This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.
Lambing A, Nichols CD, Munn JE, Anderson TL, Tortella BJ, Witkop ML. Patient, caregiver, and provider perceptions of pain and pain management in adolescents and young adults with bleeding disorders. Haemophilia 2017; 23: 852–60. doi: 10.1111/hae.13293.LambingANicholsCDMunnJEAndersonTLTortellaBJWitkopMLPatient, caregiver, and provider perceptions of pain and pain management in adolescents and young adults with bleeding disorders2017238526010.1111/hae.1329328806860Open DOISearch in Google Scholar
McLaughlin JM, Witkop ML, Lambing A, Anderson TL, Munn J, Tortella B. Better adherence to prescribed treatment regimen is related to less chronic pain among adolescents and young adults with moderate or severe haemophilia. Haemophilia 2014; 20: 506–12. doi: 10.1111/hae.12360.McLaughlinJMWitkopMLLambingAAndersonTLMunnJTortellaBBetter adherence to prescribed treatment regimen is related to less chronic pain among adolescents and young adults with moderate or severe haemophilia2014205061210.1111/hae.1236024517097Open DOISearch in Google Scholar
Young G, Tachdjian R, Baumann K, Panopoulos G. Comprehensive management of chronic pain in haemophilia. Haemophilia 2014; 20(2): 113–20. doi: 10.1111/hae.12349.YoungGTachdjianRBaumannKPanopoulosGComprehensive management of chronic pain in haemophilia20142021132010.1111/hae.1234924372731Open DOISearch in Google Scholar
International Association for the Study of Pain. IASP curriculum outline for pain in social work. 2018. Available from https://www.iasp-pain.org/Education/CurriculumDetail.aspx?ItemNumber=4956 (accessed 23 April 2020).International Association for the Study of Pain2018Available from https://www.iasp-pain.org/Education/CurriculumDetail.aspx?ItemNumber=4956 (accessed 23 April 2020)Search in Google Scholar
National Association of Social Work. NASW statement on integrative pain management for the Integrative Pain Care Policy Congress. September 8, 2017. Available from https://www.socialworkers.org/LinkClick.aspx?fileticket=uj5ApiqwXas%3d&portalid=0 (accessed 23 April 2020).National Association of Social WorkSeptember82017Available from https://www.socialworkers.org/LinkClick.aspx?fileticket=uj5ApiqwXas%3d&portalid=0 (accessed 23 April 2020)Search in Google Scholar
King J, Fletcher K, Tupper S, Brose K, Goodridge D. The current practice of social work in pain management: a scoping review on chronic disease. 2020. Manuscript submitted for publication.KingJFletcherKTupperSBroseKGoodridgeD2020Manuscript submitted for publication10.1080/00981389.2021.187831833487135Search in Google Scholar
Canadian Hemophilia Society. Bleeding disorders. Available from https://www.hemophilia.ca/bleeding-disorders/ (accessed 23 April 2020).Canadian Hemophilia SocietyAvailable from https://www.hemophilia.ca/bleeding-disorders/ (accessed 23 April 2020)Search in Google Scholar
Hemophilia Federation of America. Joint damage. Available from https://www.hemophiliafed.org/understanding-bleeding-disorders/complications/joint-damage/ (accessed 23 April 2020).Hemophilia Federation of AmericaAvailable from https://www.hemophiliafed.org/understanding-bleeding-disorders/complications/joint-damage/ (accessed 23 April 2020)Search in Google Scholar
Canadian Hemophilia Society. Joint damage. Available from https://www.hemophilia.ca/joint-damage/ (accessed 23 April 2020).Canadian Hemophilia SocietyAvailable from https://www.hemophilia.ca/joint-damage/ (accessed 23 April 2020)Search in Google Scholar
Ossipov MH, Dussor GO, Porreca F. Central modulation of pain. J Clin Invest 2010; 120(11): 3779–87. doi: 10.1172/JCI43766.OssipovMHDussorGOPorrecaFCentral modulation of pain20101201137798710.1172/JCI43766296499321041960Open DOISearch in Google Scholar
Staud R. The important role of CNS facilitation and inhibition for chronic pain. Int J Clin Rheumtol 2013; 8(6): 639–46. doi: 10.2217/ijr.13.57.StaudRThe important role of CNS facilitation and inhibition for chronic pain2013866394610.2217/ijr.13.57390439124489609Open DOISearch in Google Scholar
Kruger S, Hilberg T. Understanding the pain profile in patients with haemophilia: impaired descending pain inhibition as measured by conditioned pain modulation. Haemophilia 2020; 26(2): 236–42. doi: 10.1111/hae.13939.KrugerSHilbergTUnderstanding the pain profile in patients with haemophilia: impaired descending pain inhibition as measured by conditioned pain modulation20202622364210.1111/hae.1393932030862Open DOISearch in Google Scholar
Biro D. Is there such a thing as psychological pain and why it matters. Cult Med Psychiatry 2010; 34: 658–67. doi: 10.1007/s11013-010-9190-y.BiroDIs there such a thing as psychological pain and why it matters2010346586710.1007/s11013-010-9190-y295211220835887Open DOISearch in Google Scholar
MacDonald JE. A deconstructive turn in chronic pain treatment: a redefined role for social work. Health Soc Work 2000; 25(1): 51–8. doi: 10.1093/hsw/25.1.51.MacDonaldJEA deconstructive turn in chronic pain treatment: a redefined role for social work200025151810.1093/hsw/25.1.5110689603Open DOISearch in Google Scholar
Stensland M, Sanders S. “It has changed my whole life”: The systemic implications of chronic low back pain among older adults. J Gerontol Soc Work 2018; 61(2): 129–50. doi: 10.1080/01634372.2018.1427169.StenslandMSandersS“It has changed my whole life”: The systemic implications of chronic low back pain among older adults20186121295010.1080/01634372.2018.142716929336694Open DOISearch in Google Scholar
Aho H, Kauppila T, Haanpaa M. Patients referred from a multidisciplinary pain clinic to the social worker, their general health, pain condition, treatment and outcome. Scand J Pain 2010; 1(4): 220–6. doi: 10.1016/j.sjpain.2010.09.009.AhoHKauppilaTHaanpaaMPatients referred from a multidisciplinary pain clinic to the social worker, their general health, pain condition, treatment and outcome201014220610.1016/j.sjpain.2010.09.00929913994Open DOISearch in Google Scholar
McBee L, Westreich L, Likourezos A. A psychoeducational relaxation group for pain and stress management in the nursing home. J Soc Work Long Term Care 2004; 3(1): 15–28. doi: 10.1300/j181v03n01_03.McBeeLWestreichLLikourezosAA psychoeducational relaxation group for pain and stress management in the nursing home200431152810.1300/j181v03n01_03Open DOISearch in Google Scholar
Park J, Hirz CE, Manotas K, Hooyman N. Nonpharmacological pain management by ethnically diverse older adults with chronic pain: barriers and facilitators. J Gerontol Soc Work 2013; 56(6): 487–508. doi: 10.1080/01634372.2013.808725.ParkJHirzCEManotasKHooymanNNonpharmacological pain management by ethnically diverse older adults with chronic pain: barriers and facilitators201356648750810.1080/01634372.2013.80872523822640Open DOISearch in Google Scholar
Works T, Jones S, Grady J, Andemariam B. Traumatic exposure history as a risk factor for chronic pain in adult patients with sickle cell disease. Health Soc Work 2014; 41(1): 42–50. doi: 10.1093/hsw/hlv085.WorksTJonesSGradyJAndemariamBTraumatic exposure history as a risk factor for chronic pain in adult patients with sickle cell disease2014411425010.1093/hsw/hlv08526946885Open DOISearch in Google Scholar
Forsyth AL, Gregory M, Nugent D, et al. Haemophilia Experiences, Results and Opportunities (HERO) study: survey methodology and population demographics. Haemophilia 2013; 20(1): 44–51. doi: 10.1111/hae.12239.ForsythALGregoryMNugentDHaemophilia Experiences, Results and Opportunities (HERO) study: survey methodology and population demographics2013201445110.1111/hae.1223923902228Open DOISearch in Google Scholar
Witkop M, Lambing A, Divine G, Kachalsky E, Rushlow D, Dinnen J. A national study of pain in the bleeding disorders community: a description of haemophilia pain. Haemophilia 2012; 18(3): 115–9. doi: 10.1111/j.1365-2516.2011.02709.x.WitkopMLambingADivineGKachalskyERushlowDDinnenJA national study of pain in the bleeding disorders community: a description of haemophilia pain2012183115910.1111/j.1365-2516.2011.02709.x22171646Open DOISearch in Google Scholar
Canadian Hemophilia Society. CHS History. Available from https://www.hemophilia.ca/chs-history/ (accessed 23 April 2020).Canadian Hemophilia SocietyAvailable from https://www.hemophilia.ca/chs-history/ (accessed 23 April 2020)Search in Google Scholar
Canadian Hemophilia Society. Standards of practice. Available from https://www.hemophilia.ca/standards-of-practice/ (accessed 23 April 2020).Canadian Hemophilia SocietyAvailable from https://www.hemophilia.ca/standards-of-practice/ (accessed 23 April 2020)Search in Google Scholar
Turk DC, Audette J, Levy RM, MacKey SC, Stanos S. Assessment and treatment of psychosocial comorbidities in patients with neuropathic pain. Mayo Clin Proc 2010; 85(3): S42–50. doi: 10.4065/mcp.2009.0648.TurkDCAudetteJLevyRMMacKeySCStanosSAssessment and treatment of psychosocial comorbidities in patients with neuropathic pain2010853S425010.4065/mcp.2009.0648284401020194148Open DOISearch in Google Scholar
Hruschak V, Cochran G. Psychosocial and environmental factors in the prognosis of individuals with chronic pain and comorbid mental health. Soc Work Health Care 2017; 56(7): 573–87. doi: 10.1080/00981389.2017.1326074.HruschakVCochranGPsychosocial and environmental factors in the prognosis of individuals with chronic pain and comorbid mental health20175675738710.1080/00981389.2017.132607428594600Open DOISearch in Google Scholar
Duenas M, Ojeda B, Salazar A, Mico JA, Failde I. A review of chronic pain impact on patients, their social environment and the health care system. J Pain Res 2016; 9: 457–467. doi: 10.2147/JPR.S105892.DuenasMOjedaBSalazarAMicoJAFaildeIA review of chronic pain impact on patients, their social environment and the health care system2016945746710.2147/JPR.S105892493502727418853Open DOISearch in Google Scholar
Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2006; 3: 77–101. doi: 10.1191/1478088706pq063oa.BraunVClarkeVUsing thematic analysis in psychology200637710110.1191/1478088706pq063oaOpen DOISearch in Google Scholar
Braun V, Clarke V, Hayfield N, Terry G. Thematic analysis. In: Liamputtong P (ed.) Handbook of Research Methods in Health Social Sciences. Singapore: Springer, 2019: 843–860. doi: 10.1007/978-981-10-5251-4_103.BraunVClarkeVHayfieldNTerryGThematic analysisIn:LiamputtongP(ed.)SingaporeSpringer201984386010.1007/978-981-10-5251-4_103Open DOISearch in Google Scholar
Nowell LS, Norris JM, White DE, Moules NJ. Thematic analysis: striving to meet the trustworthiness criteria. Int J Qual Methods 2017; 16: 1–13. doi: 10.1177/1609406917733847.NowellLSNorrisJMWhiteDEMoulesNJThematic analysis: striving to meet the trustworthiness criteria20171611310.1177/1609406917733847Open DOISearch in Google Scholar
Haefeli M, Elfering A. Pain assessment. Eur Spine J 2006; 15: S17–S24. doi: 10.1007/s00586-005-1044-x.HaefeliMElferingAPain assessment200615S17S2410.1007/s00586-005-1044-x345454916320034Open DOISearch in Google Scholar
Fillingim RB, Loeser JD, Baron R, Edwards RR. Assessment of chronic pain: domains, methods and mechanisms. J Pain 2016; 17(9): T10–T20. doi: 10.1016/j.pain.2015.08.010.FillingimRBLoeserJDBaronREdwardsRRAssessment of chronic pain: domains, methods and mechanisms2016179T10T2010.1016/j.pain.2015.08.010Open DOISearch in Google Scholar
MacDonald JE. Anti-oppressive practices with chronic pain suffers. Soc Work Health Care 2008; 47(2): 135–56. doi: 10.1080/00981380801970285.MacDonaldJEAnti-oppressive practices with chronic pain suffers20084721355610.1080/0098138080197028518956505Open DOISearch in Google Scholar
Sieppert J. Attitudes toward and knowledge of chronic pain: a survey of medical social workers. Health Soc Work 1996; 21(2): 122–30. doi: 10.1093/hsw/21.2.122.SieppertJAttitudes toward and knowledge of chronic pain: a survey of medical social workers19962121223010.1093/hsw/21.2.1228722139Open DOISearch in Google Scholar
Browne T, Keefe RH, Ruth BJ, Cox H, Maramaldi P, Rishel C, et al. Advancing social work education for health impact. Am J Public Health 2017; 107(Suppl 3): S229–S235. doi: 10.2105/AJPH.2017.304054BrowneTKeefeRHRuthBJCoxHMaramaldiPRishelCAdvancing social work education for health impact2017107Suppl 3S229S23510.2105/AJPH.2017.304054573107429236540Open DOISearch in Google Scholar
Buckner TW, Durben N, Humphrey C, et al. Pain in the bleeding disorders community: patient and caregiver perspectives. Blood 2016; 128(22): 2591. doi: 10.1182/blood.V128.22.2591.2591.BucknerTWDurbenNHumphreyCPain in the bleeding disorders community: patient and caregiver perspectives201612822259110.1182/blood.V128.22.2591.2591Open DOISearch in Google Scholar