1. bookVolume 8 (2021): Issue 1 (January 2021)
    Health, Media and Participation
Journal Details
License
Format
Journal
First Published
01 Nov 2014
Publication timeframe
2 times per year
Languages
English
access type Open Access

More Inclusion Through Participation?

Published Online: 03 Apr 2021
Page range: 1 - 16
Journal Details
License
Format
Journal
First Published
01 Nov 2014
Publication timeframe
2 times per year
Languages
English
Abstract

DUE TO THEIR HIGH USER NUMBER, SOCIAL NETWORK SITES CAN BE REGARDED AS A PUBLIC SPHERE AND SHOULD BE ACCESSIBLE TO ALL DEMOCRATIC CITIZENS. NEVERTHELESS, THERE ARE SOME UNDERREPRESENTED SOCIAL GROUPS SUCH AS PEOPLE WITH MILD INTELLECTUAL DISABILITIES. THIS QUALITATIVE STUDY INVESTIGATES HOW YOUNG PEOPLE WITH MILD INTELLECTUAL DISABILITIES IN GERMANY ACCESS, INTERACT AND PARTICIPATE ON SOCIAL NETWORK SITES. THEREFORE, WE CONDUCTED 8 QUALITATIVE INTERVIEWS WITH YOUNG PEOPLE WITH MILD INTELLECTUAL DISABILITIES (AND THEIR CAREGIVERS, N=7) AND ANALYZED THE TRANSCRIBED INTERVIEWS WITH AN INDUCTIVE QUALITATIVE CONTENT ANALYSIS TECHNIQUE. OUR PARTICIPANTS DESCRIBED VARIOUS WAYS OF ACCESSING, INTERACTING AND PARTICIPATING ONLINE (E.G., SHARING THEIR OWN CONTENT). FURTHERMORE, OUR PARTICIPANTS GATHERED BOTH POSITIVE (E.G., GAINING NEW FRIENDS) AND NEGATIVE (E.G., HATE SPEECH) EXPERIENCES THERE. MOREOVER, OUR RESULTS GIVE INFORMATION ABOUT ASPECTS OF SOCIAL NETWORK SITES THAT SHOULD BE ALTERED SO THAT A POSITIVE SOCIAL CHANGE BASED ON THE INCLUSION PRINCIPLE CAN TAKE PLACE.

Keywords

Aktion Mensch e.V./die Medienanstalten – ALM GbR. (2016). Mediennutzung von Menschen mit Behinderungen. Forschungsbericht. https://www.aktion-mensch.de/themen-informieren-und-diskutieren/barrierefreiheit/mediennutzung Search in Google Scholar

Alfredsson Ågren, K., Kjellberg, A., & Hemmingsson, H. (2020). Access to and use of the Internet among adolescents and young adults with intellectual disabilities in everyday settings. Journal of Intellectual & Developmental Disability, 45(1), 89–98. https://doi.org/10.3109/13668250.2018.1518898 Search in Google Scholar

Amado, A. N., Stancliffe, R. J., McCarron, M., & McCallion, P. (2013). Social Inclusion and Community Participation of Individuals with Intellectual/Developmental Disabilities. Intellectual and Developmental Disabilities, 51(5), 360–375. https://doi.org/10.1352/1934-9556-51.5.360 Search in Google Scholar

American Psychiatric Association. (2013). Diagnostic and Statistical Manual of Mental Disorders (Fifth Edition). American Psychiatric Association. https://doi.org/10.1176/appi.books.9780890425596 Search in Google Scholar

Antener, G. (2015). Einfach surfen? Internetzugang für Menschen mit geistiger Behinderung. In D. Domenig & U. Schäfer (Eds.), Mediale Welt inklusive! Sichtbarkeit und Teilhabe von Menschen mit Behinderungen in den Medien: Im Gedenken an Peter Dammann. Seismo. Search in Google Scholar

Bielefeld, H. (2011). Inklusion als Menschenrechtsprinzip. Perspektiven der UN- Behindertenrechtskonvention. 64–79. Search in Google Scholar

Boban, I., & Hinz, A. (2003). Qualitätsentwicklung des Gemeinsamen Unterrichts durch den „Index für Inklusion„. BEHINDERTE, 4/5, 2–13. Search in Google Scholar

Bourke, J., de Klerk, N., Smith, T., & Leonard, H. (2016). Population-Based Prevalence of Intellectual Disability and Autism Spectrum Disorders in Western Australia: A Comparison With Previous Estimates. Medicine, 95(21), e3737. https://doi.org/10.1097/MD.0000000000003737 Search in Google Scholar

boyd, danah m., & Ellison, N. B. (2007). Social Network Sites: Definition, History, and Scholarship. Journal of Computer-Mediated Communication, 13(1), 210–230. https://doi.org/10.1111/j.1083-6101.2007.00393.x Search in Google Scholar

Carpentier, N. (2016). Differentiating between access, interaction and participation. Conjunctions. Transdisciplinary Journal of Cultural Participation, 2(2), 7. https://doi.org/10.7146/tjcp.v2i2.23117 Search in Google Scholar

Caton, S., & Chapman, M. (2016). The use of social media and people with intellectual disability: A systematic review and thematic analysis. Journal of Intellectual and Developmental Disability, 41(2), 125–139. https://doi.org/10.310913668250.2016.1153052 Search in Google Scholar

Chadwick, D., & Wesson, C. (2016). Digital Inclusion and Disability. In A. Attrill & C. Fullwood (Eds.), Applied Cyberpsychology (pp. 1–23). Palgrave Macmillan UK. https://doi.org/10.1057/9781137517036_1 Search in Google Scholar

Chadwick, D., Wesson, C., & Fullwood, C. (2013). Internet Access by People with Intellectual Disabilities: Inequalities and Opportunities. Future Internet, 5(3), 376–397. https://doi.org/10.3390/fi5030376 Search in Google Scholar

Chadwick, D. (2019). Online risk for people with intellectual disabilities. Tizard Learning Disability Review, 24(4), 180–187. https://doi.org/10.1108/TLDR-03-2019-0008 Search in Google Scholar

Chadwick, D., Chapman, M., & Caton, S. (2019). Digital Inclusion for People with an Intellectual Disability. In A. Attrill-Smith, C. Fullwood, M. Keep, & D. J. Kuss (Eds.), The Oxford Handbook of Cyberpsychology (pp. 260–284). Oxford University Press. https://doi.org/10.1093/oxfordhb/9780198812746.013.17 Search in Google Scholar

Darragh, J., Reynolds, L., Ellison, C., & Bellon, M. (2017). Let’s talk about sex: How people with intellectual disability in Australia engage with online social media and intimate relationships. Cyberpsychology: Journal of Psychosocial Research on Cyberspace, 11(1). https://doi.org/10.5817/CP2017-1-9 Search in Google Scholar

de Groot, R., Kaal, H. L., & Stol, W. P. (2019). Studying Problematic Online Behavior of Adolescents With Mild Intellectual Disabilities and Borderline Intellectual Functioning: Methodological and Ethical Considerations for Data Collection. International Journal of Qualitative Methods, 18, 160940691985797. https://doi.org/10.1177/1609406919857978 Search in Google Scholar

Dobransky, K., & Hargittai, E. (2016). Unrealized potential: Exploring the digital disability divide. Poetics, 58, 18–28. https://doi.org/10.1016/j.poetic.2016.08.003 Search in Google Scholar

Eftekhar, A., Fullwood, C., & Morris, N. (2014). Capturing personality from Facebook photos and photo-related ctivities: How much exposure do you need? Computers in Human Behavior, 37, 162–170. https://doi.org/10.1016/j.chb.2014.04.048 Search in Google Scholar

Emerson, E., & McVilly, K. (2004). Friendship Activities of Adults with Intellectual Disabilities in Supported Accommodation in Northern England. Journal of Applied Research in Intellectual Disabilities, 17(3), 191–197. https://doi.org/10.1111/j.1468-3148.2004.00198.x Search in Google Scholar

Firdaus, J., & Jadeja, M. (2016). Quality of Life of People with Intellectual Disability. In R. T. Gopalan (Ed.), Handbook of Research on Diagnosing, Treating, and Managing Intellectual Disabilities: (pp. 139–155). IGI Global. https://doi.org/10.4018/978-1-5225-0089-6 Search in Google Scholar

Fox, S. (2011). Americans living with disability and their technology profile. https://www.pewresearch.org/internet/2011/01/21/americans-living-with-disability-and-their-technology-profile/ Search in Google Scholar

German Federal Ministry of Labour and Social Affairs. (2011). Übereinkommen der Vereinten Nationen über Rechte von Menschen mit Behinderungen Erster Staatenbericht der Bundesrepublik Deutschland. https://www.bmas.de/SharedDocs/Downloads/DE/staatenbericht-2011.pdf?__blob=publicationFile Search in Google Scholar

Guo *, B., Bricout, J. C., & Huang, J. (2005). A common open space or a digital divide? A social model perspective on the online disability community in China. Disability & Society, 20(1), 49–66. https://doi.org/10.1080/0968759042000283638 Search in Google Scholar

Hashim, A. H., Kaur, M., Bahar, N., & Ismail, W. S. W. (2016). Mental Health Issues among Family Members of Children with Mental Disability. In R. T. Gopalan (Ed.), Handbook of Research on Diagnosing, Treating, and Managing Intellectual Disabilities: (pp. 54–81). IGI Global. https://doi.org/10.4018/978-1-5225-0089-6 Search in Google Scholar

Häßler, F. (2011). Intelligenzminderung: Eine ärztliche Herausforderung. Springer Berlin Heidelberg. https://doi.org/10.1007/978-3-642-12996-4 Search in Google Scholar

Hazarika, M., & Choudhury, S. (2016). Attitude towards People with Intellectual Disabilities (PWID). In R. T. Gopalan (Ed.), Handbook of research on diagnosing, treating, and managing intellectual disabilities. Information Science Reference, an imprint of IGI global. Search in Google Scholar

Hermes, G. (2006, November 8). Von der Segregation über die Integration zur Inklusion. http://www.zedis-ev-hochschuleh.de/files/segregation_integration_inklusion_gisela_hermes.pdf Search in Google Scholar

Holmes, K. M., & O’Loughlin, N. (2014). The experiences of people with learning disabilities on social networking sites. British Journal of Learning Disabilities, 42(1), 1–5. https://doi.org/10.1111/bld.12001 Search in Google Scholar

Jenkins, H. (2006). Convergence culture: Where old and new media collide. New York University Press. Search in Google Scholar

Kozma, A., Mansell, J., & Beadle-Brown, J. (2009). Outcomes in Different Residential Settings for People With Intellectual Disability: A Systematic Review. American Journal on Intellectual and Developmental Disabilities, 114(3), 193–222. https://doi.org/10.1352/1944-7558-114.3.193 Search in Google Scholar

Löfgren-Mårtenson, L. (2008). Love in Cyberspace: Swedish Young People with Intellectual Disabilities and the Internet1. Scandinavian Journal of Disability Research, 10(2), 125–138. https://doi.org/10.1080/15017410701758005 Search in Google Scholar

Malik, A., Dhir, A., & Nieminen, M. (2016). Uses and Gratifications of digital photo sharing on Facebook. Telematics and Informatics, 33(1), 129–138. https://doi.org/10.1016/j.tele.2015.06.009 Search in Google Scholar

Matikainen, J. (2015). Motivations for content generation in social media. Journal of Audience & Reception Studies, 12(1), 41–58. Search in Google Scholar

Maulik, P. K., Mascarenhas, M. N., Mathers, C. D., Dua, T., & Saxena, S. (2011). Prevalence of intellectual disability: A meta- analysis of population-based studies. Research in Developmental Disabilities, 32(2), 419–436. https://doi.org/10.1016/j.ridd.2010.12.018 Search in Google Scholar

Mayring, P. (2015). Qualitative Inhaltsanalyse: Grundlagen und Techniken (12., überarbeitete Auflage). Beltz Verlag. Search in Google Scholar

McKenzie, K., Milton, M., Smith, G., & Ouellette-Kuntz, H. (2016). Systematic Review of the Prevalence and Incidence of Intellectual Disabilities: Current Trends and Issues. Current Developmental Disorders Reports, 3(2), 104–115. https://doi.org/10.1007/s40474-016-0085-7 Search in Google Scholar

Meyen, M., Löblich, M., Pfaff-Rüdiger, S., & Riesmeyer, C. (2011). Qualitative Forschung in der Kommunikationswissenschaft. VS Verlag für Sozialwissenschaften. https://doi.org/10.1007/978-3-531-92829-6 Search in Google Scholar

Naslund, J. A. (2018). Digital technology for health promotion among individuals with serious mental illness (2017-54454-244) [ProQuest Information & Learning]. psyh. http://search.ebscohost.com/login.aspx?direct=true&db=psyh&AN=2017-54454-244&site=ehost-live Search in Google Scholar

Pandey, J. M., & Mishra, P. (2016). Intellectual Disability. An Awareness towards Intervention. In R. T. Gopalan & H. Chandan (Eds.), Handbook of Research on Diagnosing, Treating, and Managing Intellectual Disabilities: (pp. 220–236). IGI Global. https://doi.org/10.4018/978-1-5225-0089-6 Search in Google Scholar

Ramsenthaler, C. (2013). Was ist „Qualitative Inhaltsanalyse?“. In M. Schnell, C. Schulz, H. Kolbe, & C. Dunger (Eds.), Der Patient am Lebensende (pp. 23–42). Springer Fachmedien Wiesbaden. https://doi.org/10.1007/978-3-531-19660-2_2 Search in Google Scholar

Salmerón, L., Fajardo, I., & Gómez-Puerta, M. (2019). Selection and evaluation of Internet information by adults with intellectual disabilities. European Journal of Special Needs Education, 34(3), 272–284. https://doi.org/10.1080/08856257.2018.1468634 Search in Google Scholar

Saß, H. (Ed.). (2003). Diagnostisches und statistisches Manual psychischer Störungen: Textrevision - DSM-IV-TR (übersetzt nach der Textrevision der 4. Aufl). Hogrefe. Search in Google Scholar

Schaumburg, M. (2010). Medienpädagogische Arbeit mit Men- schen mit geistiger Behinderung „ Eine methodische Anleitung für die Praxis. Heilpädagogik Online, 1. Search in Google Scholar

Schreiner, M. (2017). Teilhabe am Arbeitsleben. Springer Fachmedien Wiesbaden. https://doi.org/10.1007/978-3-658-16919-0 Search in Google Scholar

Söderström, S. (2009). Offline social ties and online use of computers: A study of disabled youth and their use of ICT advances. New Media & Society, 11(5), 709–727. https://doi.org/10.1177/1461444809105347 Search in Google Scholar

Statista. (2019a). How many users does Facebook have? https://www.statista.com/statistics/264810/number-of-monthly-active-facebook-users-worldwide/ Search in Google Scholar

Statista. (2019b). Number of global social network users 2010-2021. https://www.statista.com/statistics/278414/number-of-worldwide-social-network-users/ Search in Google Scholar

Tassé, M. J., Luckasson, R., & Schalock, R. L. (2016). The Relation Between Intellectual Functioning and Adaptive Behavior in the Diagnosis of Intellectual Disability. Intellectual and Developmental Disabilities, 54(6), 381–390. https://doi.org/10.1352/1934-9556-54.6.381 Search in Google Scholar

Theunissen, G. (2013). Empowerment und Inklusion behinderter Menschen: Eine Einführung in Heilpädagogik und Soziale A rbeit (3., aktualisierte Aufl). Lambertus-Verl. Search in Google Scholar

Tsaliki, L., & Kontogianni, S. (2014). Bridging the Disability Divide? Young Children’s and Teenager’s with Disability Internet Experiences in Greece. Journal of Children and Media, 8(2), 146–162. https://doi.org/10.1080/17482798.2013.823878 Search in Google Scholar

UN Disability Convention. (2017). Die UN-Behindertenrechtskonvention. Übereinkommen über die Rechte von Menschen mit Behinderungen. https://www.behindertenbeauftragte.de/SharedDocs/Publikationen/UN_Konvention_deutsch.pdf?__blob=publicationFile&v=2 Search in Google Scholar

Villi, M., & Matikainen, J. (2016). Participation in Social Media: Studying Explicit and Implicit Forms of Participation in Communicative Social Networks. Media and Communication, 4(4), 109. https://doi.org/10.17645/mac.v4i4.578 Search in Google Scholar

Waldschmidt, A., & Bildungs- und Forschungsinstitut zum Selbstbestimmten Leben Behinderter (Eds.). (2003). Kulturwissenschaftliche Perspektiven der Disability Studies: Tagungsdokumentation (1. Aufl). bifos e.V. Search in Google Scholar

Welke, A. (2012). UN-Behindertenrechtskonvention. Eigenverl. des Dt. Vereins für Öffentliche und Private Fürsorge. Search in Google Scholar

Zaynel, N. (2017). Internetnutzung von Jugendlichen und jungen Erwachsenen mit Down-Syndrom. Springer VS. Search in Google Scholar

Recommended articles from Trend MD

Plan your remote conference with Sciendo