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World Federation of Hemophilia. Report on the Annual Global Survey 2019. October 2020. Available from https://www1.wfh.org/publications/files/pdf-1806.pdf (accessed 23 August 2022).World Federation of HemophiliaReport on the Annual Global Survey 2019October2020Available from https://www1.wfh.org/publications/files/pdf-1806.pdf (accessed 23 August 2022).Search in Google Scholar
World Federation of Hemophilia. Report on the Annual Global Survey 2009. March 2011. Available from https://www1.wfh.org/publications/files/pdf-1428.pdf (accessed 23 August 2022).World Federation of HemophiliaReport on the Annual Global Survey 2009March2011Available from https://www1.wfh.org/publications/files/pdf-1428.pdf (accessed 23 August 2022).Search in Google Scholar
Noone D, Skouw-Rasmussen N, Lavin M, van Galen KPM, Kadir RA. Barriers and challenges faced by women with congenital bleeding disorders in Europe: Results of a patient survey conducted by the European Haemophilia Consortium. Haemophilia 2019; 25(3): 468–474. doi: 10.1111/hae.13722.NooneDSkouw-RasmussenNLavinMvan GalenKPMKadirRABarriers and challenges faced by women with congenital bleeding disorders in Europe: Results of a patient survey conducted by the European Haemophilia ConsortiumHaemophilia201925346847410.1111/hae.1372231034126Open DOISearch in Google Scholar
Di Michele DM, Gibb C, Lefkowitz JM, et al. Severe and moderate haemophilia A and B in US females. Haemophilia 2014; 20(2): e136–143. doi: 10.1111/hae.12364.Di MicheleDMGibbCLefkowitzJMSevere and moderate haemophilia A and B in US femalesHaemophilia2014202e13614310.1111/hae.1236424533955Open DOISearch in Google Scholar
Viprey M, Volot F, Falaise C, et al., on behalf of FranceCoag. Age at diagnosis is delayed in women/girls with haemophilia compared to men/boys: a FranceCoag report. Abstract MED-FP-031 (501). World Federation of Hemophlia Global Virtual Summit June 2020. Haemophilia 2020; 26(S4): 79. doi: 10.1111/hae.13941.VipreyMVolotFFalaiseCon behalf of FranceCoagAge at diagnosis is delayed in women/girls with haemophilia compared to men/boys: a FranceCoag report. Abstract MED-FP-031 (501). World Federation of Hemophlia Global Virtual Summit June 2020Haemophilia202026S47910.1111/hae.1394132478881Open DOISearch in Google Scholar
Arya S, Wilton P, Page D, et al. “They don’t really take my bleeds seriously”: Barriers to care for women with inherited bleeding disorders. J Thromb Haemost 2021; 19: 1506–1514. doi:10.1111/jth.15311.AryaSWiltonPPageD“They don’t really take my bleeds seriously”: Barriers to care for women with inherited bleeding disordersJ Thromb Haemost2021191506151410.1111/jth.1531133774912Open DOISearch in Google Scholar
Criado Perez C. Invisible Women: Exposing Data Bias in a World Designed for Men. 2019. London: Chatto & Windus.Criado PerezCInvisible Women: Exposing Data Bias in a World Designed for Men2019LondonChatto & WindusSearch in Google Scholar
Government of Ireland. Period Poverty in Ireland. Discussion Paper. Period Poverty Sub-Committee, National Strategy for Women and Girls, 2017–2020. February 2021. Available from https://www.gov.ie/en/publication/264f4-period-poverty-in-ireland-discussion-paper-period-poverty-sub-committee-national-strategy-for-women-and-girls-20172020-february-2021/ (accessed 23 August 2022).Government of IrelandPeriod Poverty in Ireland. Discussion Paper. Period Poverty Sub-Committee, National Strategy for Women and Girls, 2017–2020February2021Available from https://www.gov.ie/en/publication/264f4-period-poverty-in-ireland-discussion-paper-period-poverty-sub-committee-national-strategy-for-women-and-girls-20172020-february-2021/ (accessed 23 August 2022).Search in Google Scholar
Citla-Sridhar D, Sidonio RF Jr, Ahuja SP. Bone health in haemophilia carriers and persons with von Willebrand disease: A large database analysis. Haemophilia 2022 Apr 13. doi: 10.1111/hae.14565. Online ahead of printCitla-SridharDSidonioRFJrAhujaSPBone health in haemophilia carriers and persons with von Willebrand disease: A large database analysisHaemophilia2022Apr1310.1111/hae.14565Online ahead of print35416396Open DOISearch in Google Scholar
Canadian Hemophilia Society. CBDR – Canadian Bleeding Disorder Registry. MyCBDR. Available from https://www.hemophilia.ca/mycbdr/ (accessed 23 August 2022).Canadian Hemophilia SocietyCBDR – Canadian Bleeding Disorder RegistryMyCBDRAvailable from https://www.hemophilia.ca/mycbdr/ (accessed 23 August 2022).Search in Google Scholar
Doncarli A, Demiguel V, Guseva Canu I, et al. FranceCoag: a 22-year prospective follow-up of the national French cohort of patients with inherited bleeding disorders. Eur J Epidemiol 2019; 34: 521–532. doi: 10.1007/s10654-018-0468-7.DoncarliADemiguelVGuseva CanuIFranceCoag: a 22-year prospective follow-up of the national French cohort of patients with inherited bleeding disordersEur J Epidemiol20193452153210.1007/s10654-018-0468-730515664Open DOISearch in Google Scholar
Renault NK, Howell RE, Robinson KS, Greer WL. Qualitative assessment of the emotional and behavioural responses of haemophilia A carriers to negative experiences in their medical care. Haemophilia 2011; 17(2): 237–45. doi: 10.1111/j.1365-2516.2010.02424.x.RenaultNKHowellRERobinsonKSGreerWLQualitative assessment of the emotional and behavioural responses of haemophilia A carriers to negative experiences in their medical careHaemophilia20111722374510.1111/j.1365-2516.2010.02424.x21118331Open DOISearch in Google Scholar
O’Mahony B. Electronic health records – the patient perspective. Abstract SPK026. Speaker Abstracts – Virtual Congress of the European Association for Haemophilia and Allied Disorders 2021, 3–5 February 2021. Haemophilia 2021; 27(S2): 13. doi: 10.1111/hae.14237.O’MahonyBElectronic health records – the patient perspective. Abstract SPK026. Speaker Abstracts – Virtual Congress of the European Association for Haemophilia and Allied Disorders 2021, 3–5 February 2021Haemophilia202127S21310.1111/hae.1423733528848Open DOISearch in Google Scholar
Chai-Adisaksopha C, Noone D, Curtis R, et al. Non-severe haemophilia: Is it benign? – Insights from the PROBE study. Haemophilia 2021; 27 Suppl 1: 17–24. doi: 10.1111/hae.14105.Chai-AdisaksophaCNooneDCurtisRNon-severe haemophilia: Is it benign? – Insights from the PROBE studyHaemophilia202127Suppl 1172410.1111/hae.1410532870546Open DOISearch in Google Scholar