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Experience of exercise in people with severe haemophilia: A qualitative study

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1. Tagliaferri A. Awaiting evidence-based recommendations on prophylaxis in adult patients. Haemophilia 2010; 16: 955-6.10.1111/j.1365-2516.2010.02340.x20579114Open DOISearch in Google Scholar

2. UKHCDO. Bleeding disorder statistics for April 2014 to March 2015. A report from the National Haemophlia Database. 2015. Available from http://www.ukhcdo.org/wp-content/uploads/2016/02/Bleeding-Disorder-Statistics-for-April-2014-to-March-2015-v2-for-website.pdf (accessed 14 December 2016).Search in Google Scholar

3. Buzzard B. Physiotherapy, rehabilitation and sports in countries with limited replacement coagulation factor supply. Haemophilia 2007; 13: 44-6.10.1111/j.1365-2516.2007.01506.x17685924Search in Google Scholar

4. Hilberg T, Czepa D, Freialdenhoven D, Boettger MK. Joint pain in people with hemophilia depends on joint status. Pain 2011; 152: 2029-35.10.1016/j.pain.2011.04.03021616597Search in Google Scholar

5. WHO. Physical activity fact sheet. 2016. Available from www.who.int/mediacentre/factssheets/fs385/en/ (accessed 14 Decembe 2016).Search in Google Scholar

6. Sherlock E, O’Donnell J, White B, Blake C. Physical activity levels and participation in sport in Irish people with haemophilia. Haemophilia 2010; 16: e202-e9.10.1111/j.1365-2516.2009.02111.x19878332Open DOISearch in Google Scholar

7. Al-Sharif FA-G, Al-Jiffri OH, El-Kader SMA, Ashmawy EM. Impact of mild versus moderate intensity aerobic walking exercise training on markers of bone metabolism and hand grip strength in moderate hemophilia A patients. African Health Sciences 2014; 14: 11-6.10.4314/ahs.v14i1.3444906826060452Search in Google Scholar

8. Kempton C, Antoniucci D, Rodriguez-Merchan E. Bone health in persons with haemophilia. Haemophilia 2015; 21: 568-77.10.1111/hae.1273626172840Search in Google Scholar

9. Negrier C, Seuser A, Forsyth A, et al. The benefits of exercise for patients with haemophilia and recommendations for safe and effective physical activity. Haemophilia 2013; 19: 487-98.10.1111/hae.1211823534844Open DOISearch in Google Scholar

10. Hilberg T, Herbsleb M, Puta C, Gabriel H, Schramm W. Physical training increases isometric muscular strength and proprioceptive performance in haemophilic subjects. Haemophilia 2003; 9: 86-93.10.1046/j.1365-2516.2003.00679.x12558784Search in Google Scholar

11. Czepa D, Von Mackensen S, Hilberg T. Haemophilia & Exercise Project (HEP): subjective and objective physical performance in adult haemophilia patients - results of a cross-sectional study. Haemophilia 2012; 18: 80-5.10.1111/j.1365-2516.2011.02607.x21752158Search in Google Scholar

12. Groen W, Van der Net J, Bos K, et al. Joint health and functional ability in children with haemophilia who receive intensive replacement therapy. Haemophilia 2011; 17: 783-90.10.1111/j.1365-2516.2011.02606.x21790897Search in Google Scholar

13. González L, Peiro-Velert C, Devis-Devis J, et al. Comparison of physical activity and sedentary behaviours between young haemophilia A patients and healthy adolescents. Haemophilia 2011; 17: 676-82.10.1111/j.1365-2516.2010.02469.x21299746Open DOISearch in Google Scholar

14. Fearn M, Hill K, Williams S, et al. Balance dysfunction in adults with haemophilia. Haemophilia 2010; 16: 606-14.10.1111/j.1365-2516.2010.02200.x20331756Search in Google Scholar

15. Hill K, Fearn M, Williams S, et al. Effectiveness of a balance training home exercise programme for adults with haemophilia: a pilot study. Haemophilia 2010; 16: 162-9.10.1111/j.1365-2516.2009.02110.x19804383Open DOISearch in Google Scholar

16. Herbsleb M, Hilberg T. Maximal and submaximal endurance performance in adults with severe haemophilia. Haemophilia 2009; 15: 114-21.10.1111/j.1365-2516.2008.01860.x18713245Open DOISearch in Google Scholar

17. El-Sayed MS, Ali ZE-S, Ahmadizad S. Exercise and training effects on blood haemostasis in health and disease. Sports Med 2004; 34: 181-200.10.2165/00007256-200434030-0000414987127Open DOISearch in Google Scholar

18. Harris S, Boggio L. Exercise may decrease further destruction in the adult haemophilic joint. Haemophilia 2006; 12: 237-40.10.1111/j.1365-2516.2006.01214.x16643207Open DOISearch in Google Scholar

19. Koch B, Luban NL, Galioto FM, et al. Changes in coagulation parameters with exercise in patients with classic hemophilia. Am J Hematol 1984; 16: 227-33.10.1002/ajh.28301603046424436Open DOISearch in Google Scholar

20. Pelletier JR, Findley TW, Gemma SA. Isometric exercise for an individual with hemophilic arthropathy. Phys Ther 1987; 67: 1359-64.10.1093/ptj/67.9.13593628490Search in Google Scholar

21. Wittmeier K, Mulder K. Enhancing lifestyle for individuals with haemophilia through physical activity and exercise: the role of physiotherapy. Haemophilia 2007; 13: 31-7.10.1111/j.1365-2516.2007.01504.x17685922Search in Google Scholar

22. Blamey G, Forsyth A, Zourikian N, et al. Comprehensive elements of a physiotherapy exercise programme in haemophilia - a global perspective. Haemophilia 2010; 16: 136-45.10.1111/j.1365-2516.2010.02312.x20590873Open DOISearch in Google Scholar

23. Souza J, Simoes H, Campbell CG, et al. Haemophilia and exercise. Int J Sports Med 2012; 33: 83-8.10.1055/s-0031-1286292Search in Google Scholar

24. Smith JA, Osborn M. Interpretative Phenomenological Analysis. 2nd Ed Qualitative Psychology A practical guide to research methods. 2nd ed. London: SAGE Publications Ltd, 2003.Search in Google Scholar

25. Smith JA, Flowers P, Larkin M. Interpretative Phenomenological Analysis. Theory, Method and Research. London: SAGE Publications Ltd; 2009.Search in Google Scholar

26. Gomis M, Querol F, Gallach J, González L, Aznar J. Exercise and sport in the treatment of haemophilic patients: a systematic review. Haemophilia 2009; 15: 43-54.10.1111/j.1365-2516.2008.01867.xSearch in Google Scholar

27. Cassis FY, Querol F, Forsyth A, Iorio A. Psychosocial aspects of haemophilia: a systematic review of methodologies and findings. Haemophilia 2012; 18: e101-e14.10.1111/j.1365-2516.2011.02683.xOpen DOISearch in Google Scholar

28. Beeton K, Neal D, Lee C. An exploration of health-related quality of life in adults with haemophilia - a qualitative perspective. Haemophilia 2005; 11: 123-32.10.1111/j.1365-2516.2005.01077.xOpen DOISearch in Google Scholar

29. Barlow J, Stapley J, Ellard D, Gilchrist M. Information and selfmanagement needs of people living with bleeding disorders: a survey. Haemophilia 2007; 13: 264-70.10.1111/j.1365-2516.2007.01444.xOpen DOISearch in Google Scholar

30. Triemstra AH, Van der Ploeg HM, Smit C, et al. Well-being of haemophilia patients: a model for direct and indirect effects of medical parameters on the physical and psychosocial functioning. Soc Sci Med 1998; 47 (5): 581-93.10.1016/S0277-9536(98)00117-8Open DOISearch in Google Scholar

31. Fromme A, Dreeskamp K, Pollmann H, et al. Participation in sports and physical activity of haemophilia patients. Haemophilia 2007; 13: 323-7.10.1111/j.1365-2516.2007.01456.x17498083Search in Google Scholar

32. Schoenmakers MA, Gulmans VA, Helders PJ, van den Berg HM. Motor performance and disability in Dutch children with haemophilia: a comparison with their healthy peers. Haemophilia 2001 7 (3): 293-8.10.1046/j.1365-2516.2001.00504.x11380634Open DOISearch in Google Scholar

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