<abstract xmlns="http://www.w3.org/1999/xhtml"><p>In this article we examine meanings and uses of the concept of patient involvement, using a psychosocial cancer rehabilitation intervention in Denmark as an example. Drawing on Scandinavian sociological institutionalism, we analyse the translation process of the concept and how it is understood, shaped and practised in four interrelated contexts: patients’ experience of cancer care; a call for research bids to improve cancer care; a research project of psychosocial cancer rehabilitation; and the implementation of the project’s intervention in clinical practice. Our analysis reveals distinct understandings and practices of patient involvement informed by the various actors’ perspectives and the structures of the healthcare system. The meaning of patient involvement changed from patients seeking to engage in healthcare on their terms, to patients being expected by researchers and healthcare professionals to be ‘active patients’ in particular ways. Our analysis highlights the importance of critically examining the phenomenon of patient involvement in local contexts.</p></abstract>

In this article we examine meanings and uses of the concept of patient involvement, using a psychosocial cancer rehabilitation intervention in Denmark as an example. Drawing on Scandinavian sociological institutionalism, we analyse the translation process of the concept and how it is understood, shaped and practised in four interrelated contexts: patients’ experience of cancer care; a call for research bids to improve cancer care; a research project of psychosocial cancer rehabilitation; and the implementation of the project’s intervention in clinical practice. Our analysis reveals distinct understandings and practices of patient involvement informed by the various actors’ perspectives and the structures of the healthcare system. The meaning of patient involvement changed from patients seeking to engage in healthcare on their terms, to patients being expected by researchers and healthcare professionals to be ‘active patients’ in particular ways. Our analysis highlights the importance of critically examining the phenomenon of patient involvement in local contexts.

Translating Patient Experiences into Clinical Practice

Conjunctions

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

An Example of ‘Patient involvement’ from Psychosocial Cancer Rehabilitation in Denmark

In this article we examine meanings and uses of the concept of patient involvement, using a psychosocial cancer rehabilitation intervention in Denmark as an...

Translating Patient Experiences into Clinical Practice

Published Online: Mar 30, 2021

Page range: 137 - 153

DOI: https://doi.org/10.7146/tjcp.v2i2.22924

Keywords
Patient involvement, patient experience, clinical practice, translation, cancer rehabilitation, institutionalism

© 2021 Loni Ledderer et al., published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

Translating Patient Experiences into Clinical Practice

Published Online: Mar 30, 2021

Page range: 137 - 153

DOI: https://doi.org/10.7146/tjcp.v2i2.22924

KeywordsPatient involvement, patient experience, clinical practice, translation, cancer rehabilitation, institutionalism

© 2021 Loni Ledderer et al., published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

Keywords
Patient involvement, patient experience, clinical practice, translation, cancer rehabilitation, institutionalism