<abstract xmlns="http://www.w3.org/1999/xhtml">

<bold>Aim.</bold> The purpose was to determine the quality of life of Parkinson’s disease patients and their family members and to identify the factors that affect it.
<bold>Material and methods.</bold> The research sample included 183 patients with Parkinson’s disease and 78 family members. Quality of life was assessed using the Czech Quality of Life Questionnaire of Patients with Progressive Neurological Disease.
<bold>Results.</bold> Patients with a longer duration of the disease had a lower overall quality of life. The connection between higher dependence of patients on daily activities, and higher degree of motor disability was associated with a poorer quality of life in patients. In family members, an association was demonstrated between older age and a lower quality of life in the domain of normal daily activity, social and spiritual area. With older age, the higher burden of symptoms also increased and deteriorated overall quality of life. The connection between higher dependence of patients on daily activities and a worse quality of life of caregivers in the three domain was confirmed.
<bold>Conclusions.</bold> Regular assessment of the impact of Parkinson’s disease on the quality of life of patients and their family and the identification of factors that affect it can help prioritize the treatment planning phase.
</abstract>

Aim. The purpose was to determine the quality of life of Parkinson’s disease patients and their family members and to identify the factors that affect it.
Material and methods. The research sample included 183 patients with Parkinson’s disease and 78 family members. Quality of life was assessed using the Czech Quality of Life Questionnaire of Patients with Progressive Neurological Disease.
Results. Patients with a longer duration of the disease had a lower overall quality of life. The connection between higher dependence of patients on daily activities, and higher degree of motor disability was associated with a poorer quality of life in patients. In family members, an association was demonstrated between older age and a lower quality of life in the domain of normal daily activity, social and spiritual area. With older age, the higher burden of symptoms also increased and deteriorated overall quality of life. The connection between higher dependence of patients on daily activities and a worse quality of life of caregivers in the three domain was confirmed.
Conclusions. Regular assessment of the impact of Parkinson’s disease on the quality of life of patients and their family and the identification of factors that affect it can help prioritize the treatment planning phase.

Quality of life of patients with Parkinson’s disease and their families

University of Ostrava, Faculty of Medicine

Pielegniarstwo  XXI wieku / Nursing in the 21st Century

This work is licensed under the Creative Commons Attribution 4.0 International License.

{"article-title":"Quality of life of patients with Parkinson\u2019s disease and their families"}

Aim. The purpose was to determine the quality of life of Parkinson’s disease patients and their family members and to identify the factors that affect...

Quality of life of patients with Parkinson’s disease and their families

Published Online: Feb 27, 2023

Page range: 1 - 7

Received: Jun 10, 2022

Accepted: Nov 28, 2022

DOI: https://doi.org/10.2478/pielxxiw-2023-0001

Keywords
quality of life, patient, family member, Parkinson ‘s disease

© 2023 Radka Kozáková et al., published by Sciendo

This work is licensed under the Creative Commons Attribution 4.0 International License.

Quality of life of patients with Parkinson’s disease and their families

Published Online: Feb 27, 2023

Page range: 1 - 7

Received: Jun 10, 2022

Accepted: Nov 28, 2022

DOI: https://doi.org/10.2478/pielxxiw-2023-0001

Keywordsquality of life, patient, family member, Parkinson ‘s disease

© 2023 Radka Kozáková et al., published by Sciendo

This work is licensed under the Creative Commons Attribution 4.0 International License.

Keywords
quality of life, patient, family member, Parkinson ‘s disease