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<p><italic>Sundhed.dk</italic> is Denmark's national eHealth platform allowing citizens to access their personal health data. Based on 16 qualitative interviews with patients, our aim in this article is to examine how patients engage with their health data. First, we illustrate how patients struggle in different ways to make sense of numerical measurements and written notes. Second, we examine the platform as a communicative space and suggest that a new “medical-domestic” space arises in which medical data is interpreted and negotiated at home. Third, we investigate how health data affects patients’ experiences of being involved as equal partners and how access to data potentially enhances patient empowerment, but also how expectations are sometimes unfulfilled. In conclusion, we argue for a broader public dialogue in order to make sure that the data provided actually creates an optimal starting point and does not foster insecurity or self-doubt on the patient's side.</p>
</abstract>

Sundhed.dk is Denmark's national eHealth platform allowing citizens to access their personal health data. Based on 16 qualitative interviews with patients, our aim in this article is to examine how patients engage with their health data. First, we illustrate how patients struggle in different ways to make sense of numerical measurements and written notes. Second, we examine the platform as a communicative space and suggest that a new “medical-domestic” space arises in which medical data is interpreted and negotiated at home. Third, we investigate how health data affects patients’ experiences of being involved as equal partners and how access to data potentially enhances patient empowerment, but also how expectations are sometimes unfulfilled. In conclusion, we argue for a broader public dialogue in order to make sure that the data provided actually creates an optimal starting point and does not foster insecurity or self-doubt on the patient's side.

eHealth platforms as user–data communication: Examining patients’ struggles with digital health data

Department of Communication and Arts Roskilde University

Nordicom Review

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

Sundhed.dk is Denmark's national eHealth platform allowing citizens to access their personal health data. Based on 16 qualitative interviews with patients, our...

eHealth platforms as user–data communication: Examining patients’ struggles with digital health data

Publié en ligne: 09 sept. 2021

Pages: 45 - 58

DOI: https://doi.org/10.2478/nor-2021-0040

Mots clés
eHealth, health data, sense-making, communication, struggles

© 2021 Martina Skrubbeltrang Mahnke et al., published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

eHealth platforms as user–data communication: Examining patients’ struggles with digital health data

Publié en ligne: 09 sept. 2021

Pages: 45 - 58

DOI: https://doi.org/10.2478/nor-2021-0040

Mots cléseHealth, health data, sense-making, communication, struggles

© 2021 Martina Skrubbeltrang Mahnke et al., published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

Mots clés
eHealth, health data, sense-making, communication, struggles