This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.
World Federation of Hemophilia. Report on the Annual Global Survey 2017. October 2018. Available from http://www1.wfh.org/publications/files/pdf-1714.pdf (accessed 20 June 2019).World Federation of Hemophilia. Report on the Annual Global Survey 20172018Available fromhttp://www1.wfh.org/publications/files/pdf-1714.pdfaccessed 20 June 2019Search in Google Scholar
Bevan JA, Maloney KW, Hillery CA, et al Bleeding disorders: A common cause of menorrhagia in adolescents. J Pediatr 2001; 138: 856-61.BevanJAMaloneyKWHilleryCAet alBleeding disorders: A common cause of menorrhagia in adolescentsJ Pediatr20011388566110.1067/mpd.2001.11304211391329Search in Google Scholar
Batorova A, Jankovicova D, Prigancova T, et al Abstract 32FP03: Management of surgery in congenital factor VII deficiency. In: Abstracts of the XXIXth International Congress of the World Federation of Hemophilia, Buenos Aires, Argentina, 10-14 July 2010. Haemophilia 2010; 16 (Suppl 4): 1-158. doi: 10.1111/j.1365-2516.2010.02283.x.BatorovaAJankovicovaDPrigancovaTet alAbstract 32FP03: Management of surgery in congenital factor VII deficiencyIn: Abstracts of the XXIXth International Congress of the World Federation of Hemophilia, Buenos Aires, Argentina, 10-14 July 2010. Haemophilia201016Suppl 4115810.1111/j.1365-2516.2010.02283.x10.1111/j.1365-2516.2010.02283.x20561349Search in Google Scholar
Miesbach W, Berntorp E. Von Willebrand disease – the 'Dos' and 'Don'ts' in surgery. Eur J Haematol 2017 98: 121-27. doi: 10.1111/ejh.12809.MiesbachWBerntorpEVon Willebrand disease – the 'Dos' and 'Don'ts' in surgeryEur J Haematol 2017981212710.1111/ejh.1280927622750Open DOISearch in Google Scholar
White G. Current treatment guidelines – experience from the USA. In: Berntorp E, Peake I, Budde U, et al Von Willebrand's disease: a report from a meeting in the Åland islands. Haemophilia 2012; 18 Suppl 6: 1-13. doi: 10.1111/j.1365-2516.2012.02925.x.WhiteGCurrent treatment guidelines – experience from the USABerntorpEPeakeIBuddeUet alVon Willebrand's disease: a report from a meeting in the Åland islands. Haemophilia201218 Suppl611310.1111/j.1365-2516.2012.02925.x417087622906074Open DOISearch in Google Scholar
Tuohy E, Litt E, Alikhan R. Treatment of patients with von Willebrand disease. J Blood Med 2011; 2: 49-57. doi: 10.2147/ JBM.S9890.TuohyELittEAlikhanRTreatment of patients with von Willebrand diseaseJ Blood Med20112495710.2147/JBM.S9890326235322287863Open DOISearch in Google Scholar
Curnow J, Pasalic L, Favaloro EJ. Treatment of von Willebrand disease. Semin Thromb Hemost 2016; 42: 133-46. doi: 10.1055/s-0035-1569070.CurnowJPasalicLFavaloroEJTreatment of von Willebrand diseaseSemin Thromb Hemost2016421334610.1055/s-0035-156907026838696Open DOISearch in Google Scholar
Bátorová A, Martinowitz U. Continuous infusion of coagulation factors. Haemophilia 2002; 8: 170-77.BátorováAMartinowitzUContinuous infusion of coagulation factorsHaemophilia200281707710.1046/j.1365-2516.2002.00635.x12010406Search in Google Scholar
Kadir RA, Economides DL, Sabin CA, et al Variations in coagulation factors in women: effects of age, ethnicity, menstrual cycle and combined oral contraceptive. Thromb Haemost 1999; 82: 1456-61.KadirRAEconomidesDLSabinCAet alVariations in coagulation factors in women: effects of age, ethnicity, menstrual cycle and combined oral contraceptiveThromb Haemost19998214566110.1055/s-0037-1614855Search in Google Scholar
Bottini E, Pareti FI, Mari D, et al Prevention of hemoperitoneum during ovulation by oral contraceptives in women with type III von Willebrand disease and afibrinogenemia. Case reports. Haematologica 1991; 76: 431-3.BottiniEParetiFIMariDet alPrevention of hemoperitoneum during ovulation by oral contraceptives in women with type III von Willebrand disease and afibrinogenemia. Case reportsHaematologica1991764313Search in Google Scholar
Meschengieser SS, Alberto MF, Salviú J, et al Recurrent haemoperitoneum in a mild von Willebrand's disease combined with a storage pool deficit. Blood Coagul Fibrinolysis 2001; 12: 207-9.MeschengieserSSAlbertoMFSalviúJet alRecurrent haemoperitoneum in a mild von Willebrand's disease combined with a storage pool deficitBlood Coagul Fibrinolysis200112207910.1097/00001721-200104000-0000711414635Search in Google Scholar
Payne JH, Maclean RM, Hampton KK, et al Haemoperitoneum associated with ovulation in women with bleeding disorders: the case for conservative management and the role of the contraceptive pill. Haemophilia 2007; 13: 93-7.PayneJHMacleanRMHamptonKKet alHaemoperitoneum associated with ovulation in women with bleeding disorders: the case for conservative management and the role of the contraceptive pillHaemophilia20071393710.1111/j.1365-2516.2006.01399.x17212732Search in Google Scholar
Girolami A, Lombardi AM, Candeo N, et al Control of ovulation-induced hemoperitoneum by oral contraceptives in a patient with congenital hypoprothrombinemia and in another with congenital factor V deficiency. Acta Haematol 2008; 119: 236-40. doi: 10.1159/000141782.GirolamiALombardiAMCandeoNet alControl of ovulation-induced hemoperitoneum by oral contraceptives in a patient with congenital hypoprothrombinemia and in another with congenital factor V deficiencyActa Haematol20081192364010.1159/000141782Open DOISearch in Google Scholar
Cetinkaya SE, Pabuccu EG, Ozmen B, Dokmeci F. Recurrent massive hemoperitoneum due to ovulation as a clinical sign in congenital afibrinogenemia. Acta Obstet Gynecol Scand 2011; 90: 192-4. doi: 10.1111/j.1600-0412.2010.01034.x.CetinkayaSEPabuccuEGOzmenBDokmeciFRecurrent massive hemoperitoneum due to ovulation as a clinical sign in congenital afibrinogenemiaActa Obstet Gynecol Scand201190192410.1111/j.1600-0412.2010.01034.xOpen DOISearch in Google Scholar
Buyukasik Y, Boyraz G, Selcuk I, et al Giant abdominopelvic haematoma arising from ovulation in a Glanzmann's thrombasthenia patient with platelet refractoriness: treatment with surgery and intra-abdominal tranexamic acid. Acta Haematol 2012; 128: 154-7. doi: 10.1159/000339085.BuyukasikYBoyrazGSelcukIet alGiant abdominopelvic haematoma arising from ovulation in a Glanzmann's thrombasthenia patient with platelet refractoriness: treatment with surgery and intra-abdominal tranexamic acidActa Haematol2012128154710.1159/000339085Open DOISearch in Google Scholar
Terzic M, Likic I, Pilic I, et al Conservative management of massive hematoperitoneum caused by ovulation in a patient with severe form of von Willebrand disease – a case report. Clin Exp Obstet Gynecol 2012; 39 :537-40.TerzicMLikicIPilicIet alConservative management of massive hematoperitoneum caused by ovulation in a patient with severe form of von Willebrand disease – a case reportClin Exp Obstet Gynecol20123953740Search in Google Scholar
Özdemir Ö, Sarı ME, Kurt A, et al Recurrent massive haemoperitoneum associated with ruptured corpus luteum in women with congenital afibrinogenemia; case report. Turk J Obstet Gynecol 2014; 11: 242-45. doi: 10.4274/tjod.04935.ÖzdemirÖSarıMEKurtAet alRecurrent massive haemoperitoneum associated with ruptured corpus luteum in women with congenital afibrinogenemia; case reportTurk J Obstet Gynecol2014112424510.4274/tjod.04935Open DOISearch in Google Scholar
Davies J, Kadir RA. Heavy menstrual bleeding: An update on management. Thromb Res 2017; 151 Suppl 1: S70-S77. doi: 10.1016/S0049-3848(17)30072-5.DaviesJKadirRAHeavy menstrual bleeding: An update on managementThromb Res2017151 Suppl1S70S7710.1016/S0049-3848(17)30072-5Open DOISearch in Google Scholar
Smith H. Menorrhagia. S Afr Pharm J 2013; 80: 16–8.SmithHMenorrhagiaS Afr Pharm J201380168Search in Google Scholar
James AH, Kouides PA, Abdul-Kadir R, et al Von Willebrand disease and other bleeding disorders in women: consensus on diagnosis and management from an international expert panel. Am J Obstet Gynecol 2009; 201: 12.e1-8. doi: 10.1016/j.ajog.2009.04.024.JamesAHKouidesPAAbdul-KadirRet alVon Willebrand disease and other bleeding disorders in women: consensus on diagnosis and management from an international expert panelAm J Obstet Gynecol200920112e1-810.1016/j.ajog.2009.04.02419481722Open DOISearch in Google Scholar
Borel-Derlon A, Goudemand J, Desprez D, et al Wish-Qol Study - Assessment of health-related quality of life (HRQoL) and health-economic aspects in patients with von Willebrand disease (VWD) in France: results of the women cohort. Blood 2016 128: 1395.Borel-DerlonAGoudemandJDesprezDet alWish-Qol Study - Assessment of health-related quality of life (HRQoL) and health-economic aspects in patients with von Willebrand disease (VWD) in France: results of the women cohortBlood2016128139510.1182/blood.V128.22.1395.1395Search in Google Scholar
Scharrer I. Women with von Willebrand disease. Haemostaseologie 2004; 24: 44-9.ScharrerIWomen with von Willebrand diseaseHaemostaseologie20042444910.1055/s-0037-1619605Search in Google Scholar
Kirtava A, Crudder S, Dilley A, et al Trends in clinical management of women with von Willebrand disease: a survey of 75 women enrolled in haemophilia treatment centres in the United States. Haemophilia 2004; 10: 158-61.KirtavaACrudderSDilleyAet alTrends in clinical management of women with von Willebrand disease: a survey of 75 women enrolled in haemophilia treatment centres in the United StatesHaemophilia2004101586110.1046/j.1351-8216.2003.00832.x14962204Search in Google Scholar
Govorov I, Ekelund L, Chaireti R, et al Heavy menstrual bleeding and health-associated quality of life in women with von Willebrand's disease. Exp Ther Med 2016; 11: 1923-29. doi: 10.3892/etm.2016.3144.GovorovIEkelundLChairetiRet alHeavy menstrual bleeding and health-associated quality of life in women with von Willebrand's diseaseExp Ther Med20161119232910.3892/etm.2016.3144484054227168829Open DOISearch in Google Scholar
El-Nashar SA, Hopkins MR, Barnes SA, et al Health-related quality of life and patient satisfaction after global endometrial ablation for menorrhagia in women with bleeding disorders: a follow-up survey and systematic review. Am J Obstet Gynecol 2010; 202: 348.e1-7. doi: 10.1016/j. ajog.2009.11.032.El-NasharSAHopkinsMRBarnesSAet alHealth-related quality of life and patient satisfaction after global endometrial ablation for menorrhagia in women with bleeding disorders: a follow-up survey and systematic reviewAm J Obstet Gynecol2010202348e1-710.1016/j.ajog.2009.11.03220060089Open DOISearch in Google Scholar
Rubin G, Wortman M, Kouides PA. Endometrial ablation for von Willebrand disease-related menorrhagia – experience with seven cases. Haemophilia 2004; 10: 477-82.RubinGWortmanMKouidesPAEndometrial ablation for von Willebrand disease-related menorrhagia – experience with seven casesHaemophilia2004104778210.1111/j.1365-2516.2004.00915.x15357774Search in Google Scholar
Kadir RA, Edlund M, von Mackensen S. The impact of menstrual disorders on quality of life in women with inherited bleeding disorders. Haemophilia 2010; 16:832–9. doi: 10.1111/j.1365-2516.2010.02269.x.KadirRAEdlundMvon MackensenSThe impact of menstrual disorders on quality of life in women with inherited bleeding disordersHaemophilia201016832910.1111/j.1365-2516.2010.02269.x20584085Open DOISearch in Google Scholar
Matteson KA, Clark MA. Questioning our questions: do frequently asked questions adequately cover the aspects of women’s lives most affected by abnormal uterine bleeding? Opinions of women with abnormal uterine bleeding participating in focus group discussions. Women Health 2010; 50: 195-211. doi: 10.1080/03630241003705037.MattesonKAClarkMAQuestioning our questions: do frequently asked questions adequately cover the aspects of women’s lives most affected by abnormal uterine bleeding? Opinions of women with abnormal uterine bleeding participating in focus group discussionsWomen Health20105019521110.1080/03630241003705037288437820437305Open DOISearch in Google Scholar
Kadir RA, Sabin CA, Pollard D, Lee CA, Economides D. Quality of life during menstruation in patients with inherited bleeding disorders. Haemophilia 1998; 4: 836-41. 10.1046/j.1365-2516.1998.00208.x.KadirRASabinCAPollardDLeeCAEconomidesDQuality of life during menstruation in patients with inherited bleeding disordersHaemophilia199848364110.1046/j.1365-2516.1998.00208.x10.1046/j.1365-2516.1998.00208.x10028306Search in Google Scholar
Kouides PA, Phatak PD, Burkart P, et al Gynaecological and obstetrical morbidity in women with type 1 von Willebrand disease: results of a patient survey. Haemophilia 2000 6: 643-8.KouidesPAPhatakPDBurkartPet alGynaecological and obstetrical morbidity in women with type 1 von Willebrand disease: results of a patient surveyHaemophilia20006643810.1046/j.1365-2516.2000.00447.x11122390Search in Google Scholar
Kirtava A, Drews C, Lally C, Dilley A, Evatt B. Medical, reproductive and psychosocial experiences of women diagnosed with von Willebrand disease receiving care in haemophilia treatment centres: a case-control study. Haemophilia 2003; 9: 292-7. doi: 10.1046/j.1365-2516.2003.00756.x.KirtavaADrewsCLallyCDilleyAEvattBMedical, reproductive and psychosocial experiences of women diagnosed with von Willebrand disease receiving care in haemophilia treatment centres: a case-control studyHaemophilia20039292710.1046/j.1365-2516.2003.00756.x12694520Open DOISearch in Google Scholar
Von Mackensen S, Federici A. Quality of life assessment in patients with von Willebrand’s disease: development of a first disease-specific instrument (VWD-QoL). Haemostaseologie 2007; 1: 126.Von MackensenSFedericiAQuality of life assessment in patients with von Willebrand’s disease: development of a first disease-specific instrument (VWD-QoL)Haemostaseologie20071126Search in Google Scholar
Byams VR, Kouides PA, Kulkarni R, et al Surveillance of female patients with inherited bleeding disorders in United States Haemophilia Treatment Centres. Haemophilia 2011 17 Suppl 1: 6-13. doi: 10.1111/j.1365-2516.2011.02558.x.ByamsVRKouidesPAKulkarniRet alSurveillance of female patients with inherited bleeding disorders in United States Haemophilia Treatment CentresHaemophilia201117 Suppl161310.1111/j.1365-2516.2011.02558.x446779621692922Open DOISearch in Google Scholar
Hillard PA. Menstrual suppression: current perspectives. Int J Womens Health 2014; 6: 631-7. doi: 10.2147/IJWH.S46680.HillardPAMenstrual suppression: current perspectivesInt J Womens Health20146631710.2147/IJWH.S46680407595525018654Open DOISearch in Google Scholar
Kadir RA, James AH. Reproductive Health in Women with Bleeding Disorders. World Federation of Hemophilia, Treatment of Hemophilia Monographs, no. 48, 2009. Available at http://www1.wfh.org/publication/files/pdf-1206.pdf (accessed 11 July 2019).KadirRAJamesAHReproductive Health in Women with Bleeding DisordersWorld Federation of Hemophilia, Treatment of Hemophilia Monographs, no. 482009Available athttp://www1.wfh.org/publication/files/pdf-1206.pdfaccessed 11 July 201910.1002/9781444303490Search in Google Scholar
Bayer LL, Hillard PJ. Use of levonorgestrel intrauterine system for medical indications in adolescents. J Adolesc Health 2013; 52(4 Suppl): S54-8. doi: 10.1016/j.jadohealth.2012.09.022.BayerLLHillardPJUse of levonorgestrel intrauterine system for medical indications in adolescentsJ Adolesc Health2013524 SupplS54810.1016/j.jadohealth.2012.09.02223535058Open DOISearch in Google Scholar
Lukes AS, Perry S, Ortel TL. Von Willebrand's disease diagnosed after menorrhagia worsened from levonorgestrel intrauterine system. Obstet Gynecol 2005; 105: 1223-6.LukesASPerrySOrtelTLVon Willebrand's disease diagnosed after menorrhagia worsened from levonorgestrel intrauterine systemObstet Gynecol20051051223610.1097/01.AOG.0000157758.94890.5915863590Search in Google Scholar
Rimmer E, Jamieson MA, James P. Malposition and expulsion of the levonorgestrel intrauterine system among women with inherited bleeding disorders. Haemophilia 2013; 19: 933-8. doi: 10.1111/hae.12184.RimmerEJamiesonMAJamesPMalposition and expulsion of the levonorgestrel intrauterine system among women with inherited bleeding disordersHaemophilia201319933810.1111/hae.1218423711358Open DOISearch in Google Scholar
Kadir RA, Lee CA, Sabin CA, et al DDAVP nasal spray for treatment of menorrhagia in women with inherited bleeding disorders: a randomized placebo-controlled crossover study. Haemophilia 2002; 8: 787-93.KadirRALeeCASabinCAet alDDAVP nasal spray for treatment of menorrhagia in women with inherited bleeding disorders: a randomized placebo-controlled crossover studyHaemophilia200287879310.1046/j.1365-2516.2002.00678.x12410648Search in Google Scholar
Edlund M, Blombäck M, Fried G. Desmopressin in the treatment of menorrhagia in women with no common coagulation factor deficiency but with prolonged bleeding time. Blood Coagul Fibrinolysis 2002; 13: 225-31.EdlundMBlombäckMFriedGDesmopressin in the treatment of menorrhagia in women with no common coagulation factor deficiency but with prolonged bleeding timeBlood Coagul Fibrinolysis2002132253110.1097/00001721-200204000-0000811943936Search in Google Scholar
Kouides PA, Byams VR, Philipp CS, et al Multisite management study of menorrhagia with abnormal laboratory haemostasis: a prospective crossover study of intranasal desmopressin and oral tranexamic acid. Br J Haematol 2009; 145: 212-20. doi: 10.1111/j.1365-2141.2009.07610.x.KouidesPAByamsVRPhilippCSet alMultisite management study of menorrhagia with abnormal laboratory haemostasis: a prospective crossover study of intranasal desmopressin and oral tranexamic acidBr J Haematol20091452122010.1111/j.1365-2141.2009.07610.x19236375Open DOISearch in Google Scholar
Witkop M, Lambing A, Kachalsky E, et al Assessment of acute and persistent pain management in patients with haemophilia. Haemophilia 2011; 17: 612-9. doi: 10.1111/j.1365-2516.2010.02479.x.WitkopMLambingAKachalskyEet alAssessment of acute and persistent pain management in patients with haemophiliaHaemophilia201117612910.1111/j.1365-2516.2010.02479.x21323802Open DOISearch in Google Scholar
Holstein K, Klamroth R, Richards M, et al Pain management in patients with haemophilia: a European survey. Haemophilia 2012; 18: 743-52. doi: 10.1111/j.1365-2516.2012.02808.x.HolsteinKKlamrothRRichardsMet alPain management in patients with haemophilia: a European surveyHaemophilia2012187435210.1111/j.1365-2516.2012.02808.x22530627Open DOISearch in Google Scholar
, 