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Raising awareness globally for women with inherited bleeding disorders: World Federation of Hemophilia Symposium

Luisa Durante

Luisa Durante

Word Federation of HemophiliaMontreal, Canada
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Durante, Luisa
, 
Martin Sedmina

Martin Sedmina

Slovak Hemophilia Society; F.D. Roosevelt HospitalBanská Bystrica, Slovakia
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Sedmina, Martin
, 
Alexandra Vaskova

Alexandra Vaskova

Slovak Hemophilia SocietyBratislava, Slovakia
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Vaskova, Alexandra
, 
Baiba Ziemele

Baiba Ziemele

Latvia Hemophilia Society; President, Latvian Alliance of Rare Diseases; member of WFH Women's Inherited Bleeding Disorders Committee and WFH's Global Von Willebrand Disease GroupRiga, Latvia
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Ziemele, Baiba
 und 
Anna Tollwé

Anna Tollwé

Chair of Women’s Committee, Swedish Hemophilia SocietySundbyberg, Swedish
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Tollwé, Anna
  
17. Dez. 2019
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Artikel-Kategorie: Women With Bleeding Disorders
Online veröffentlicht: 17. Dez. 2019
Seitenbereich: 18 - 23
DOI: https://doi.org/10.17225/jhp00140
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© 2019 Luisa Durante, Martin Sedmina, Alexandra Vaskova, Baiba Ziemele, Anna Tollwé, published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

Figure 1

Distribution of National Member Organisations (NMOs) of the World Federation of Hemophilia (WFH) at country level. The WFH has implemented initiatives aimed at improving diagnosis and care for women with bleeding disorders around the world, working with NMOs and haemophilia treatment centres. Present in 140 countries, many NMOs are working to increase awareness at a national level – working together is key.
Distribution of National Member Organisations (NMOs) of the World Federation of Hemophilia (WFH) at country level. The WFH has implemented initiatives aimed at improving diagnosis and care for women with bleeding disorders around the world, working with NMOs and haemophilia treatment centres. Present in 140 countries, many NMOs are working to increase awareness at a national level – working together is key.
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While global maternal mortality is continuing to fall, issues around pregnancy and childbirth still account for over 300,000 deaths a year globally. Postpartum haemorrhage accounts for around 27% of cases, and it is estimated that bleeding disorders are a factor in around 1% of these (around 830 cases annually)© Shutterstock
While global maternal mortality is continuing to fall, issues around pregnancy and childbirth still account for over 300,000 deaths a year globally. Postpartum haemorrhage accounts for around 27% of cases, and it is estimated that bleeding disorders are a factor in around 1% of these (around 830 cases annually)© Shutterstock
‘Mini Mary’ (left) was used by the Swedish Hemophilia Society’s Women’s Project to convey the impact of living with a bleeding disorder in meetings with school health professionals, while the ‘Menstrual Cycle’ (right), decorated with lingonberry and menstrual cups, stimulated interest at Sweden’s most important political forum
‘Mini Mary’ (left) was used by the Swedish Hemophilia Society’s Women’s Project to convey the impact of living with a bleeding disorder in meetings with school health professionals, while the ‘Menstrual Cycle’ (right), decorated with lingonberry and menstrual cups, stimulated interest at Sweden’s most important political forum
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