<abstract xmlns="http://www.w3.org/1999/xhtml"><sec id="j_sjcapp-2019-012_s_001"><h3>Background:</h3><p>ADHD causes impairment in several life contexts and may increase stress and burden of care amongst family members. There is a lack of studies regarding gender inequalities in burden sharing in families of individuals with ADHD.</p></sec><sec id="j_sjcapp-2019-012_s_002"><h3>Objective:</h3><p>The aim of this study was to investigate gendered burden sharing in families who were in contact with an ADHD telephone helpline in Sweden. A further aim was to identify perceived difficulties that prompted contact with the helpline.</p></sec><sec id="j_sjcapp-2019-012_s_003"><h3>Methods:</h3><p>During a period of 28 months (from January 2013 to April 2015), calls were consecutively registered by psychologists manning the helpline through an anonymous digital form. After exclusion of 60 incomplete forms out of 1,410 (4%), information on 1,350 calls was analysed.</p></sec><sec id="j_sjcapp-2019-012_s_004"><h3>Results:</h3><p>The analysis indicated that mothers (82.7% of all callers) had a more important role as information-coordinators for children or adolescents with ADHD, as compared to fathers (13%) or other callers (4.3%). This pattern was also observed among the calls regarding young adults with ADHD. Helpline calls primarily concerned entitlement to academic support (57.9% of calls concerning children or adolescents) and healthcare services (80.6% of calls concerning young adults and adults).</p></sec><sec id="j_sjcapp-2019-012_s_005"><h3>Conclusion:</h3><p>The study concludes that a perceived lack of accessibility to and/or coordination of the school and health care services may be a major stressor for parents of individuals with ADHD. The burden of care through coordination of services and information-seeking may be especially increased in mothers of children, adolescents, and young adults with ADHD.</p></sec></abstract>

Background:ADHD causes impairment in several life contexts and may increase stress and burden of care amongst family members. There is a lack of studies regarding gender inequalities in burden sharing in families of individuals with ADHD.Objective:The aim of this study was to investigate gendered burden sharing in families who were in contact with an ADHD telephone helpline in Sweden. A further aim was to identify perceived difficulties that prompted contact with the helpline.Methods:During a period of 28 months (from January 2013 to April 2015), calls were consecutively registered by psychologists manning the helpline through an anonymous digital form. After exclusion of 60 incomplete forms out of 1,410 (4%), information on 1,350 calls was analysed.Results:The analysis indicated that mothers (82.7% of all callers) had a more important role as information-coordinators for children or adolescents with ADHD, as compared to fathers (13%) or other callers (4.3%). This pattern was also observed among the calls regarding young adults with ADHD. Helpline calls primarily concerned entitlement to academic support (57.9% of calls concerning children or adolescents) and healthcare services (80.6% of calls concerning young adults and adults).Conclusion:The study concludes that a perceived lack of accessibility to and/or coordination of the school and health care services may be a major stressor for parents of individuals with ADHD. The burden of care through coordination of services and information-seeking may be especially increased in mothers of children, adolescents, and young adults with ADHD.

Burden sharing in families to children, adolescents and young adults with ADHD: Analysis of ADHD Helpline in Swedish Clinical Services

Scandinavian Journal of Child and Adolescent Psychiatry and Psychology

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

Background:ADHD causes impairment in several life contexts and may increase stress and burden of care amongst family members. There is a lack of studies...

Caller’s relationship with the person concerned
Call concerned	n(% of totaln, i.e., 1,350)	Female relative (% of each age group)	Male relative (% of each age group)	Professional (% of each age group)	Patient himself/herself (% of each age group)
Child (age 0-12 years)	698 (51.7%)	600 (86%)	87 (12.5%)	11 (1.6%)	na
Adolescent (age 13-17 years)	466 (34.5%)	394 (84.5%)	61 (13.1%)	11 (2.4%)	na
Young adult (age 18-25 years)	153 (11.3%)	106 (69.3%)	21 (13.7%)	6 (3.9%)	20 (13.1%)
Adult (age ≥ 26 years)	33 (2.4%)	17 (51.5%)	6 (18.2%)	3 (9.1%)	7 (21.2%)

Burden sharing in families to children, adolescents and young adults with ADHD: Analysis of ADHD Helpline in Swedish Clinical Services

Online veröffentlicht: 12. Dez. 2019

Seitenbereich: 88 - 91

DOI: https://doi.org/10.21307/sjcapp-2019-012

Schlüsselwörter
ADHD services, care pathways, coordinator, case management, parental stress

© 2019 Elina Renhorn et al., published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

FIGURE 1.

FIGURE 2.

Age of person concerned in call and role of caller

Burden sharing in families to children, adolescents and young adults with ADHD: Analysis of ADHD Helpline in Swedish Clinical Services

Online veröffentlicht: 12. Dez. 2019

Seitenbereich: 88 - 91

DOI: https://doi.org/10.21307/sjcapp-2019-012

SchlüsselwörterADHD services, care pathways, coordinator, case management, parental stress

© 2019 Elina Renhorn et al., published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

FIGURE 1.

FIGURE 2.

Age of person concerned in call and role of caller

Schlüsselwörter
ADHD services, care pathways, coordinator, case management, parental stress