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Journals
The Journal of Haemophilia Practice
Volume 9 (2022): Issue 1 (January 2022)
Open Access
Key challenges for patient registries – A report from the 1
st
workshop of the EHC Think Tank Workstream on Registries
Amanda Bok
Amanda Bok
,
Declan Noone
Declan Noone
,
Naja Skouw-Rasmussen
Naja Skouw-Rasmussen
and
Ehc Think Tank
Ehc Think Tank
| Mar 09, 2022
The Journal of Haemophilia Practice
Volume 9 (2022): Issue 1 (January 2022)
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Article Category:
Systems Change
Published Online:
Mar 09, 2022
Page range:
14 - 19
DOI:
https://doi.org/10.2478/jhp-2022-0002
Keywords
Bleeding disorders
,
Registries
,
Patient-reported health data
,
Systems change
,
Co-creation
© 2022 Amanda Bok et al., published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.