scholar

25. Cooper C, Katona C, Livingston G. Validity and reliability of the brief COPE in carers of people with dementia: the LASER-AD Study. J Nerv Ment Dis. 2008;196:838–843. Cooper C Katona C Livingston G. Validity and reliability of the brief COPE in carers of people with dementia: the LASER-AD Study . J Nerv Ment Dis . 2008 ; 196 : 838 – 843 . Search in Google Scholar

26. Jennings LA, Reuben DB, Evertson LC, et al. Unmet needs of caregivers of individuals referred to a dementia care program. J Am Geriatr Soc. 2015;63:282–289. Jennings LA Reuben DB Evertson LC Unmet needs of caregivers of individuals referred to a dementia care program . J Am Geriatr Soc . 2015 ; 63 : 282 – 289 . Search in Google Scholar

27. Gurukartick J, Dongre AR, Shah D. Social determinants of dementia and caregivers’ perspectives in the field practice villages of rural health training centre, Thiruvennainallur. Indian J Palliat Care. 2016;22:25. Gurukartick J Dongre AR Shah D. Social determinants of dementia and caregivers’ perspectives in the field practice villages of rural health training centre, Thiruvennainallur . Indian J Palliat Care . 2016 ; 22 : 25 . Search in Google Scholar

28. Mondal S, Tandon R, Dasgupta J. An exploratory study of caregiver burden amongst urban upper class adults in India during COVID-19. Alzheimers Dement. 2021;17:e052800. Mondal S Tandon R Dasgupta J. An exploratory study of caregiver burden amongst urban upper class adults in India during COVID-19 . Alzheimers Dement . 2021 ; 17 : e052800 . Search in Google Scholar

29. Huang WC, Chang MC, Wang WF, Jhang KM. A comparison of caregiver burden for different types of dementia: an 18-month retrospective cohort study. Front Psychol. 2022;12:798315. Huang WC Chang MC Wang WF Jhang KM. A comparison of caregiver burden for different types of dementia: an 18-month retrospective cohort study . Front Psychol . 2022 ; 12 : 798315 . Search in Google Scholar

30. Silva MVF, Loures CMG, Alves LCV, de Souza LC, Borges KBG, Carvalho MDG. Alzheimer’s disease: risk factors and potentially protective measures. J Biomed Sci. 2019;26:33. Silva MVF Loures CMG Alves LCV de Souza LC Borges KBG Carvalho MDG. Alzheimer’s disease: risk factors and potentially protective measures . J Biomed Sci . 2019 ; 26 : 33 . Search in Google Scholar

31. Bruinsma J, Peetoom K, Bakker C, Boots L, Verhey F, de Vugt M. ‘They simply do not understand’: a focus group study exploring the lived experiences of family caregivers of people with frontotemporal dementia. Aging Ment Health. 2022;26:277–285. Bruinsma J Peetoom K Bakker C Boots L Verhey F de Vugt M. ‘They simply do not understand’: a focus group study exploring the lived experiences of family caregivers of people with frontotemporal dementia . Aging Ment Health . 2022 ; 26 : 277 – 285 . Search in Google Scholar

32. Stokes LA, Combes H, Stokes G. Understanding the dementia diagnosis: the impact on the caregiving experience. Dementia (London). 2014;13:59–78. Stokes LA Combes H Stokes G. Understanding the dementia diagnosis: the impact on the caregiving experience . Dementia (London) . 2014 ; 13 : 59 – 78 . Search in Google Scholar

33. Proctor R, Martin C, Hewison J. When a little knowledge is a dangerous thing…: a study of carers’ knowledge about dementia, preferred coping style and psychological distress. Int J Geriatr Psychiatry. 2002;17:1133–1139. Proctor R Martin C Hewison J. When a little knowledge is a dangerous thing…: a study of carers’ knowledge about dementia, preferred coping style and psychological distress . Int J Geriatr Psychiatry . 2002 ; 17 : 1133 – 1139 . Search in Google Scholar

34. Long NX, Ngoc NB, Phung TT, et al. Coping strategies and social support among caregivers of patients with cancer: a cross-sectional study in Vietnam. AIMS Public Health. 2020;8:1–14. Long NX Ngoc NB Phung TT Coping strategies and social support among caregivers of patients with cancer: a cross-sectional study in Vietnam . AIMS Public Health . 2020 ; 8 : 1 – 14 . Search in Google Scholar