Assessment of Health Care Professionals’ Perspectives on Personalized Psychosocial Support Development in Routine Cancer Care

1 Abrahamson, K., Durham, M., Norton, K., Doebbeling, B., Doebbeling, C., Anderson, J. (2011). Provision of Psychosocial Care for Cancer Patients // Journal of Primary Care & Community Health. Vol. 2, No. 4, pp. 220–224. doi: 10.1177/21501319114072 Search in Google Scholar

2 Aitken, K., von Treuer, K. (2014). Organisational and Leadership Competencies for Successful Service Integration // Leadership in Health Services. Vol. 27, No. 2, pp. 150–180. doi: 0.1108/LHS-08-2012-0028 Search in Google Scholar

3 Adler, N., Page, A. (2008). Cancer Care for the Whole Patient. Washington, D. C.: National Academies Press. Search in Google Scholar

4 Anuk, D., Özkan, M., Kizir, A., Özkan, S. (2019). The Characteristics and Risk Factors for Common Psychiatric Disorders in Patients with Cancer Seeking Help for Mental Health // BMC Psychiatry. Vol. 19, No. 1, pp. 269. doi:10.1186/s12888-019-2251-z Search in Google Scholar

5 Berntsen, G., Høyem, A., Lettrem, I., Ruland, C., Rumpsfeld, M., Gammon, D. (2018). A Person-Centered Integrated Care Quality Framework, Based on a Qualitative Study of Patients’ Evaluation of Care in Light of Chronic Care Ideals // BMC Health Services Research. Vol. 18, No. 1, pp. 479–479. doi: 10.1186/s12913-018-3246-z Search in Google Scholar

6 Borras, J., Prades, J. (2014). Work Package 7: Health Care. Deliverable: Mapping the Landscape of Cancer Care in Europe. European Partnership for Action Against Cancer (EPAAC). Search in Google Scholar

7 Brédart, A., Beaudeau, A., Young, T., Moura de Alberquerque Melo, H., Arraras, J., Friend, L., Schmidt, H., Tomaszewski, K., Bergenmar, M., Anota, A., Costantini, A., Marchal, F., Tomaszewska, I., Vassiliou, V., Chie, W., Hureaux, J., Conroy, T., Ramage, J., Bonnetain, F., Kulis, D., Aaronson, N. (2016). The European Organization for Research and Treatment of Cancer – Satisfaction with Cancer Care Questionnaire: Revision and Extended Application Development // Psycho-Oncology. Vol. 26, No. 3, pp. 400–404. doi: 10.1002/pon.4127 Search in Google Scholar

8 Brummel, S., Butler, D., Frieder, M., Gibbs, N., Henry, M., Koons, E., Loggers, E., Porock, D., Reuben, D. B., Saliba, D., Scanlon, W. J., Tabbush, V., Tinetti, M., Tumlinson, A., Vladeck, B. C. (2016). Person-Centered Care: A Definition and Essential Elements // Journal of the American Geriatrics Society. Vol. 64, No. 1. pp. 15–18. doi: 10.1111/jgs.13866 Search in Google Scholar

9 Carey, G., Malbon, E., Olney, S., Reeders, D. (2018). The Personalization Agenda: The Case of the Australian National Disability Insurance Scheme // International Review of Sociology, Vol. 28, No. 1. pp. 20–34. doi: 10.1080/03906701.2018.1425084 Search in Google Scholar

10 Carlson, M. A., Booth, K., Byrnes, E., Paul, C., Fradgley, E. A. (2020). Pin-Pointing Service Characteristics Associated with Implementation of Evidence-Based Distress Screening and Management in Australian Cancer Services: Data from a Crosssectional Study // Journal of Psychosocial Oncology Research and Practice. Vol. 2, No. 2. doi: 10.1097/OR9.0000000000000020 Search in Google Scholar

11 Cochrane, A., Woods, S., Dunne, S., Gallagher, P. (2022). Unmet Supportive Care Needs Associated with Quality of Life for People with Lung Cancer: A Systematic Review of the Evidence 2007–2020 // European Journal of Cancer Care. Vol. 31, No. 1 pp. e13525. doi: 10.1111/ecc.13525 Search in Google Scholar

12 Coulter, A., Oldham, J. (2016) Person-Centred Care: What is It and How do We Get There? // Future Hospital Journal. Vol. 3, No. 2, pp. 114–116. Doi: 0.7861/futurehosp.3-2-114 Search in Google Scholar

13 Deshields, T. L., Howrey, H. L., Vanderlan, J. R. (2018). Distress in Oncology: Not Just a Psychosocial Phenomenon // Journal of Oncology Practice. Vol. 14, No. 12. doi: 10.1200/JOP.18.00222 Search in Google Scholar

14 Dilworth, S., Higgins, I., Parker, V., Kelly, B., Turner, J. (2014). Patient and Health Professional’s Perceived Barriers to the Delivery of Psychosocial Care to Adults with Cancer: A Systematic Review // Psycho-Oncology. Vol. 23, No. 6., pp. 601–612. doi:10.1002/pon.3474 Search in Google Scholar

15 Ercolano, E., Hoffman, E., Tan, H., Pasacreta, N., Lazenby, M., McCorkle, R. (2018). Managing Psychosocial Distress: Lessons Learned in Optimizing Screening Program Implementation // Oncology (Williston Park, N.Y.). Vol. 32, No. 10, pp. 488–493. Search in Google Scholar

16 Evén, G., Spaak, J., Franzén-Dahlin, Å, Stenfors, T. (2019). Health Care Professionals’ Experiences and Enactment of Person-Centered Care at a Multidisciplinary Outpatient Specialty Clinic // Journal of Multidisciplinary Healthcare. Vol. 12. pp. 137–148. doi: 10.2147/JMDH.S186388 Search in Google Scholar

17 Fradgley, E. A., Bultz, B. D., Kelly, B. J., Loscalzo, M. J., Grassi, L., Sitaram, B. (2019). Progress toward integrating Distress as the Sixth Vital Sign: A Global Snapshot of Triumphs and Tribulations in Precision Supportive Care // Journal of Psychosocial Oncology Research and Practice. Vol. 1. No. 1. doi: 10.1097/OR9.0000000000000002 Search in Google Scholar

18 Frazier, L. D. (2020). The Past, Present, and Future of the Biopsychosocial Model: A Review of the Biopsychosocial Model of Health and Disease: New Philosophical and Scientific Developments by Derek Bolton and Grant Gillett // New Ideas in Psychology. Vol. 57. doi: 10.1016/j.newideapsych.2019.100755 Search in Google Scholar

19 Flick, U. (2008). A Companion to Qualitative Research. Los Angeles: SAGE. Search in Google Scholar

20 Grassi, L., Mezzich, J. E., Nanni, M. G., Riba, M. B., Sabato, S., Caruso, R. (2017). A Person-Centred Approach In Medicine to Reduce The Psychosocial And Existential Burden of Chronic and Life-Threatening Medical Illness // Int Rev Psychiatry. Vol. 29, No. 5, pp. 377–388. doi: 10.1080/09540261.2017.1294558. Search in Google Scholar

21 Hower, K. I., Vennedey, V., Hillen, H. A., Kuntz, L., Stock, S., Pfaff, H., et al. (2019). Implementation of Patient-Centred Care: Which Organisational Determinants Matter from Decision Maker’s Perspective? Results from a Qualitative Interview Study Across Various Health and Social Care Organisations // BMJ Open. Vol. 9, No. 4. doi: 10.1136/bmjopen-2018-027591 Search in Google Scholar

22 Young, M., Smith, M. A. (2022). Standards and Evaluation of Healthcare Quality, Safety, and Person Centered Care. In StatPearls. StatPearls Publishing. Internet access: <https://www.ncbi.nlm.nih.gov/books/NBK576432/>. Search in Google Scholar

23 Jacobsen, P. (2017). New Challenges in Psycho-Oncology Research II: A Health Care Delivery, Dissemination, and Implementation Research Model to Promote Psychosocial Care in Routine Cancer Care // Psycho-Oncology. Vol. 26, No. 4. pp. 419–423. doi: 10.1002/pon.4428 Search in Google Scholar

24 Jacobsen, P. B., Shibata, D., Siegel, E. M., Lee, J., Fulp, W. J., Alemany, C., et al. (2011). Evaluating the Quality of Psychosocial Care in Outpatient Medical Oncology Settings Using Performance Indicators // Psycho-Oncology. Vol. 20, No. 11, pp. 1221–1227. doi:10.1002/pon.1849 Search in Google Scholar

25 Jacobsen, P., Lee, M. (2015). Integrating Psychosocial Care into Routine Cancer Care // Cancer Control. Vol. 22, No. 4, pp. 442–449. doi: 10.1177/107327481502200410 Search in Google Scholar

26 Kollberg, K. (2020). Psychosocial Support Needs After a Breast Cancer Diagnosis. Gothenburg: University of Gothenburg Internet access: <https://gupea.ub.gu.se/bitstream/2077/34822/1/gupea_2077_34822_1.pdf> [accessed 17 January 2023]. Search in Google Scholar

27 Lewandowska, A., Rudzki, G., Lewandowski, T., Rudzki, S. (2020). The Problems and Needs of Patients Diagnosed with Cancer and Their Caregivers // International Journal of Environmental Research and Public Health. Vol. 18, No. 1, pp. 87. doi: 0.3390/ijerph18010087 Search in Google Scholar

28 Loscalzo, M. (2016). Review of Handbook of Oncology Social Work: Psychosocial Care for People with Cancer // Psycho-Oncology. Vol. 25, No. 3. pp. 359–360. doi: 0.1002/pon.4101 Search in Google Scholar

29 Macmillan Cancer Support. (2020). Providing Personalized Care for People Living with Cancer. A Guide for Professionals Providing Holistic Needs Assessments, Care and Support Planning. Macmillan Cancer Support. Internet access: <https://cdn.macmillan.org.uk/dfsmedia/1a6f23537f7f4519bb0cf14c45b2a629/1539-source/providing-personalised-care-for-people-living-with-cancer-tcm9-355674> [accessed 17 January 2023]. Search in Google Scholar

30 Mitchell, A. J. (2013) Screening for Cancer-Related Distress: When is Implementation Successful and When is It Unsuccessful? // Acta Oncologica. Vol. 52, No. 2, pp. 216–224. doi:10.3109/0284186X.2012.745949 Search in Google Scholar

31 Moody, L., Nicholls, B., Shamji, H., Bridge, E., Dhanju, S., Singh, S. (2018). The Person-Centred Cre Guideline: From Principle to Practice // Journal of Patient Experience. Vol. 5, No. 4, pp. 282–288. doi: 10.1177/2374373518765792 Search in Google Scholar

32 National Comprehensive Cancer Network (2023). Clinical Practice Guidelines in Oncology: Distress Management. Version 2.2023 – December 22.2022. Internet access: <https://www.nccn.org/professionals/physician_gls/pdf/distress.pdf> [accessed January 17, 2023]. Search in Google Scholar

33 Neamţiu, L., Deandrea, S., Pylkkänen, L., Freeman, C., López Alcalde, J., Bramesfeld, A., Saz-Parkinson, Z., Ulutürk, A., Lerda, D. (2016). Psycho-Oncological Support for Breast Cancer Patients: A Brief Overview of Breast Cancer Services Certification Schemes and National Health Policies in Europe // The Breast. Vol. 29, pp. 178–180. doi: 10.1016/j.breast.2016.07.002 Search in Google Scholar

34 Needham, C. (2013). Personalization: From Day Centres to Community Hubs? // Critical Social Policy. Vol. 34, No. 1, pp. 90–108. doi: 10.1177/0261018313483492 Search in Google Scholar

35 Needham, C., Glasby, J. (2014). Debates in Personalisation Bristol: Policy Press. Search in Google Scholar

36 Patlak, M., Balogh, E., Nass, S. (2011). Patient-Centered Cancer Treatment Planning. Washington, D.C.: National Academies Press. Search in Google Scholar

37 Pavolini, E., Ranci, C. (2008). Restructuring the Welfare State: Reforms in Long-Term Care in Western European Countries // Journal of European Social Policy. Vol. 18, No. 3, pp. 246–259. doi:10.1177/0958928708091058 Search in Google Scholar

38 Person Centred Care / Coalition for Collaborative Care / Medical directorate. (2016). NHS England Personalised Care & Support Planning Handbook – Core Information. NHS England. Internet access: <https://www.england.nhs.uk/wp-content/uploads/2016/04/core-info-care-support-planning-1.pdf> [accessed 1 February 2023]. Search in Google Scholar

39 Pennbrant, S., Lyckhage, E. D., Nilsson M. S. (2014). Prerequisites for Person-Centered Care – As Described by Community Care Nurses // Clinical Nursing Studies. Vol. 3, pp. 5–13. doi: 10.5430/cns.v3n1p5 Search in Google Scholar

40 Pirl, W. F., Greer, J. A., Gregorio, S. W., Deshields, T., Irwin, S., Fasciano, K., et al. (2020). Framework for Planning the Delivery of Psychosocial Oncology Services: An American Psychosocial Oncology Society Task Force Report // Psycho-Oncology. Vol. 29, No. 12, pp. 1982–1987. doi:10.1002/pon.5409 Search in Google Scholar

41 Ployhart, R. Vandenberg, R. (2009). Longitudinal Research: The Theory, Design, and Analysis of Change // Journal of Management. Vol. 36, No. 1, pp. 94–120. doi: 10.1177/0149206309352110 Search in Google Scholar

42 Santana, M. J., Manalili, K., Jolley, R. J., Zelinsky, S., Quan, H., Lu, M. (2018). How to Practice Person-Centred Care: A Conceptual Framework // Health Expect. Vol. 21, No. 2, pp. 29–440. doi: 10.1111/hex.12640 Search in Google Scholar

43 Schiel, R. O., Brechtel, A., Hartmann, M., Taubert, A., Walther, J., Wiskemann, J., et al. (2014). Multidisciplinary Health Care Needs of Psychologically Distressed Cancer Patients in a Comprehensive Cancer Center. Deutsche Medizinische Wochenschrift (1946). Vol. 139, No. 12, pp. 587–591. doi: 10.1055/s-0034-1369856 Search in Google Scholar

44 Scholl, I., Zill, J., Härter, M., Dirmaier, J. Ö. (2014). An Integrative Model of Patient-Centeredness – A Systematic Review and Concept Analysis // PLoS One. Vol. 9, No. 9, pp. e107828. doi: 10.1371/journal.pone.0107828 Search in Google Scholar

45 Sender, A., Friedrich, M., Schmidt, R., Geue, K. (2020). Cancer-Specific Distress, Supportive Care Needs and Satisfaction with Psychosocial Care in Young Adult Cancer Survivors // European Journal of Oncology Nursing: The Official Journal of European Oncology Nursing Society. Vol. 44. doi: 10.1016/j.ejon.2019.101708 Search in Google Scholar

46 Spicker, P. (2012). Personalisation Falls Short // British Journal of Social Work. Vol. 43, No. 7, pp. 1259–1275. doi: 10.1093/bjsw/bcs063 Search in Google Scholar

47 The Health Foundation. (2014). Person-Centred Care Made Simple. Internet access: <https://www.health.org.uk/publications/person-centred-care-made-simple> [accessed 14 February 2023]. Search in Google Scholar

48 Travado, L., Breitbart, W., Grassi, L., Fujisawa, D., Patenaude, A., Baider, L., Connor, S., Fingeret, M. (2016). 2015 President’s Plenary International Psycho-Oncology Society: Psychosocial Care as a Human Rights Issue-Challenges and Opportunities // Psycho-Oncology. Vol. 26, No. 4, pp. 563–569. doi: 10.1002/pon.4209 Search in Google Scholar

49 Travado, L., Reis, J., Watson, M., Borràs, J. (2015). Psychosocial Oncology Care Resources in Europe: A Study under the European Partnership for Action Against Cancer (EPAAC) // Psycho-Oncology. Vol. 26, No. 4, pp. 523–530. doi: 10.1002/pon.4044 Search in Google Scholar

50 Van Dulmen S. A., Lukersmith S., Muxlow J., Santa Mina E., Nijhuis-van der Sanden, M. W., van der Wees P. J.; G-I-N Allied Health Steering Group. (2015). Supporting a Person-Centred Approach in Clinical Guidelines. A Position Paper of the Allied Health Community – Guidelines International Network (G-I-N) // Health Expect. Vol. 18, No. 5. pp. 1543–1558. doi: 10.1111/hex.12144. Search in Google Scholar

51 Veeraiah, S., Kayser, K., Sudhakar, R. (2022). Psychosocial Factors Influencing Distress among Cancer Patients in South India // Journal of Psychosocial Oncology Research and Practice. Vol. 4, No. 1. doi: 10.1097/OR9.0000000000000067 Search in Google Scholar

52 Wagner, L. M., van Haitsma, K., Kolanowski, A., Spetz, J. (2021). Recommendations to Deliver Person-Centered Long-Term Care for Persons Living With Dementia // Journal of the American Medical Directors Association. Vol. 22, No. 7, pp. 1366–1370. doi: 10.1016/j.jamda.2021.05.003 Search in Google Scholar

53 World Health Organization. (2015). WHO Global Strategy on People-Centred and Integrated Health Services: Interim Report. World Health Organization. Internet access: <https://apps.who.int/iris/handle/10665/155002> [accessed January 17, 2023]. Search in Google Scholar

54 World Health Organization. (2016). Framework on Integrated, People-Centred Health Services. Internet access: <http://apps.who.int/gb/ebwha/pdf_files/WHA69/A69_39-en.pdf?ua=1> [accessed January 17, 2023]. Search in Google Scholar