This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
Acheson, L. S., Wang, C., Zyzanski, S. J., Lynn, A., Ruffin IV, M. T., Gramling, R., Rubinstein, W., O’Neill, S., & Nease Jr, D. E. (2010). Family history and perceptions about risk and prevention for chronic diseases in primary care: a report from the Family Healthware™ Impact Trial. Genetics in Medicine, 12(4), 212.AchesonL. S.WangC.ZyzanskiS. J.LynnA.RuffinIVM. T.GramlingR.RubinsteinW.O’NeillS., & NeaseJrD. E. (2010). Family history and perceptions about risk and prevention for chronic diseases in primary care: a report from the Family Healthware™ Impact Trial. , 12(4), 212.10.1097/GIM.0b013e3181d56ae6Search in Google Scholar
Annis, A. M., Caulder, M. S., Cook, M. L., & Duquette, D. (2005). Family History, Diabetes, and Other Demographic and Risk Factors Among Participants of the National Health and Nutrition Examination Survey 1999–2002. Preventing Chronic Disease, 2(2), A19.AnnisA. M.CaulderM. S.CookM. L., & DuquetteD. (2005). Family History, Diabetes, and Other Demographic and Risk Factors Among Participants of the National Health and Nutrition Examination Survey 1999–2002. , 2(2), A19.Search in Google Scholar
Ashida, S., Kaphingst, K. A., Goodman, M., & Schafer, E. J. (2013). Family health history communication networks of older adults importance of social relationships and disease perceptions. Health Education & Behavior, 40(5), 612-619.AshidaS.KaphingstK. A.GoodmanM., & SchaferE. J. (2013). Family health history communication networks of older adults importance of social relationships and disease perceptions. , 40(5), 612-619.10.1177/1090198112473110Search in Google Scholar
Ashida, S., & Schafer, E. J. (2014). Family health information sharing among older adults: reaching more family members. Journal of community genetics, 6(1), 17-27.AshidaS., & SchaferE. J. (2014). Family health information sharing among older adults: reaching more family members. , 6(1), 17-27.10.1007/s12687-014-0197-xSearch in Google Scholar
Baptiste-Roberts, K., Gary, T. L., Beckles, G. L., Gregg, E. W., Owens, M., Porterfield, D., & Engelgau, M. M. (2007). Family history of diabetes, awareness of risk factors, and health behaviors among African Americans. American Journal of Public Health, 97(5), 907-912.Baptiste-RobertsK.GaryT. L.BecklesG. L.GreggE. W.OwensM.PorterfieldD., & EngelgauM. M. (2007). Family history of diabetes, awareness of risk factors, and health behaviors among African Americans. , 97(5), 907-912.10.2105/AJPH.2005.077032Search in Google Scholar
Breastcancer.org. (2018). Family History. from https://www.breastcancer.org/risk/factors/family_historyBreastcancer.org. (2018). . from https://www.breastcancer.org/risk/factors/family_historySearch in Google Scholar
Case, D. O. (2008). Collection of family health histories: The link between genealogy and public health. Journal of the American Society for Information Science and Technology, 59(14), 2312-2319.CaseD. O. (2008). Collection of family health histories: The link between genealogy and public health. , 59(14), 2312-2319.10.1002/asi.20938Search in Google Scholar
Catz, D. S., Green, N. S., Tobin, J. N., Lloyd-Puryear, M. A., Kyler, P., Umemoto, A., … Wolman, F. (2005). Attitudes about genetics in underserved, culturally diverse populations. Community Genet, 8(3), 161-172. doi: 10.1159/000086759CatzD. S.GreenN. S.TobinJ. N.Lloyd-PuryearM. A.KylerP.UmemotoA., … WolmanF. (2005). Attitudes about genetics in underserved, culturally diverse populations. , 8(3), 161-172. doi: 10.1159/000086759Open DOISearch in Google Scholar
Chen, L.-S., Li, M., Talwar, D., Xu, L., & Zhao, M. (2016). Chinese Americans’ Views and Use of Family Health History: A Qualitative Study. PloS one, 11(9), e0162706.ChenL.-S.LiM.TalwarD.XuL., & ZhaoM. (2016). Chinese Americans’ Views and Use of Family Health History: A Qualitative Study. , 11(9), e0162706.10.1371/journal.pone.0162706Search in Google Scholar
Corona, R., Rodríguez, V., Quillin, J., Gyure, M., & Bodurtha, J. (2013). Talking (or not) about family health history in families of Latino young adults. Health Education & Behavior, 40(5), 571-580.CoronaR.RodríguezV.QuillinJ.GyureM., & BodurthaJ. (2013). Talking (or not) about family health history in families of Latino young adults. , 40(5), 571-580.10.1177/1090198112464495Search in Google Scholar
Creswell, J. W., & Clark, V. L. P. (2017). Designing and conducting mixed methods research: Sage publications.CreswellJ. W., & ClarkV. L. P. (2017). : Sage publications.Search in Google Scholar
Daelemans, S., Vandevoorde, J., Vansintejan, J., Borgermans, L., & Devroey, D. (2013). The use of family history in primary health care: a qualitative study. Advances in preventive medicine, 2013.DaelemansS.VandevoordeJ.VansintejanJ.BorgermansL., & DevroeyD. (2013). The use of family history in primary health care: a qualitative study. , 2013.10.1155/2013/695763Search in Google Scholar
Dedoose version 8.0.35. (2018). Web application for managing, analyzing, and presenting qualitative and mixed method research data (2013). Los Angeles, CA: SocioCultural Research Consultants, LLC. Retrieved from www.dedoose.comDedoose version 8.0.35. (2018). . Los Angeles, CA: SocioCultural Research Consultants, LLC. Retrieved from www.dedoose.comSearch in Google Scholar
Forrest, K., Simpson, S., Wilson, B., Van Teijlingen, E., McKee, L., Haites, N., & Matthews, E. (2003). To tell or not to tell: barriers and facilitators in family communication about genetic risk. Clinical genetics, 64(4), 317-326.ForrestK.SimpsonS.WilsonB.Van TeijlingenE.McKeeL.HaitesN., & MatthewsE. (2003). To tell or not to tell: barriers and facilitators in family communication about genetic risk. , 64(4), 317-326.10.1034/j.1399-0004.2003.00142.xSearch in Google Scholar
Goergen, A. F., Ashida, S., Skapinsky, K., de Heer, H. D., Wilkinson, A. V., & Koehly, L. M. (2016). What You Don’t Know: Improving Family Health History Knowledge among Multigenerational Families of Mexican Origin. Public Health Genomics, 19(2), 93-101. doi: 10.1159/000443473GoergenA. F.AshidaS.SkapinskyK.de HeerH. D.WilkinsonA. V., & KoehlyL. M. (2016). What You Don’t Know: Improving Family Health History Knowledge among Multigenerational Families of Mexican Origin. , 19(2), 93-101. doi: 10.1159/000443473Open DOISearch in Google Scholar
Halbert, C. H., Welch, B., Lynch, C., Magwood, G., Rice, L., Jefferson, M., & Riley, J. (2016). Social determinants of family health history collection. Journal of community genetics, 7(1), 57-64.HalbertC. H.WelchB.LynchC.MagwoodG.RiceL.JeffersonM., & RileyJ. (2016). Social determinants of family health history collection. , 7(1), 57-64.10.1007/s12687-015-0251-3Search in Google Scholar
Hecht, M. L., Jackson, R. L., & Ribeau, S. A. (2003). African American communication: Exploring identity and culture: Routledge.HechtM. L.JacksonR. L., & RibeauS. A. (2003). : Routledge.10.4324/9781410606358Search in Google Scholar
Hood, S. M. (2018). Enhancing cultural considerations in networks and health: a commentary on racial differences in family health history knowledge and interpersonal mechanisms. Transl Behav Med, 8(4), 550-553. doi: 10.1093/tbm/iby062HoodS. M. (2018). Enhancing cultural considerations in networks and health: a commentary on racial differences in family health history knowledge and interpersonal mechanisms. , 8(4), 550-553. doi: 10.1093/tbm/iby062Open DOISearch in Google Scholar
Hovick, S. R. (2014). Understanding family health information seeking: A test of the theory of motivated information management. Journal of health communication, 19(1), 6-23.HovickS. R. (2014). Understanding family health information seeking: A test of the theory of motivated information management. , 19(1), 6-23.10.1080/10810730.2013.778369Search in Google Scholar
Hovick, S. R., Yamasaki, J. S., Burton-Chase, A. M., & Peterson, S. K. (2015). Patterns of family health history communication among older African American adults. Journal of health communication, 20(1), 80-87.HovickS. R.YamasakiJ. S.Burton-ChaseA. M., & PetersonS. K. (2015). Patterns of family health history communication among older African American adults. , 20(1), 80-87.10.1080/10810730.2014.908984Search in Google Scholar
Kaphingst, K. A., Goodman, M., Pandya, C., Garg, P., Stafford, J., & Lachance, C. (2012). Factors affecting frequency of communication about family health history with family members and doctors in a medically underserved population. Patient Educ Couns, 88(2), 291-297. doi: 10.1016/j.pec.2011.11.013KaphingstK. A.GoodmanM.PandyaC.GargP.StaffordJ., & LachanceC. (2012). Factors affecting frequency of communication about family health history with family members and doctors in a medically underserved population. , 88(2), 291-297. doi: 10.1016/j.pec.2011.11.013Open DOISearch in Google Scholar
Kenen, R., & Peters, J. (2001). The colored, eco-genetic relationship map (CEGRM): a conceptual approach and tool for genetic counseling research. J Genet Couns, 10(4), 289-309.KenenR., & PetersJ. (2001). The colored, eco-genetic relationship map (CEGRM): a conceptual approach and tool for genetic counseling research. , 10(4), 289-309.10.1023/A:1016627426430Search in Google Scholar
Koehly, L. M., Peters, J. A., Kenen, R., Hoskins, L. M., Ersig, A. L., Kuhn, N. R., … Greene, M. H. (2009). Characteristics of health information gatherers, disseminators, and blockers within families at risk of hereditary cancer: implications for family health communication interventions. American Journal of Public Health, 99(12), 2203-2209.KoehlyL. M.PetersJ. A.KenenR.HoskinsL. M.ErsigA. L.KuhnN. R., … GreeneM. H. (2009). Characteristics of health information gatherers, disseminators, and blockers within families at risk of hereditary cancer: implications for family health communication interventions. , 99(12), 2203-2209.10.2105/AJPH.2008.154096Search in Google Scholar
Koehly, L. M., Peterson, S. K., Watts, B. G., Kempf, K. K., Vernon, S. W., & Gritz, E. R. (2003). A social network analysis of communication about hereditary nonpolyposis colorectal cancer genetic testing and family functioning. Cancer Epidemiology Biomarkers & Prevention, 12(4), 304-313.KoehlyL. M.PetersonS. K.WattsB. G.KempfK. K.VernonS. W., & GritzE. R. (2003). A social network analysis of communication about hereditary nonpolyposis colorectal cancer genetic testing and family functioning. , 12(4), 304-313.Search in Google Scholar
Lin, J., Marcum, C. S., Myers, M. F., & Koehly, L. M. (2018). Racial differences in family health history knowledge of type 2 diabetes: exploring the role of interpersonal mechanisms. Transl Behav Med. doi: 10.1093/tbm/ibx062LinJ.MarcumC. S.MyersM. F., & KoehlyL. M. (2018). Racial differences in family health history knowledge of type 2 diabetes: exploring the role of interpersonal mechanisms. . doi: 10.1093/tbm/ibx062Open DOISearch in Google Scholar
Mai, P. L., Garceau, A. O., Graubard, B. I., Dunn, M., McNeel, T. S., Gonsalves, L., Wideroff, L. (2011). Confirmation of Family Cancer History Reported in a PopulationBased Survey. JNCI: Journal of the National Cancer Institute, 103(10), 788-797.MaiP. L.GarceauA. O.GraubardB. I.DunnM.McNeelT. S.GonsalvesL.WideroffL. (2011). Confirmation of Family Cancer History Reported in a PopulationBased Survey. , 103(10), 788-797.10.1093/jnci/djr114Search in Google Scholar
Maradiegue, A., & Edwards, Q. T. (2006). An overview of ethnicity and assessment of family history in primary care settings. Journal of the American Academy of Nurse Practitioners, 18(10), 447-456.MaradiegueA., & EdwardsQ. T. (2006). An overview of ethnicity and assessment of family history in primary care settings. , 18(10), 447-456.10.1111/j.1745-7599.2006.00156.xSearch in Google Scholar
Moore, P. J., Gratzer, W., Lieber, C., Edelson, V., O’Leary, J., Terry, S. F., … Hikoyeda, N. (2015). Does It Run in the Family? Toolkit: Improving Well-Educated Elders Ability to Facilitate Conversations about Family Health History.MooreP. J.GratzerW.LieberC.EdelsonV.O’LearyJ.TerryS. F., … HikoyedaN. (2015). .Search in Google Scholar
Newcomb, P., Raudonis, B., Snow, D., & Cauble, D. (2012). Transmission of family health information within families.NewcombP.RaudonisB.SnowD., & CaubleD. (2012). .10.4236/ojn.2012.21003Search in Google Scholar
Orom, H., Kiviniemi, M. T., Underwood, W., Ross, L., & Shavers, V. L. (2010). Perceived cancer risk: why is it lower among nonwhites than whites? Cancer Epidemiology and Prevention Biomarkers, 19(3), 746-754.OromH.KiviniemiM. T.UnderwoodW.RossL., & ShaversV. L. (2010). Perceived cancer risk: why is it lower among nonwhites than whites?, 19(3), 746-754.10.1158/1055-9965.EPI-09-1085Search in Google Scholar
Peters, J. A., Hoskins, L., Prindiville, S., Kenen, R., & Greene, M. H. (2006). Evolution of the colored eco-genetic relationship map (CEGRM) for assessing social functioning in women in hereditary breast-ovarian (HBOC) families. J Genet Couns, 15(6), 477-489.PetersJ. A.HoskinsL.PrindivilleS.KenenR., & GreeneM. H. (2006). Evolution of the colored eco-genetic relationship map (CEGRM) for assessing social functioning in women in hereditary breast-ovarian (HBOC) families. , 15(6), 477-489.10.1007/s10897-006-9042-7Search in Google Scholar
Peters, J. A., Kenen, R., Giusti, R., Loud, J., Weissman, N., & Greene, M. H. (2004). Exploratory study of the feasibility and utility of the colored eco-genetic relationship map (CEGRM) in women at high genetic risk of developing breast cancer. American Journal of Medical Genetics Part A, 130(3), 258-264.PetersJ. A.KenenR.GiustiR.LoudJ.WeissmanN., & GreeneM. H. (2004). Exploratory study of the feasibility and utility of the colored eco-genetic relationship map (CEGRM) in women at high genetic risk of developing breast cancer. , 130(3), 258-264.10.1002/ajmg.a.30271Search in Google Scholar
Peters, J. A., Kenen, R., Hoskins, L. M., Glenn, G. M., Kratz, C., & Greene, M. H. (2012). Close ties: an exploratory Colored Eco-Genetic Relationship Map (CEGRM) study of social connections of men in Familial Testicular Cancer (FTC) families. Hereditary cancer in clinical practice, 10(1), 1.PetersJ. A.KenenR.HoskinsL. M.GlennG. M.KratzC., & GreeneM. H. (2012). Close ties: an exploratory Colored Eco-Genetic Relationship Map (CEGRM) study of social connections of men in Familial Testicular Cancer (FTC) families. , 10(1), 1.10.1186/1897-4287-10-2Search in Google Scholar
Petronio, S. (2010). Communication privacy management theory: What do we know about family privacy regulation? Journal of Family Theory & Review, 2(3), 175-196.PetronioS. (2010). Communication privacy management theory: What do we know about family privacy regulation?, 2(3), 175-196.10.1111/j.1756-2589.2010.00052.xSearch in Google Scholar
Pettey, C. M., McSweeney, J. C., Stewart, K. E., Price, E. T., Cleves, M. A., Heo, S., & Souder, E. (2015). Perceptions of family history and genetic testing and feasibility of pedigree development among African Americans with hypertension. Eur J Cardiovasc Nurs, 14(1), 8-15. doi: 10.1177/1474515114556198PetteyC. M.McSweeneyJ. C.StewartK. E.PriceE. T.ClevesM. A.HeoS., & SouderE. (2015). Perceptions of family history and genetic testing and feasibility of pedigree development among African Americans with hypertension. , 14(1), 8-15. doi: 10.1177/1474515114556198Open DOISearch in Google Scholar
Progeny Genetics LLC. (2018). Progeny Genetic Pedigree Software. Delray Beach, FL. Retrieved from www.progenygenetics.comProgeny Genetics LLC. (2018). . Delray Beach, FL. Retrieved from www.progenygenetics.comSearch in Google Scholar
Rich, E. C., Burke, W., Heaton, C. J., Haga, S., Pinsky, L., Short, M. P., & Acheson, L. (2004). Reconsidering the family history in primary care. Journal of general internal medicine, 19(3), 273-280.RichE. C.BurkeW.HeatonC. J.HagaS.PinskyL.ShortM. P., & AchesonL. (2004). Reconsidering the family history in primary care. , 19(3), 273-280.10.1111/j.1525-1497.2004.30401.xSearch in Google Scholar
Saldaña, J. (2015). The coding manual for qualitative researchers: Sage.SaldañaJ. (2015). : Sage.Search in Google Scholar
Sivell, S., Elwyn, G., Gaff, C. L., Clarke, A. J., Iredale, R., Shaw, C., Dundon, J., Thornton, H., & Edwards, A. (2008). How risk is perceived, constructed and interpreted by clients in clinical genetics, and the effects on decision making: systematic review. Journal of genetic counseling, 17(1), 30-63.SivellS.ElwynG.GaffC. L.ClarkeA. J.IredaleR.ShawC.DundonJ.ThorntonH., & EdwardsA. (2008). How risk is perceived, constructed and interpreted by clients in clinical genetics, and the effects on decision making: systematic review. , 17(1), 30-63.10.1007/s10897-007-9132-1Search in Google Scholar
Solomon, B. L., Whitman, T., & Wood, M. E. (2016). Contribution of extended family history in assessment of risk for breast and colon cancer. BMC Family Practice, 17(1), 126. doi:10.1186/s12875-016-0521-0SolomonB. L.WhitmanT., & WoodM. E. (2016). Contribution of extended family history in assessment of risk for breast and colon cancer. , 17(1), 126. doi:10.1186/s12875-016-0521-0Open DOISearch in Google Scholar
Theis, B., Boyd, N., Lockwood, G., & Tritchler, D. (1994). Accuracy of family cancer history in breast cancer patients. Eur J Cancer Prev, 3(4), 321-327.TheisB.BoydN.LockwoodG., & TritchlerD. (1994). Accuracy of family cancer history in breast cancer patients. , 3(4), 321-327.10.1097/00008469-199407000-00004Search in Google Scholar
Thompson, T., Seo, J., Griffith, J., Baxter, M., James, A., & Kaphingst, K. A. (2013). “You don’t have to keep everything on paper”: African American women’s use of family health history tools. Journal of community genetics, 4(2), 251-261.ThompsonT.SeoJ.GriffithJ.BaxterM.JamesA., & KaphingstK. A. (2013). “You don’t have to keep everything on paper”: African American women’s use of family health history tools. , 4(2), 251-261.10.1007/s12687-013-0138-0Search in Google Scholar
Thompson, T., Seo, J., Griffith, J., Baxter, M., James, A., & Kaphingst, K. A. (2015). The context of collecting family health history: examining definitions of family and family communication about health among African American women. Journal of health communication, 20(4), 416-423.ThompsonT.SeoJ.GriffithJ.BaxterM.JamesA., & KaphingstK. A. (2015). The context of collecting family health history: examining definitions of family and family communication about health among African American women. , 20(4), 416-423.10.1080/10810730.2014.977466Search in Google Scholar
Wang, C., Gallo, R. E., Fleisher, L., & Miller, S. M. (2011). Literacy assessment of family health history tools for public health prevention. Public Health Genomics, 14(4-5), 222-237. doi: 10.1159/000273689WangC.GalloR. E.FleisherL., & MillerS. M. (2011). Literacy assessment of family health history tools for public health prevention. , 14(4-5), 222-237. doi: 10.1159/000273689Open DOISearch in Google Scholar
Ward, S. H., Lin, K., Meyer, B., Bass, S. B., Parameswaran, L., Gordon, T. F., & Ruzek, S. B. (2008). Increasing colorectal cancer screening among African Americans, linking risk perception to interventions targeting patients, communities and clinicians. Journal of the National Medical Association, 100(6), 748-758.WardS. H.LinK.MeyerB.BassS. B.ParameswaranL.GordonT. F., & RuzekS. B. (2008). Increasing colorectal cancer screening among African Americans, linking risk perception to interventions targeting patients, communities and clinicians. , 100(6), 748-758.10.1016/S0027-9684(15)31356-0Search in Google Scholar
Welch, B. M., O’Connell, N., & Schiffman, J. D. (2015). 10 years later: Assessing the impact of public health efforts on the collection of family health history. American Journal of Medical Genetics Part A, 167(9), 2026-2033.WelchB. M.O’ConnellN., & SchiffmanJ. D. (2015). 10 years later: Assessing the impact of public health efforts on the collection of family health history. , 167(9), 2026-2033.10.1002/ajmg.a.37139Search in Google Scholar
Wideroff, L., Garceau, A. O., Greene, M. H., Dunn, M., McNeel, T., Mai, P., Graubard, B. I. (2010). Coherence and Completeness of Population-based Family Cancer Reports. Cancer Epidemiology Biomarkers & Prevention, 19(3), 799.WideroffL.GarceauA. O.GreeneM. H.DunnM.McNeelT.MaiP.GraubardB. I. (2010). Coherence and Completeness of Population-based Family Cancer Reports. , 19(3), 799.10.1158/1055-9965.EPI-09-1138Search in Google Scholar
Wilson, B. J., Forrest, K., van Teijlingen, E. R., McKee, L., Haites, N., Matthews, E., & Simpson, S. A. (2004). Family communication about genetic risk: the little that is known. Public Health Genomics, 7(1), 15-24.WilsonB. J.ForrestK.van TeijlingenE. R.McKeeL.HaitesN.MatthewsE., & SimpsonS. A. (2004). Family communication about genetic risk: the little that is known. , 7(1), 15-24.10.1159/000080300Search in Google Scholar
Yamasaki, J., & Hovick, S. R. (2015). “That Was Grown Folks’ Business”: Narrative Reflection and Response in Older Adults’ Family Health History Communication. Health communication, 30(3), 221-230.YamasakiJ., & HovickS. R. (2015). “That Was Grown Folks’ Business”: Narrative Reflection and Response in Older Adults’ Family Health History Communication. , 30(3), 221-230.10.1080/10410236.2013.837569Search in Google Scholar
Yoon, P. W., Scheuner, M. T., & Khoury, M. J. (2003). Research priorities for evaluating family history in the prevention of common chronic diseases. American journal of preventive medicine.YoonP. W.ScheunerM. T., & KhouryM. J. (2003). Research priorities for evaluating family history in the prevention of common chronic diseases. .10.1016/S0749-3797(02)00585-8Search in Google Scholar
Yoon, P., Scheuner, M. T., Gwinn, M., Khoury, M. J., & Jorgensen, C. (2004). Awareness of family health history as a risk factor for disease. Morbidity Mortality Weekly Report (MMWR), 53(44), 1044-1047.YoonP.ScheunerM. T.GwinnM.KhouryM. J., & JorgensenC. (2004). Awareness of family health history as a risk factor for disease. , 53(44), 1044-1047.Search in Google Scholar