[
23andme (n.d.), [Home page]. Retrieved from https://www.23andme.com/en-gb/ [accessed 22 Mar 2022]
]Search in Google Scholar
[
Almeling, R. & Gadarian, S. (2014), ‘Public opinion on policy issues in genetics and genomics,’ Genetics in Medicine, vol. 16, no. 6, pp. 491–494. https://doi.org/10.1038/gim.2013.17524202084
]Search in Google Scholar
[
Ayala-Lopez, N. & Nichols, J. H. (2020), ‘Benefits and risks of direct-to-consumer testing,’ Archives of Pathology & Laboratory Medicine, vol. 144, no. 10, pp. 1193–1198. https://doi.org/10.5858/arpa.2020-0078-RA33002154
]Search in Google Scholar
[
Bloss, C. S.; Darst, B. F.; Topol, E. J. & Schork, N. J. (2011), ‘Direct-to-consumer personalized genomic testing,’ Human Molecular Genetics, vol. 20, no. R2, pp. R132–R141. https://doi.org/10.1093/hmg/ddr349317938321828075
]Search in Google Scholar
[
Botkin, J. R.; Belmont, J.; Berg, J. W.; Berkman, B. E.; Bombard, Y. et al. (2015), ‘Points to consider: Ethical, legal, and psychosocial implications of genetic testing in children and adolescents,’ The American Journal of Human Genetics, vol. 97, no. 1, pp. 6–21. https://doi.org/10.1016/j.ajhg.2015.05.022457099926140447
]Search in Google Scholar
[
Brédart, A.; Autier, P.; Riccardo, A.; Audisio, A. & Geraghty, J. (2001), ‘Psychosocial dimensions of BRCA testing: an overshadowed issue,’ European Journal of Cancer Care, vol. 10, no. 2, pp. 96–99. https://doi.org/10.1046/j.1365-2354.2001.00254.x11829055
]Search in Google Scholar
[
Broady, K. M.; Ormond, K. E.; Topol, E. J.; Schork, N. J. & Bloss, C. S. (2018), ‘Predictors of adverse psychological experiences surrounding genome-wide profiling for disease risk,’ Journal of Community Genetics, vol. 9, no. 3, pp. 217–225. https://doi.org/10.1007/s12687-017-0339-z600231029130150
]Search in Google Scholar
[
Centers for Disease Control and Prevention (n.d.), ‘Genetic testing: What you need to know.’ Retrieved from https://www.cdc.gov/genomics/gtesting/genetic_testing.htm [accessed 20 Mar 2022]
]Search in Google Scholar
[
Council of Europe (2012), Genetic Tests for Health Purposes. Retrieved from https://www.coe.int/t/dg3/healthbioethic/Activities/07_Human_genetics_en/Brochure/en_geneticTests_bd.pdf [accessed 20 Mar 2022]
]Search in Google Scholar
[
Eissenberg, J. (2017), ‘Direct-to-consumer genomics: Harmful or empowering? It is important to stress that genetic risk is not the same as genetic destiny,’ Missouri Medicine, vol. 114, no. 1, pp. 26–32.
]Search in Google Scholar
[
Ethics Unwrapped (n.d.), ‘Utilitarianism.’ Retrieved from https://ethicsunwrapped.utexas.edu/glossary/utilitarianism [accessed 22 Mar 2022]
]Search in Google Scholar
[
Federal Trade Commission (2006), ‘At-home genetic tests: A healthy dose of scepticism may be the best prescription.’ Retrieved from https://osp.od.nih.gov/wp-content/uploads/2013/11/DTC_Consumer_Alert_Jul06.pdf [accessed 22 Mar 2022]
]Search in Google Scholar
[
Foster, M. W. & Sharp, R. R. (2008), ‘The contractual genome: How direct-to-consumer genomic services may help patients take ownership of their DNA,’ Personalized Medicine, vol. 5, no. 4, pp. 399–404. https://doi.org/10.2217/17410541.5.4.399406170224955099
]Search in Google Scholar
[
Fulda, K. G. & Lykens, K. (2006), ‘Ethical issues in predictive genetic testing: A public health perspective,’ Journal of Medical Ethics, vol. 32, no. 3, pp. 143–147. https://doi.org/10.1136/jme.2004.010272256446616507657
]Search in Google Scholar
[
Grosse, S. D.; Kalman, L. & Khoury, M. J. (2010), ‘Evaluation of the validity and utility of genetic testing for rare diseases,’ Advances in Experimental Medicine and Biology, vol. 686, pp. 115–131. https://doi.org/10.1007/978-90-481-9485-8_820824443
]Search in Google Scholar
[
Gymrek, M.; McGuire, A.; Golan, D.; Halperin, E. & Erlich, Y. (2013), ‘Identifying personal genomes by surname inference,’ Science, vol. 339, no. 6117, pp. 321–324. https://doi.org/10.1126/science.122956623329047
]Search in Google Scholar
[
Hauskeller, C. (2011), ‘Direct to consumer genetic testing,’ BMJ, vol. 342, d2317. https://doi.org/10.1136/bmj.d231721511785
]Search in Google Scholar
[
Henneman, L.; Timmermans, D. R. M. & van der Wal, G. (2004), ‘Public experiences, knowledge and expectations about medical genetics and the use of genetic information,’ Public Health Genomics, vol. 7, no. 1, pp. 33–43. https://doi.org/10.1159/00008030215475669
]Search in Google Scholar
[
Howard, H. C. & Borry, P. (2009), ‘Personal genome testing: Do you know what you are buying?’ The American Journal of Bioethics, vol. 9, nos. 6–7, pp. 11–13. https://doi.org/10.1080/1526516090289400519998102
]Search in Google Scholar
[
Howard, H. C. & Borry, P. (2011), ‘Is there a doctor in the house?’ Journal of Community Genetics, vol. 3, no. 2, pp. 105–112. https://doi.org/10.1007/s12687-011-0062-0331294122109907
]Search in Google Scholar
[
Hsu, A. R.; Mountain, J. L.; Wojcicki, A. & Avey, L. (2009), ‘A pragmatic consideration of ethical issues relating to personal genomics,’ The American Journal of Bioethics, vol. 9, nos. 6–7, pp. 1–2. https://doi.org/10.1080/1526516090296679519998098
]Search in Google Scholar
[
Joamets, K. & Chochia, A. (2021), ‘Access to artificial intelligence for persons with disabilities: Legal and ethical questions concerning the application of trustworthy AI,’ Acta Baltica Historiae et Philosophiae Scientiarum, vol. 9, no. 1, pp. 51–66. https://doi.org/10.11590/abhps.2021.1.04
]Search in Google Scholar
[
Joh, E. E. (2011), ‘Ethics watch: DNA theft: your genetic information at risk,’ Nature Reviews Genetics, vol. 12, no. 12, p. 808. https://doi.org/10.1038/nrg311322025003
]Search in Google Scholar
[
Jonsen, A. R.; Durfy, S. J.; Burke, W. & Motulsky, A. G. (1996), ‘The advent of the ‘unpatients’,’ Nature Medicine, vol. 2, pp. 622–624. https://doi.org/10.1038/nm0696-6228640544
]Search in Google Scholar
[
Kalokairinou, L.; Howard, H. C.; Slokenberga, S.; Fisher, E. et al. (2018), ‘Legislation of direct-to-consumer genetic testing in Europe: A fragmented regulatory landscape,’ Journal of Community Genetics, vol. 9, pp. 117–132. https://doi.org/10.1007/s12687-017-0344-2584970429150824
]Search in Google Scholar
[
Laestadius, L. I.; Rich, J. & Auer, P. (2017), ‘All your data (effectively) belong to us: Data practices among direct-to-consumer genetic testing firms,’ Genetics in Medicine, vol. 19, no. 5, pp. 513–520. https://doi.org/10.1038/gim.2016.13627657678
]Search in Google Scholar
[
Malpas, P. J. (2008), ‘Predictive genetic testing of children for adult-onset diseases and psychological harm,’ Journal of Medical Ethics, vol. 34, no. 4, pp. 275–278. https://doi.org/10.1136/jme.2006.01980218375680
]Search in Google Scholar
[
Peterson, S. K. (2005), ‘The role of the family in genetic testing: Theoretical perspectives, current knowledge, and future directions,’ Health Education & Behaviour, vol. 32, no. 5, pp. 627–639. https://doi.org/10.1177/109019810527875116148209
]Search in Google Scholar
[
Selk, A. (2018), ‘The ingenious and ‘dystopian’ DNA technique police used to hunt the ‘Golden State Killer’ suspect,’ Washington Post, 28 April. Retrieved from https://www.washingtonpost.com/news/true-crime/wp/2018/04/27/golden-state-killer-dna-website-gedmatch-was-used-to-identify-joseph-deangelo-as-suspect-police-say/ [accessed 22 Mar 2022]
]Search in Google Scholar
[
Stoeklé, H.-C.; Mamzer-Bruneel, M.-F.; Vogt, G. & Hervé, C. (2016), ‘23andMe: A new two-sided data-banking market model,’ BMC Medical Ethics, vol. 17, no. 19. https://doi.org/10.1186/s12910-016-0101-9482652227059184
]Search in Google Scholar
[
Su, P. (2013), ‘Direct-to-consumer genetic testing: a comprehensive view,’ Yale Journal of Biology and Medicine, vol. 86, no. 3, pp. 359–365.
]Search in Google Scholar
[
Wasson, K.; Sanders, T. N.; Hogan, N. S.; Cherny, S. & Helzlsouer, K. J. (2013), ‘Primary care patients’ views and decisions about, experience of and reactions to direct-to-consumer genetic testing: a longitudinal study,’ Journal of Community Genetics, vol. 4, no. 4, pp. 495–505. https://doi.org/10.1007/s12687-013-0156-y377331223832288
]Search in Google Scholar