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Perceptions of Pakistani community towards their mental health problems: a systematic review

   | 21 may 2020

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j.gp-2020-0001.tab.001.w2aab3b7c11b1b6b1ab1b3b3b2Aa

AuthorYear of publicationCountry of studyStudy designSample sizeSample demographics Gender: Age Method of recruitment/sampling:Type of instrument/method usedTitle and findings
Choudhry et al.2013PakistanFocused group7Gender: 4 males 3 femalesAge: 24 to 42 yearsMethod: Homogenous purposive samplingFocused group followed by interpretative phenomenological analysis“Perception of mental health in Pakistani nomads: an interpretative phenomenological analysis.”Four themes about perception of mental illness are derived:

denial of illness altogether,

description of mental health as medical or spiritual problems,

causation of mental illness due to unfulfilled needs mainly inadequate education and lack of opportunity for spiritual activities, and

psychological disturbances that emanate from lack of sharing, that is, rich don’t share with poor and with self-downing, that is, what can we do, it's all circumstantial.

Choudhry et al.2018PakistanIn depth interviews.12Gender: 5 males 7 femalesAge: 18 to 26 yearsMethod of sampling: Snowball samplingIn depth interviews Interpretative phenomenological analysis (IPA)“Mental health conceptualisation and resilience factors in Kalasha youth: An indigenous ethnic and religious minority community in Pakistan”Three superordinate themes were identified each with emergent themes. They are:

psychological resilience/cultural protective Factors buffering against mental health problems (intra-communal bonding and sharing; Kalasha festivals and traditions; purity concept; behavioural practice of happiness and cognitive patterns),

perceived causes of mental health issues (biological & psychosocial; supernatural and spiritual; environmental), and

preferred interventions [Shamanic treatment; Ta’awiz (Amulets); communal sharing and problem solving; medical treatment; herbal methods].

Cinnirella et al.1999EnglandOpen-ended interview54Gender: All femalesMethod of sampling: Sampling procedure was a mix of quota, convenience and snowball techniques with all participants being female volunteers.Age: Not provided in paperOpen ended (in depth) interview followed by qualitative thematic analysis“Religious and ethnic group influences on beliefs about mental illness: A qualitative interview study.”

Beliefs about depression and schizophrenia were seen to be ambiguous, contradictory, and subject to confirmation through personal experience rather than tested via falsification.

Religious affiliation intertwines with ethnic origin or results in some important differences in the beliefs prevalent in different ethnic and religious communities in Britain.

In terms of religion, Muslim participants in particular felt that religion did have an impact on their choice of strategies for dealing with depression.

Participants indicated a fear of community stigma associated with mental illness or even to the act of seeking help, that impacts the actual coping strategies and help-seeking behaviours.

In terms of help-seeking behaviours, a tendency for members of ethnic/religious communities to prefer consultations with professionals of the same ethnic background was noted.

Fear of being misunderstood due to ignorance of cultural and religious practices, intertwines in a complex fashion with a fear of being the target of racism.

Croot et al.2008UKIn-depth interviews16Gender: 4 males 12 femalesMethod of sampling: Purposive samplingAge: Not provided in paper, but all participants are parents whilst one was a grandparentIn-depth interviews followed by thematic analysis of data“Perceptions of the causes of childhood disability among Pakistani families living in the UK.”Following perceptions and causes of childhood disability among Pakistani families living in the UK were identified:

Theological reasons for disability included gift from God, test from God, chosen parents, punishment, curse and so on.

There could be more than one reason for disability including biomedical reasons, individual responsibility or catching disability.

There is a relationship between theological and biomedical belief that results in the development of stigma.

Gunasinghe et al.2018UKSemi-structured Interview6Gender: All femalesMethod of sampling: Purposive samplingAge: 24 to 40 yearsSix semi structured interviews followed by IPT“Understanding how izzat impacts the lived experiences of young Muslim Pakistani women in the UK: A phenomenological approach”How ‘Izzat’ impacts the lived experience of young Pakistani women living in the UK three themes are identified:

The rules of izzat need to be abided by women.

Participants need to be negotiating tensions considering izzat, to enable them to self-manage or seek help. Even for those possible life experiences that might lead to self-harm and attempted suicide.

Participants need to be speaking out/breaking the ‘rules’ specially attached to izzat. The rules appear to vary over the life course and are influenced by migration.

Gilbert et al.2004UKFocused groupsNot givenGender: All femalesMethod of sampling: Purposive samplingAge: Three groups done mean age in each is 20, 32 and 57 years old.Three focused groups with different age groups, followed by thematic analysis“A focus group exploration of the impact of izzat, shame, subordination and entrapment on mental health and service use in South Asian women living in Derby.”The key themes to emerge were that

Mental health is linked to each of the themes of izzat, shame, subordination and entrapment.

Various themes were linked to mental health; such as having to meet obligations, feeling a failure in roles, and lacking support.

Some participants felt that it would be better to commit suicide than to leave an abusive relationship, to protect izzat.

Hussain et al.2017PakistanQuestionnaire based data collection100Gender:45 males55 femalesAge: 18 to 65 yearsMethod of sampling: Not described in paperFour questionnaires; a socio-demographic questionnaire, the Illness Perception Questionnaire for Schizophrenia (IPQ-S), Drug attitude Inventory-10 (DAI) and Multidimensional Scale of Perceived Social Support (PSS) completed by all participants“Illness perceptions in patients of schizophrenia: A preliminary investigation from Lahore, Pakistan.”

With regards causation of illness stress, family problems, lack of friends & financial worries were endorsed strongly by patients as cause of their mental illness.

Ambiguity regarding their mental illness duration and personal control was observed.

Patients’ perceived significant negative consequences, negative emotional response, as well as had poor understanding of their mental illness and treatment effectiveness.

Imran et al.2015PakistanQuestionnaire based data collection52Gender: 67% females and 33% malesAge: Mean age 12.7 years (Range 11 to 18 years)Method of sampling: Not mentionedInterviews using a structured questionnaire including the Illness Perceptions Questionnaire-Revised (IPQ-R).“Illness perceptions in adolescents with a psychiatric diagnosis in Pakistan.”Exploring the illness perceptions in adolescents with a psychiatric diagnosis in Pakistan revealed following:

It was noticed that males had significantly higher scores on timeline and emotional representation, suggesting strongly held beliefs about chronicity of their illness and anger and worry about their condition.

Adolescents’ own emotional state, stress, family problems and bad luck were endorsed by participants as some of the causal factors in their mental illness.

James et al.2002Pakistan and IndiaTwo separate interviews three months apart948Gender: Male 12.7% standard care, 28.6% integrated care Female 87.3% standard care, 71.4% integrated careAge: 16 to 60 yearsMethod of sampling: Purposive random selection

A range of measures were administered via face to face study at entry into the study and again three months later

Symptoms of depression and anxiety, quality of life, disability and service utilisation were recorded.

Individual's contact with primary health care providers, indigenous practitioners or healers and hospital services were recorded,

Personal perceptions of providers recorded along with issues affecting access to services and attitudes towards mental health.

“Demand for, access to and use of community mental health care: lessons from a demonstration project in India and Pakistan.”Following were noted:

Individual's use of integrated mental health and other care was modest. Principal (self-rated) supply-side factors were the cost of care, distance from treatment centre, a perception that care would not be effective and concerns regarding stigma.

Perceptions improved over three months, accompanied by an increased preference for public over private providers. but this was not restricted to the integrated care localities.

The use (and therefore, effectiveness) of mental health services integrated into primary care is influenced by the health-seeking behaviours and perceptions of the local population.

Mirza et al.2006PakistanSemi-structured questionnaire157Gender: Male n = 62 (mean age 36.56 years)Female n = 88 (mean age 39.25 years)Age: Mean 38.14 years (median 35, Mode 35)Method of recruitment: Purposive sampling1. A semi-structured questionnaire was devised and administered.2. Later, participants were seen and diagnosed by a psychiatrist to confirm diagnosis of mental illness.“Primary mental health care in rural Punjab, Pakistan: Providers, and user perspectives of the effectiveness of treatments.”Aim was to

describe the types of mental health care providers in rural Punjab, Pakistan,

appreciate patients’ perception of the different types of treatments used, and

find out about their effectiveness.

Following types of health care providers were identified:

General practitioner (GP)

Religious Healer (Maulvi, Peer, Fakir)

Hakim (A form of Unani/Greek medicine)

Homeopathic Doctors

Faith healers (Amil, Sinyasi)

All were using a range of physical, spiritual and psychotherapeutic treatments. Of these, patients found GP treatments most effective.
Naeem et al.2007PakistanIn depth interview9Gender: 3 males 6 femalesAge: 18 to 60 yearsMethod of recruitment: Purposive SamplingInterviews lasting between 30 and 60 minutes“Views of depressed patients in Pakistan concerning their illness, its causes, and treatments.”

The authors discovered that patients had very little knowledge of mental illnesses in general, and depression in particular.

They believed that mental health problems were the result of stress or trauma, and that only medicines could help them.

Patients had no knowledge of the roles of psychologists or psychotherapy.

Their model of understanding mental illnesses appeared to represent a psychosocial understanding, with physical symptoms being their main concern.

Saeed et al.2000PakistanScreening at faith healers’ practice, followed by conducting GHQ-12 on all attenders144Gender: 192 (64%) females and 106 (36%) malesAge: Not givenMethod of recruitment: Purposive sampling

PAS interview

The work of faith healers was observed and recorded.

The mental status of attenders was assessed using a two-stage design: screening using the General Health Questionnaire followed by diagnostic interview using the Psychiatric Assessment Schedule

“The prevalence, classification and treatment of mental disorders among attenders of native faith healers in rural Pakistan.”

The researchers found that the classification used by faith healers is based on the mystic cause of disorders: saya (27%), jinn possession (16%) or churail (14%).

Sixty one percent of attenders were given a research diagnosis of mental disorder: major depressive episode (24%), generalized anxiety disorder (15%) or epilepsy (9%).

There was little agreement between the faith healers’ classification and DSM-IIIR diagnosis.

Faith healers use powerful techniques of suggestion and cultural psychotherapeutic procedures.

Shah et al.2018PakistanSome quantitative data followed by Cross sectional in-depth semi-structured interviews50Gender: 26 males 24 femalesAge: Mean age 36.2 yearsMethod of recruitment: Purposive samplingPerceived public stigma scale and an in-depth semi-structured interviews were used“Impact of conventional beliefs and social stigma on attitude towards access to mental health services in Pakistan.”

The most significant finding on the Perceived Public Stigma Scale related to carers believing that people view receiving mental health treatment as a sign of personal failure.

Carers believed that people in the community would treat someone who has received mental health treatment just as they would treat anyone. Someone who has received mental health treatment is just as trustworthy as the average person. People would accept someone who has fully recovered from a mental illness as a teacher of young children in a public school.

In relation to patients, no socio-demographic factor including age, gender, or marital status or level of religious affiliation had a significant effect on the intensity of conventional beliefs towards mental health services (prior to or after attending). Similarly, with carers, no socio-demographic factors impacted on the intensity of conventional beliefs or attitudes towards their relative attending the mental health service

The majority (86%) of patients having significant symptoms of major mental illness had visited traditional healers prior to engagement with the mental health services.

Sheikh et al.2000Pakistan and UKCross sectional questionnaire-based survey287Gender: Pakistani 30 males, 47 femalesAge: 18 to 60 years 2 participants 60 years plus, exact age of those two is not givenMethod of recruitment: Convenience sampling by approaching individuals on two locations and suggesting engagementTwo questionnaires: The orientations to seeking professional help and the mental distress explanatory model questionnaire and in addition a demographic data sheet.“A cross cultural study of mental health beliefs and attitudes towards seeking professional help.”

Positive attitudes toward seeking professional help for psychological distress were similar for British Asians, Westerners and Pakistanis.

There were significant differences between the three groups in the causal attributions of mental distress. Culture, as a variable, was not a significant predictor of a positive attitude to seeking professional help.

Causal beliefs of mental distress were significant predictors of attitudes to seeking help for the British Asian and the Pakistani groups.

Beliefs were not significant predictors for seeking help for the Western group.

Culturally determined causal beliefs of mental distress contribute to attitudes towards seeking professional help for psychological problems for Asians.

Suhail et al.2019PakistanVignette based cross sectional survey1750Gender: 850 males 900 femalesAge: range 16 to 72 years, mean 34.03 yearsMethod of recruitment: The sampling was quasi random.

Participants were read a vignette describing symptoms of either psychosis or major depression.

Participants were requested to provide diagnosis, causes, prognosis, and possible treatments for the disorders

“A study investigating mental health literacy in Pakistan.”

Depression was four times more likely to be diagnosed than psychosis.

The type of disorder, education status and area of residence contributed significantly to one's ability to diagnose. More people believed that GPs, psychologists, and psychiatrists were the right people to consult for these problems.

Some participants considered Hakims and Homeopaths, Magical and Religious Healers as the appropriate people to contact.

Those recognizing mental disorders were more likely to identify the underlying causes, prognosis and appropriate treatment of the problems.

Tabassum et al.2000UKInterview as per interview schedule74Gender: 22 males 29 first generation females 23 second generation femalesAge: Median ages 47.6, 43.8 and 19.7 years, respectivelyMethod of recruitment: Purposive sampling.60 to 90 minutes long interviews consisting of a schedule comprising of 21 statements“Attitudes towards mental health in an urban Pakistani community in the United Kingdom.”

There were differences in the models of mental illness being employed with greater somatisation of symptoms in the Pakistani group and an emphasis on aggressive behaviour as a significant symptom.

Treatment expectations also varied with some emphasis on traditional Pakistani treatments such as Faith healers and Hakims as well as General Practitioners and hospital treatments.

Language difficulties, religious and cultural practices were also identified as barriers to female treatment in particular.

Tareen et al.2008PakistanTwo staged process: Screening through semi-structured questionnaire followed by consultation by psychiatrist of those that were screened positive98Gender:50 males 41 femalesAge: 10.93 years (SD 5.29) (male 11.10 vs. female 10.72)Method of recruitment: Purposive sampling

Questionnaire administered to a consecutive series of young persons and their families

Questionnaire reviewed by a psychiatrist of a grade of registrar who made a clinical diagnosis.

“Primary care treatment for child and adolescent neuropsychiatric conditions in remote rural Punjab, Pakistan – a cross-sectional survey.”

Various frontline healthcare providers included medically qualified practitioners, Homeopathic doctors and Hakims (Greek medicine, traditional herbal medicine), who had prescribed mainly physical treatments such as tablets, syrups, powders and pastes;

Religious and faith healers relied mainly on psychotherapeutic methods such as prayers or giving amulets. In a small minority of cases, physical beating was used as part of the treatment process.

The effectiveness of these treatments, as rated by the patients and their families, was variable, with highest reported effectiveness for general practitioner treatments.

Zafar et al.2009PakistanA structured questionnaire was employed985Gender: 536 males 449 femalesAge: average 36.7 yearsMethod of recruitment: Nonprobability convenience sample of adultsA cross-sectional study. A structured questionnaire was employed to survey the knowledge and perceptions of adult general public about psychotherapy.“Psychotherapy for treatment modality for psychiatric disorders: perceptions of general public of Karachi Pakistan.”

It was noted that the majority claimed to be aware of psychotherapy as a treatment option for psychiatric disorders but 47.5% of these failed to identify its correct definition.

Concerns voiced by the participants about psychotherapy included stigma and breech in confidentiality; 60.7% opined it cost effective and 86.5% favoured its use as an adjuvant modality.

A preference for psychotherapy as the treatment strategy for psychiatric disorders was demonstrated by 46.6%. Younger, more educated, financially independent and female participants were more likely to prefer psychotherapy as were those who deemed it cost effective.

Positive attitudes regarding the acceptability, clinical utility and cost-effectiveness of psychotherapy were observed in a sample representative of general public of Karachi, Pakistan.

Zafar et al.2008PakistanCross section survey, self-administered questionnaire404Gender:77% males 33% femalesAge: Mean age 31.4 yearsMethod of recruitment: Convenience samplingData was collected via a self-administered questionnaire. Questions were related to a vignette of a young man displaying schizophrenic behaviour“Perceptions about the cause of Schizophrenia and subsequent help seeking behaviour in Pakistani population-results of cross-sectional survey.”

Majority of participants were graduates and employed. Only 30% of the participants attributed ‘mental illness’ as the main cause of psychotic symptoms while a large number thought of ‘God's will’ (32.3%), ‘superstitious ideas’ (33.1%), ‘loneliness’ (24.8%) and ‘unemployment’ (19.3%) as the main cause.

Mental illness as the single most important cause was reported by only 22%.

With regards to management, only 40% reported psychiatric consultation to be the single most important management step.

Other responses regarding management included spiritual healing (19.5%) and Social changes (10.6), while 14.8% of respondents said that they would do nothing.

Gender, age, family system and education level were significantly associated with the beliefs about the cause of schizophrenia.

These variables plus ‘religious inclination’ and ‘beliefs about cause’ were significantly associated with the help seeking behaviour of the participants.

Despite majority of the study population being well educated, only a few recognized Schizophrenia as a mental illness and many held superstitious beliefs.

All studies judged against the following appraisal criteria for identification and appreciation of possible bias

Are following satisfied12345678910111213141516171819
1-Philosophical underpinnings clarified?That is, epistemological and ontological perspectiveNDNNLDNNNNLNNNNNNNN
2-Reasons provided for the choice of methodology and design?LDLLDDNNNNDLLALLNNN
3-Credibility (Internal Validity) justified?For example, having outside auditors or participants validate findings (member checks), peer debriefing, attention to negative cases, independent analysis of data by more than one researcher, verbatim quotes, persistent observationNDDDDDLLLLDLLLLALLL
4-Transferability (External validity or generalisability) justified?For example, providing details of the study participants to enable readers to evaluate for which target groups the study provides valuable information, providing contextual background information, demographics, the provision of thick description about both the sending and the receiving context and so onLDDAADLLLLDLLLLLLLL
5-Dependability (Reliability or consistency) justified?Peer review, debriefing, audit trails, triangulation in the context of the use of different methodological approaches to look at the topic of research, reflexivity to keep a self-critical account of the research process, calculation of inter-rater agreementsNDDAADNLLNDLLLLLLLL
6-Confirmability (Objectivity or neutrality) justified?Assessing the effects of the researcher during all the steps of the research process, reflexivity, providing background information on the researcher's background, education, perspective, school of thoughtLDDDLDLLLNDALDLNNNN