P1 | 20 | Severe A | 15 | Yes | Yes | Prophylaxis | 5 | "I didn't really like having other people doing my treatment" | Yes | Good (but relies on regularity of dosing every other day) |
P2 | 21 | Severe B | 18 | No | No | Prophylaxis | 6 | School trip; seen alone at clinic since age 16 | Yes | Mostly good |
P3 | 18 | Severe A | 16/17 | No | No | Prophylaxis | 9 | School trip | Yes | Mostly good |
P4 | 17 | Severe A | 17 | No | No | Prophylaxis | 11 | | Yes | Good |
P5 | 19 | Mild A | 18 | Yes | Yes | On demand | - | - | Poor | N/A |
P6 | 21 | Mild A | 17/18 | Yes | Yes | On demand | - | Seen alone at clinic since age 16 | Yes | N/A |
P7 | 21 | Mild A | 16 | Yes | Yes | On demand | - | - | On demand | N/A |
P8 | 19 | Severe A | 16 | Yes | Yes | Prophylaxis | 8 (port) | Seen alone at clinic since age 14 | Yes | Good |
P9 | 21 | Mild vWD | 15 | No | No | TXA | - | - | Yes | On demand |
P10 | 21 | vWD | 18 | No | No | OCP and TXA | Infused by clinic nurse | - | Poor | Relies on mother |
P11 | 20 | Severe vWD | 18 | Yes | Yes | TXA | 9, taught by her nurse | Encouraged by nurse | Good | On demand |
P12 | 20 | Severe vWD 2A | 14 | No | No | TXA on demand | Infused by clinic nurse | - | Poor | Relies on mother |
P13 | 19 | Mild vWD | 17 | No | No | OCP and TXA | N/A | - | Reasonable | N/A |