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Groleger K. Klinicne smernice za diagnostiko in spremljanje otrok s cerebralno paralizo v rehabilitaciji. Rehabilitacija 2014; 13(Suppl 1): 84-96.GrolegerK.Klinicne smernice za diagnostiko in spremljanje otrok s cerebralno paralizo v rehabilitacijiRehabilitacija201413Suppl 18496Search in Google Scholar
Rosenbaum P, Paneth N, Leviton A, Goldstein M, Bax M, Damiano D, et al. A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol Suppl 2007; 109: 8-14.RosenbaumPPanethNLevitonAGoldsteinMBaxMDamianoDet al.A report: the definition and classification of cerebral palsy April 2006Dev Med Child Neurol Suppl2007109814Search in Google Scholar
Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers. Surveillance of Cerebral Palsy in Europe (SCPE). Dev Med Child Neurol 2000; 42: 816-24.Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers. Surveillance of Cerebral Palsy in Europe (SCPE)Dev Med Child Neurol2000428162410.1017/S0012162200001511Search in Google Scholar
Colver A, Fairhurst C, Pharoah PO. Cerebral palsy. Lancet 2014; 383: 1240-9.ColverAFairhurstCPharoahPO.Cerebral palsyLancet20143831240910.1016/S0140-6736(13)61835-8Search in Google Scholar
Colver A, Rapp M, Eisemann N, Ehlinger V, Thyen U, Dickinson HO, et al. Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis. Lancet 2015; 385: 705-16.ColverARappMEisemannNEhlingerVThyenUDickinsonHOet al.Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysisLancet20153857051610.1016/S0140-6736(14)61229-0Search in Google Scholar
Shikako-Thomas K, Dahan-Oliel N, Shevell M, Law M, Birnbaum R, Rosenbaum P, et al. Play and be happy? Leisure participation and quality of life in school-aged children with cerebral palsy. Int J Pediatr 2012, ID 387280: 1-7.Shikako-ThomasKDahan-OlielNShevellMLawMBirnbaumRRosenbaumPet al.Play and be happy? Leisure participation and quality of life in school-aged children with cerebral palsyInt J Pediatr2012ID 3872801710.1155/2012/387280Search in Google Scholar
The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med 1995; 41: 1403-9.The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health OrganizationSoc Sci Med1995411403910.1016/0277-9536(95)00112-KSearch in Google Scholar
Gurkova E. Issues in the definitions of HRQoL. J Nurs Soc Stud Public Health Rehabilit 2011; 3-4: 190-7.GurkovaE.Issues in the definitions of HRQoLJ Nurs Soc Stud Public Health Rehabilit20113-41907Search in Google Scholar
Mc Manus V, Corcoran P, Perry IJ. Participation in everyday activities and quality of life in pre-teenage children living with cerebral palsy in South West Ireland. BMC Pediatr 2008; 8: 50.Mc ManusVCorcoranPPerryIJ.Participation in everyday activities and quality of life in pre-teenage children living with cerebral palsy in South West IrelandBMC Pediatr200885010.1186/1471-2431-8-50Search in Google Scholar
Dickinson HO, Parkinson KN, Ravens-Sieberer U, Schirripa G, Thyen U, Arnaud C, et al. Self-reported quality of life of 8-12-year-old children with cerebral palsy: a cross-sectional European study. Lancet 2007; 369: 2171-8.DickinsonHOParkinsonKNRavens-SiebererUSchirripaGThyenUArnaudCet al.Self-reported quality of life of 8-12-year-old children with cerebral palsy: a cross-sectional European studyLancet20073692171810.1016/S0140-6736(07)61013-7Search in Google Scholar
Boling S, Tarja V, Helena M, Wivi F, Ilona AR, Leena H. Measuring quality of life of Finnish children with cerebral palsy. J Pediatr Rehabilit Med 2013; 6: 121-7.BolingSTarjaVHelenaMWiviFIlonaARLeenaH.Measuring quality of life of Finnish children with cerebral palsyJ Pediatr Rehabilit Med20136121710.3233/PRM-13025224240833Search in Google Scholar
Fayed N, de Camargo OK, Kerr E, Rosenbaum P, Dubey A, Bostan C, et al. Generic patient-reported outcomes in child health research: a review of conceptual content using World Health Organization definitions. Dev Med Child Neurol 2012; 54: 1085-95.FayedNde CamargoOKKerrERosenbaumPDubeyABostanCet al.Generic patient-reported outcomes in child health research: a review of conceptual content using World Health Organization definitionsDev Med Child Neurol20125410859510.1111/j.1469-8749.2012.04393.x22913566Search in Google Scholar
Waters E, Davis E, Mackinnon A, Boyd R, Graham HK, Kai Lo S, et al. Psychometric properties of the quality of life questionnaire for children with CP. Dev Med Child Neurol 2007; 49: 49-55.WatersEDavisEMackinnonABoydRGrahamHKKai LoSet al.Psychometric properties of the quality of life questionnaire for children with CPDev Med Child Neurol200749495510.1017/S0012162207000126.xSearch in Google Scholar
Baars RM, Atherton CI, Koopman HM, Bullinger M, Power M. The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents. Health Qual Life Outcomes. 2005; 3: 70.BaarsRMAthertonCIKoopmanHMBullingerMPowerM.The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescentsHealth Qual Life Outcomes200537010.1186/1477-7525-3-70132622716283947Search in Google Scholar
Simeoni MC, Schmidt S, Muehlan H, Debensason D, Bullinger M. Field testing of a European quality of life instrument for children and adolescents with chronic conditions: the 37-item DISABKIDS Chronic Generic Module. Qual Life Res 2007; 16: 881-93.SimeoniMCSchmidtSMuehlanHDebensasonDBullingerM.Field testing of a European quality of life instrument for children and adolescents with chronic conditions: the 37-item DISABKIDS Chronic Generic ModuleQual Life Res2007168819310.1007/s11136-007-9188-217404899Search in Google Scholar
Fava L, Muehlan H, Bullinger M. Linking the DISABKIDS modules for health-related quality of life assessment with the International Classification of Functioning, Disability and Health (ICF). Disabil Rehabil 2009; 31: 1943-54.FavaLMuehlanHBullingerM.Linking the DISABKIDS modules for health-related quality of life assessment with the International Classification of Functioning, Disability and Health (ICF)Disabil Rehabil20093119435410.1080/0963828090287418819479567Search in Google Scholar
Schmidt S. The European DISABKIDS Group. The DISABKIDS Questionnaires: Quality of life Questionnaires for children with chronic conditions. Lengerich: Pabst Science Publishers, 2006.SchmidtS.The European DISABKIDS GroupThe DISABKIDS Questionnaires: Quality of life Questionnaires for children with chronic conditionsLengerichPabst Science Publishers2006Search in Google Scholar
Varni JW, Burwinkle TM, Sherman SA, Hanna K, Berrin SJ, Malcarne VL, et al. Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the children. Dev Med Child Neurol 2005; 47: 592-7.VarniJWBurwinkleTMShermanSAHannaKBerrinSJMalcarneVLet al.Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the childrenDev Med Child Neurol200547592710.1111/j.1469-8749.2005.tb01209.xSearch in Google Scholar
Radsel A, Jekovec M. The new cerebral palsy register. Slov Pediatr 2014; 21(Suppl 1): 128.RadselAJekovecM.The new cerebral palsy registerSlov Pediatr201421Suppl 1128Search in Google Scholar
Davis E, Shelly A, Waters E, Mackinnon A, Reddihough D, Boyd R, et al. Quality of life of adolescents with cerebral palsy: perspectives of adolescents and parents. Dev Med Child Neurol 2009; 51: 193-9.DavisEShellyAWatersEMackinnonAReddihoughDBoydRet al.Quality of life of adolescents with cerebral palsy: perspectives of adolescents and parentsDev Med Child Neurol200951193910.1111/j.1469-8749.2008.03194.x19191833Search in Google Scholar
Fauconnier J, Dickinson HO, Beckung E, Marcelli M, McManus V, Michelsen SI, et al. Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study. BMJ 2009; 338: b1458.FauconnierJDickinsonHOBeckungEMarcelliMMcManusVMichelsenSIet al.Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European studyBMJ2009338b145810.1136/bmj.b1458267334319395424Search in Google Scholar
Gates P, Otsuka N, Sanders J, McGee-Brown J. Functioning and health-related quality of life of adolescents with cerebral palsy: self versus parent perspectives. Dev Med Child Neurol 2010; 52: 843-9.GatesPOtsukaNSandersJMcGee-BrownJ.Functioning and health-related quality of life of adolescents with cerebral palsy: self versus parent perspectivesDev Med Child Neurol201052843910.1111/j.1469-8749.2010.03666.x20477836Search in Google Scholar
Oeffinger D, Gorton G, Bagley A, Nicholson D, Barnes D, Calmes J, et al. Outcome assessments in children with cerebral palsy, part I: descriptive characteristics of GMFCS Levels I to III. Dev Med Child Neurol 2007; 49: 172-80.OeffingerDGortonGBagleyANicholsonDBarnesDCalmesJet al.Outcome assessments in children with cerebral palsy, part I: descriptive characteristics of GMFCS Levels I to IIIDev Med Child Neurol2007491728010.1111/j.1469-8749.2007.00172.x17355472Search in Google Scholar
Rosenbaum P. Family and quality of life: key elements in intervention in children with cerebral palsy. Dev Med Child Neurol 2011; 53(Suppl 4): 68-70.RosenbaumP.Family and quality of life: key elements in intervention in children with cerebral palsyDev Med Child Neurol201153Suppl 4687010.1111/j.1469-8749.2011.04068.x21950398Search in Google Scholar
