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Journals
The Journal of Haemophilia Practice
Volume 9 (2022): Issue 1 (January 2022)
Open Access
The journey of gene therapy in haemophilia – putting the patient at the centre of the hub and spoke model
Declan Noone
Declan Noone
,
Jan Astermark
Jan Astermark
,
Brian O'Mahony
Brian O'Mahony
,
Flora Peyvandi
Flora Peyvandi
,
Kate Khair
Kate Khair
,
Luke Pembroke
Luke Pembroke
and
Kathryn Jenner
Kathryn Jenner
| Jan 03, 2023
The Journal of Haemophilia Practice
Volume 9 (2022): Issue 1 (January 2022)
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Article Category:
Clinical Practice
Published Online:
Jan 03, 2023
Page range:
156 - 166
DOI:
https://doi.org/10.2478/jhp-2022-0021
Keywords
Haemophilia
,
Gene therapy
,
Hub and spoke care model
,
Patient-centred care
,
Decision making
,
Follow-up
© 2022 Declan Noone et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.
Declan Noone
Irish Haemophilia Society,
Dublin, Ireland
Jan Astermark
Lund University, Skåne University Hospital,
Lund,Malmö
Brian O'Mahony
Irish Haemophilia Society,
Dublin, Ireland
Flora Peyvandi
University of Milan, IRCCS Maggiore Hospital,
Milan
Kate Khair
Haemnet Ltd
London, UK
Luke Pembroke
Haemnet Ltd
London, UK
Kathryn Jenner
Haemnet Ltd
London, UK