Mothers’ Voices on Autism Spectrum Disorder: Leaning Towards Sustainable Inclusive Education in Maragusan, Philippines

Adhabi, E., & Anozie, C. (2017). Literature review for the type of interview in qualitative research. International Journal of Education, 9(3), 86–97. doi: 10.5296/ije.v9i3.11483 Open DOISearch in Google Scholar

Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., & Dowling, N. F. (2018). Prevalence of autism spectrum disorder among children aged 8 years – autism and developmental disabilities monitoring network, 11 sites, United States 2014. Morbidity and mortality weekly report. Surveillance Summaries, 67(6), 1–23. doi: 10.15585/mmwr.ss6706a1 Open DOISearch in Google Scholar

Bandura, A. (1998). Health promotion from the perspective of social cognitive theory. Psychology & Health, 13(4), 623–649. doi: 10.1080/08870449808407422 Open DOISearch in Google Scholar

Bearss, K., Johnson, C., Smith, T., Lecavalier, L., Sweezy, N., Aman, M., & Scahill, L. (2015). Effect of parent training vs. parent education on behavioral problems in children with autism spectrum disorder: A randomized clinical trial. Journal of the American Medical Association, 313(15), 1524–1533. doi: 10.1001/jama.2015.3150 Open DOISearch in Google Scholar

Begum, R., & Mamin, F. A. (2019). Impact of autism spectrum disorder on family. Autism Open Access, 9(244), 1–6. doi: 10.35248/2165-7890.19.09.244 Open DOISearch in Google Scholar

Berhane, H. (2016). Reactions, challenges and coping mechanisms of mothers raising children with autism spectrum disorder (ASD): The case of Addis Ababa City (Master’s dissertation, Ababa University). http://etd.aau.edu.et/handle/123456789/11036 Search in Google Scholar

Brei, N. (2014). Parenting stress in parents of children with autism spectrum symptomatology (Master’s dissertation, University of Wisconsin Milwaukee). https://dc.uwm.edu/etd/667 Search in Google Scholar

Bölte, S. (2014). Is autism curable? Developmental Medicine and Child Neurology, 56(10), 927–31. doi: 10.1111/dmcn.12495 Open DOISearch in Google Scholar

Case-Smith, J., & Arbersman, M. (2008). Evidence-based review of interventions for autism used in or of relevance to occupational therapy. American Journal of Occupational Therapy, 62(4), 416–429. doi: 10.5014/ajot.62.4.416 Open DOISearch in Google Scholar

Creswell, J. W. (2014). Educational research: Planning, conducting, and evaluating quantitative and qualitative research (5^th Ed.). Boston, MA: Pearson. Search in Google Scholar

Durkin, M. et al. (2017). Autism spectrum disorder among US children (2002–2010): Socioeconomic, racial, and ethnic disparities. American Journal of Public Health, 107(11), 1818–1826. Search in Google Scholar

Ekas, N., Lickenbrock, D., & Whitman, T. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(10), 1274–1284. doi: 10.1007/s10803-010-0986-y Open DOISearch in Google Scholar

Estes, A., Swain, D. M., & MacDuffie, K. E. (2019). The effects of early autism intervention on parents and family adaptive functioning. Pediatric Medicine, 2(21), 1–14. doi: 10.21037/pm.2019.05.05 Open DOISearch in Google Scholar

Gosztyła, T. (2015). Marriage satisfaction of parents of children with autism. Introductory exploration of the problem among Polish married couples rearing children with autism. Wokol Kultury Fides et Ratio, 4(24), 228–247. Search in Google Scholar

Gurung, P. (2021). The indigenous world 2021: Indigenous persons with disabilities global network. https://www.iwgia.org/en/indigenous-persons-with-disabilities-global-network-ipwdgn/4269-iw-2021-indigenous-persons-with-disabilities-global-network-ipwdgn.html#_ftn6 Search in Google Scholar

Harper, A., Dyches, T. T., Harper, J., Roper, S. O., & South, M. (2013). Respite care, marital quality, and stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(11), 2604–2616. doi: 10.1007/s10803-013-1812-0 Open DOISearch in Google Scholar

Heasly, B., & Iliško, Dz. (2022). Editorial: Towards a more regenerative and resilient post-pandemic world. Discourse and Communication for Sustainable Education, 13(2), 1–4. https://doi.org/10.2478/dcse-2022-0013 Search in Google Scholar

Howell, E., Littin, S., & Blacher, J. (2015). Family impact of children with autism and Asperger Syndrome: A case for attention and intervention. Austin Journal of Autism & Related Disabilities, 1(2), 1–9. doi: 10.35248/2165-7890.19.09.244 Open DOISearch in Google Scholar

Huinker, H. (2012). The experiences of individuals with a sibling diagnosed with an autism spectrum disorder (Master’s dissertation, St. Catherine University). https://sophia.stkate.edu/msw_papers/40 Search in Google Scholar

Iadarola, S., Pérez-Ramos, J., Smith, T., & Dozier, A. (2019). Understanding stress in parents of children with autism spectrum disorder: A focus on under-represented families. International Journal Developmental Disabilities, 65(1), 20–30. doi: 10.1080/20473869.2017.1347228 Open DOISearch in Google Scholar

Jaymalin, M. (2014, April 10). Number of people with autism increasing. The Philippine Star. https://www.philstar.com/headlines/2014/04/10/1310840/ Search in Google Scholar

Johnson, B., & Christensen, L. (2014). Educational research: Quantitative, qualitative, and mixed approaches (5^th Ed.). Sage Publishing. Search in Google Scholar

Kalia, B. (2020). The role of family dynamics in receiving autism and neurodevelopmental services: A needs assessment (Master’s dissertation, University of San Francisco). https://repository.usfca.edu/capstone/1092 Search in Google Scholar

Krakovich, T. M., McGrew, J. H., Yu, Y., & Ruble, L. A. (2016). Stress in parents of children with autism spectrum disorder: An exploration of demands and resources. Journal of Autism and Developmental Disorders, 46(6), 2042–2053. doi: 10.1007/s10803-016-2728-2 Open DOISearch in Google Scholar

Lapeña, C. (2011, November 10). A dream village for Filipino adults with autism. http://www.gmanetwork.com/news/news/specialreports/238063/a-dream-village-for-filipino-adults-with-autism/story/ Search in Google Scholar

Limikid, B. (2002). The Mansaka. National Commission for Culture and the Arts. http://ncca.gov.ph/subcommissions/subcommission-on-cultural-communitiesand-traditional-arts-sccta/central-cultural-communities/the-mansaka/ Search in Google Scholar

Lindly, O. J., Chavez, A. E., & Zuckerman, K. E. (2016). Unmet health services needs among children with developmental disabilities. Journal of Developmental & Behavioral Pediatrics, 37(9), 712–723. doi: 10.1097/DBP.0000000000000363 Open DOISearch in Google Scholar

Loepp, M.S. (2015). Stress-related growth of parents raising children with autism (Master’s dissertation, University of Windsor), Canada. https://scholar.uwindsor.ca/etd/5315 Search in Google Scholar

Ludlow, A., Skelly, C., & Rohleder, P. (2012). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17(5), 702–711. doi: 10.1177/1359105311422955 Open DOISearch in Google Scholar

Maenner, M. J., Shaw, K. A., Bakian, A. V., Bilder, D. A., Durkin, M. S., Esler, A., & Cogswell, M. E. (2021). Prevalence and characteristics of autism spectrum disorder among children aged 8 years. Autism and developmental disabilities monitoring network. 11 MMWR Surveillance Summary, 70(11), 1–16. doi: http://dx.doi.org/10.15585/mmwr.ss7011a Search in Google Scholar

Mann, A. (2013). The experiences of mothers of children with autism in Jamaica: An exploratory study of their journey (Doctoral dissertation, University of South Florida). https://digitalcommons.usf.edu/etd/4722/ Search in Google Scholar

Marfil, J. (2014, September 10). Fieldwork report on the Mansaka of Davao. https://www.hawaii.edu/cps/fieldwork-report-on-the-mansaka-of-davao/ Search in Google Scholar

Mason, D., McConachie, H., Garland, D., Petrou, A., Rodgers, J., & Parr, J. R. (2018). Predictors of quality of life for autistic adults. Autism Research, 11(8), 1138–1147. doi: 10.1002/aur.1965 Open DOISearch in Google Scholar

Mthimunye, B. S. (2014). The knowledge and experiences of single mothers raising an autistic child in a low-income community in the Western Cape (Master’s dissertation, University of Western Cape). http://hdl.handle.net/11394/4182 Search in Google Scholar

Morrow, R., Rodriguez, A., & King, N. (2015). Colaizzi’s descriptive phenomenological method. The Psychologist, 28(8), 643–644. Search in Google Scholar

Nascati, V. (2017). How having a child with special needs affects family functioning in families of different types (Master’s Thesis, Rowan University). https://rdw.rowan.edu/etd/2401 Search in Google Scholar

National People with Disabilities and Carer Council. (2012). Shut out: The experience of people with disabilities and their families in Australia. Australia: National Disability Strategy Consultation Report. Can Print Communications Press (pp. 22–28). https://www.dss.gov.au/sites/default/files/documents/03_2022/shut-out-standard.pdf Search in Google Scholar

O’Nions, E., Happe, F., Evers, K., Boonen, H., & Noens, I. (2018). How do parents manage irritability, challenging behavior, non-compliance, and anxiety in children with autism spectrum disorders? A meta-synthesis. Journal of Autism and Developmental Disorders, 48(4), 1272–1286. doi: 10.1007/s10803-017-3361-4 Open DOISearch in Google Scholar

Papadopoulos, D. (2021). Mothers’ experiences and challenges raising a child with autism spectrum disorder: A qualitative study. Brain Science, 2, 11(3), 309–325. https://doi.org/10.3390/brainsci11030309 Search in Google Scholar

Patton, M. (2001). Qualitative research and evaluation methods (2nd Ed.). Thousand oaks, Sage Publications. Search in Google Scholar

Peck, J. (2012). Parents’ and practitioners’ perceptions of supports, interventions, and the home visiting process used in early intervention (Doctoral dissertation, Iowa State University). doi: 10.31274/ETD-180810-752 Open DOISearch in Google Scholar

Petrongolo, M. (2014). Stress in mothers of newly diagnosed children with autism spectrum disorders: Barriers to care, use of support services, and child behavior (Doctoral dissertations, Philadelphia College of Osteopathic Medicine). https://digitalcommons.pcom.edu/psychology_dissertations/300 Search in Google Scholar

Rao, P. A., & Beidel, D. C. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437–451. https://doi.org/10.1177/0145445509336427 Search in Google Scholar

Rivas-Velarde, M. (2015). Indigenous persons with disabilities: Access to training and employment. Discussion Paper. https://www.ilo.org/wcmsp5/groups/public/—ed_emp/ifp_skills/documents/publication/wcms_396412.pdf Search in Google Scholar

Rohwerder, B. (2015). Disability inclusion: Topic guide. UK: GSDRC, University of Birmingham. https://gsdrc.org/wp-content/uploads/2015/11/DisabilityInclusion.pdf Search in Google Scholar

Roth, B. M., Karlovic, S., Roizen, N. J., Spannagel, S. C., Minich, N., & Knapp, J. (2016). Impact of autism navigator on access to services. Journal of Developmental & Behavioral Pediatrics, 37(3), 188–195. doi: 10.1097/DBP.0000000000000261 Open DOISearch in Google Scholar

Safe, A., Joosten, A., & Molineux, M. (2012). The experiences of mothers of children with autism: Managing multiple roles. Journal of Intellectual and Developmental Disability, 37(4), 294–302. doi: 10.3109/13668250.2012.736614 Open DOISearch in Google Scholar

Sanders, C. (2003). Application of Colaizzi’s method: Interpretation of an auditable decision trail by a novice researcher. Contemporary Nurse Journal, 14, 292–302. https://doi.org/10.5172/conu.14.3.292 Search in Google Scholar

Sarris, M. (2019). Stress and the autism parent. Interactive Autism Network. https://iancommunity.org/ssc/stress-and-autism-parent Search in Google Scholar

Smart, L. (2016). Parenting self-efficacy in parents of children with autism spectrum disorders (Doctoral dissertation, Brigham Young University). https://scholarsarchive.byu.edu/etd/5842 Search in Google Scholar

Tadesse, A. (2014). Families living with a child diagnosed with autism: Challenges and coping mechanisms (Master’s dissertation, Addis Ababa University). https://www.semanticscholar.org/paper/Families-Living-With-a-Child-Diagnosed-With-Autism%3A-Tadesse/20b33b98a50386dcee5f731dff6ed59d667a3f26 Search in Google Scholar

Thomson, L. (2016). The bigger picture: Piecing together the experiences of family members living with high-functioning children with autism spectrum disorder (Master’s dissertation, Wilfrid Laurier University). https://scholars.wlu.ca/etd/1831 Search in Google Scholar

United Nations. (n.d.). Disability and the media: Promoting an accurate image and enhancing the voice of persons with disabilities in the media. Department of Economic and Social Affairs Disability. https://www.un.org/development/desa/disabilities/resources/disability-and-the-media Search in Google Scholar

United Nations. (2020). Policy Guidelines for Inclusive Sustainable Development Goals: Quality Education. Office of the United Nations High Commissioner for Human Rights. https://www.ohchr.org/sites/default/files/Documents/Issues/Disability/SDG-CRPD-Resource/policy-guideline-sdg4-education.pdf Search in Google Scholar

Van der Cruijsen, R., & Boyer, B. E. (2021). Explicit and implicit self-esteem in youth with autism spectrum disorders. Autism, 25(2), 349–360. Search in Google Scholar

Weiss, J., Wingsiong, A., & Lunsky, Y. (2014). Defining crisis in families of individuals with autism spectrum disorders. Autism, 18(8), 985–995. doi: 10.1177/1362361313508024 Open DOISearch in Google Scholar