<abstract xmlns="http://www.w3.org/1999/xhtml"><p> The experience of living in a non-metropolitan area and parenting a child with haemophilia is relatively unknown. Using Interpretive Phenomenological Analysis (IPA), the following study explored the experiences of seven parents, from which four themes emerged: ‘bearing the brunt of diagnosis’ captures the impact of the diagnosis; ‘if you can’t help me, who can?’ reveals experiences with the health system; ‘tackling the challenge of treatment’ encompasses difficulties in adhering to the treatment regime; ‘I need you to understand’ reflects desires for others support and understanding. These themes should be considered when developing support systems and interventions for parents living in non-metropolitan areas.</p></abstract>

The experience of living in a non-metropolitan area and parenting a child with haemophilia is relatively unknown. Using Interpretive Phenomenological Analysis (IPA), the following study explored the experiences of seven parents, from which four themes emerged: ‘bearing the brunt of diagnosis’ captures the impact of the diagnosis; ‘if you can’t help me, who can?’ reveals experiences with the health system; ‘tackling the challenge of treatment’ encompasses difficulties in adhering to the treatment regime; ‘I need you to understand’ reflects desires for others support and understanding. These themes should be considered when developing support systems and interventions for parents living in non-metropolitan areas.

Parenting a child with haemophilia while living in a non-metropolitan area

The Journal of Haemophilia Practice

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 License.

{"article-title":"Parenting a child with haemophilia while living in a non-metropolitan area"}

The experience of living in a non-metropolitan area and parenting a child with haemophilia is relatively unknown. Using Interpretive Phenomenological Analysis...

Parenting a child with haemophilia while living in a non-metropolitan area

Publié en ligne: 22 mai 2018

Pages: 24 - 32

DOI: https://doi.org/10.17225/jhp00066

Mots clés
haemophilia, parents, interpretative phenomenological analysis

© 2018 Esben Strodl, published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 License.

Parenting a child with haemophilia while living in a non-metropolitan area

Publié en ligne: 22 mai 2018

Pages: 24 - 32

DOI: https://doi.org/10.17225/jhp00066

Mots cléshaemophilia, parents, interpretative phenomenological analysis

© 2018 Esben Strodl, published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 License.

Mots clés
haemophilia, parents, interpretative phenomenological analysis