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The development of a patient-reported outcome tool for pain, specific to people with bleeding disorders, could help facilitate the pain assessment and discussion of treatment options in bleeding disorder clinics.
The development of a patient-reported outcome tool for pain, specific to people with bleeding disorders, could help facilitate the pain assessment and discussion of treatment options in bleeding disorder clinics.

Figure 1

Iterative PTPQ development process
Iterative PTPQ development process

Figure 2

Body locations of pain identified on PTPQ (% of total sample)
Body locations of pain identified on PTPQ (% of total sample)

Participants reporting activity limitations or mood interference within CPGS clusters

CPGS CATEGORYSIG. *
NO PAIN/LOW DISABILITY (CPGS 0–2)HIGH DISABILITY (CPGS 3–4)
Activity limitations from painNo232p=0.081
Yes105
Mood interference from painNo211p=0.041
Yes146

Pain characteristics identified on PTPQ (sample n=42 unless otherwise specified)

CHARACTERISTICSAMPLE MEANS (SD) OR PROPORTIONS
Current pain (0–10)2.3 (2.0)
Lowest pain in past 30 days (0–10)1.5 (1.8)
Worst pain in past 30 days (0–10)5.3 (2.8)
Usual pain in past 30 days (0–10)2.4 (2.0)
Number of pain descriptive words3.9 (3.1)
Pain typically worse during certain time of day (% “yes”) n=4153.7 %
Pain interference with activities (% “yes”) n=4037.5 %
Pain interference with mood (% “yes”)47.6 %
Use pharmaceutical treatments (% selecting at least one treatment)85.7 %
Use psychological treatments (% selecting at least one treatment)47.6 %
Use preventative treatments (% selecting at least one treatment)69.0 %
Use physical treatments (% selecting at least one treatment)69.0 %
Achieve recommended weekly exercise levels (% of total reporting 150+ minutes/week of any cardiovascular exercise)19.0 %

Clinical feasibility study participant characteristics (n=42)

CHARACTERISTICN (%)
Male26 (61.9)
Female16 (38.1)
Diagnosis
VWD18 (42.9)
Haemophilia A17 (40.5)
Haemophilia B7 (16.7)
Chronic Pain Grade Scale
Grade 0 = Pain Free1 (2.4)
Grade 1 = Low disability, low intensity27 (64.3)
Grade 2 = Low disability, high intensity7 (16.7)
Grade 3 = High disability, moderately limiting3 (7.1)
Grade 4 = High disability, severely limiting4 (9.5)
eISSN:
2055-3390
Idioma:
Inglés
Calendario de la edición:
Volume Open
Temas de la revista:
Medicine, Basic Medical Science, other, Clinical Medicine, Pharmacy, Pharmacology