Rivista e Edizione

AHEAD OF PRINT

Volume 69 (2022): Edizione 2 (August 2022)

Volume 69 (2022): Edizione s1 (July 2022)

Volume 69 (2022): Edizione 1 (January 2022)

Volume 68 (2021): Edizione 2 (December 2021)

Volume 68 (2021): Edizione 1 (January 2021)

Volume 67 (2020): Edizione 2 (May 2020)

Volume 67 (2020): Edizione 1 (January 2020)

Volume 66 (2019): Edizione 2 (November 2019)

Volume 66 (2019): Edizione 1 (June 2019)

Volume 65 (2018): Edizione 2 (November 2018)

Volume 65 (2018): Edizione 1 (June 2018)

Volume 64 (2017): Edizione 2 (November 2017)

Volume 64 (2017): Edizione 1 (September 2017)

Volume 63 (2016): Edizione s12 (December 2016)

Volume 63 (2016): Edizione 2 (December 2016)

Volume 63 (2016): Edizione 1 (September 2016)

Volume 62 (2015): Edizione s10 (September 2015)

Volume 62 (2015): Edizione s9 (June 2015)

Volume 62 (2015): Edizione 2 (December 2015)

Volume 62 (2015): Edizione 1 (June 2015)

Volume 61 (2014): Edizione 2 (December 2014)

Volume 61 (2014): Edizione 1 (August 2014)

Volume 60 (2013): Edizione Supplementum-VIII (March 2013)
Rare disease day in Slovakia, Europlan national conference

Volume 60 (2013): Edizione 2 (December 2013)

Volume 60 (2013): Edizione 1 (June 2013)

Volume 59 (2012): Edizione Supplement-VII (February 2012)
Conference abstracts, Rare disease day, conference 29.2.2012, First Slovak conference about rare diseases

Volume 59 (2012): Edizione Supplement-VI (January 2012)
Clinical Pharmacy in the Slovak Republic, dedicated to the associated professor Lívia Magulová, PhD.

Volume 59 (2012): Edizione 2 (November 2012)

Volume 59 (2012): Edizione 1 (June 2012)

Volume 58 (2011): Edizione 1 (January 2011)

Dettagli della rivista
Formato
Rivista
eISSN
2453-6725
ISSN
0301-2298
Pubblicato per la prima volta
25 Nov 2011
Periodo di pubblicazione
2 volte all'anno
Lingue
Inglese

Cerca

Volume 60 (2013): Edizione Supplementum-VIII (March 2013)
Rare disease day in Slovakia, Europlan national conference

Dettagli della rivista
Formato
Rivista
eISSN
2453-6725
ISSN
0301-2298
Pubblicato per la prima volta
25 Nov 2011
Periodo di pubblicazione
2 volte all'anno
Lingue
Inglese

Cerca

11 Articoli
access type Accesso libero

Current Legislation and Recommended Procedures / Tvorba národného plánu starostlivosti o pacientov so zriedkavými chorobami, súčasná legislatíva a odporúčané postupy

Pubblicato online: 20 Apr 2013
Pagine: 6 - 9

Astratto

Keywords

  • rare diseases
  • centres of expertise
  • European reference networks
  • registers of rare diseases
  • national plan for rare disease
access type Accesso libero

Orphanet – Information, Education and Expert Centres for Rare Diseases / Orphanet – informovanosť, vzdelávanie a špecializované centrá starostlivosti o pacientov so ZCH

Pubblicato online: 20 Apr 2013
Pagine: 10 - 15

Astratto

Parole chiave

  • Orphanet
  • Slovakia
  • creation of Centres of Expertise
access type Accesso libero

The Reality of the Management in Patients with Rare Inborn Metabolic Diseases In Slovakia / Realita starostlivosti o pacientov so zriedkavými vrodenými metabolickými chorobami v SR

Pubblicato online: 20 Apr 2013
Pagine: 16 - 21

Astratto

Keywords

  • inherited metabolic disease in Slovakia
  • substitution therapy
  • paediatrics
access type Accesso libero

Pulmonary Arterial Hypertension Centre – A Model for Rare Disease Management / Centrum pre pľúcnu artériovú hypertenziu – model v manažmente zriedkavých chorôb

Pubblicato online: 20 Apr 2013
Pagine: 22 - 25

Astratto

Keywords

  • pulmonary arterial hypertension
  • managment
  • reference centre
access type Accesso libero

Orphan Dugs in EU / Lieky na zriedkavé choroby v EÚ

Pubblicato online: 20 Apr 2013
Pagine: 26 - 31

Astratto

Keywords

  • orphan drugs
  • policy in the field of orphan drugs
  • European orphan medicinal product (OMP) regulation
access type Accesso libero

Newborn Screening in Slovakia – From 1985 Till Today / Novorodencký skríning na Slovensku – od roku 1985 doposiaľ

Pubblicato online: 20 Apr 2013
Pagine: 32 - 36

Astratto

Keywords

  • Newborn screening
  • Hereditary metabolic disorders
  • Rare Disease
access type Accesso libero

National Health Information Centre Task Regarding the Data Availability on Rare Diseases in the SR / Úloha národného centra zdravotníckych informácií v dostupnosti údajov o zriedkavých chorobách v SR

Pubblicato online: 20 Apr 2013
Pagine: 37 - 40

Astratto

Keywords

  • National Health information centre
  • rare diseases
  • registries
access type Accesso libero

Patient Empowerment in Rare Diseases Slovak Rare Disease Alliance − Contribution to the Creation of the National Plan of Rare Diseases in Slovakia Eurordis – Benefits of Membership / Pacientske organizácie v oblasti zriedkavých chorôb – ich činnosť aj pri príprave národného plánu v SR slovenská aliancia zriedkavých chorôb Eurordis - európska aliancia zriedkavých chorôb – výhody členstva

Pubblicato online: 20 Apr 2013
Pagine: 41 - 45

Astratto

Keywords

  • Alliance RD
  • National strategy
  • National plan
  • EURORDIS
access type Accesso libero

Practical Experience with Providing Specialized Social Services for Rare Disease Patients / Praktické skúsenosti v poskytovaní špeciálnych sociálnych služieb pre pacientov so zriedkavými chorobami

Pubblicato online: 20 Apr 2013
Pagine: 47 - 54

Astratto

Parole chiave

  • neuromuscular diseases
  • specialized services- social counselling
  • relief services
access type Accesso libero

Psychological Aspects of Patients and Their Families Suffering from a Rare Disease / Psychologické aspekty pacientov a ich rodín postihnutých zriedkavou chorobou

Pubblicato online: 20 Apr 2013
Pagine: 55 - 60

Astratto

Keywords

  • rare disease
  • patient’s psyche
  • adaptation difficulties
  • family problems
  • psychological counselling
access type Accesso libero

Poster session – Abstracts

Pubblicato online: 20 Apr 2013
Pagine: 61 - 82

Astratto

11 Articoli
access type Accesso libero

Current Legislation and Recommended Procedures / Tvorba národného plánu starostlivosti o pacientov so zriedkavými chorobami, súčasná legislatíva a odporúčané postupy

Pubblicato online: 20 Apr 2013
Pagine: 6 - 9

Astratto

Keywords

  • rare diseases
  • centres of expertise
  • European reference networks
  • registers of rare diseases
  • national plan for rare disease
access type Accesso libero

Orphanet – Information, Education and Expert Centres for Rare Diseases / Orphanet – informovanosť, vzdelávanie a špecializované centrá starostlivosti o pacientov so ZCH

Pubblicato online: 20 Apr 2013
Pagine: 10 - 15

Astratto

Parole chiave

  • Orphanet
  • Slovakia
  • creation of Centres of Expertise
access type Accesso libero

The Reality of the Management in Patients with Rare Inborn Metabolic Diseases In Slovakia / Realita starostlivosti o pacientov so zriedkavými vrodenými metabolickými chorobami v SR

Pubblicato online: 20 Apr 2013
Pagine: 16 - 21

Astratto

Keywords

  • inherited metabolic disease in Slovakia
  • substitution therapy
  • paediatrics
access type Accesso libero

Pulmonary Arterial Hypertension Centre – A Model for Rare Disease Management / Centrum pre pľúcnu artériovú hypertenziu – model v manažmente zriedkavých chorôb

Pubblicato online: 20 Apr 2013
Pagine: 22 - 25

Astratto

Keywords

  • pulmonary arterial hypertension
  • managment
  • reference centre
access type Accesso libero

Orphan Dugs in EU / Lieky na zriedkavé choroby v EÚ

Pubblicato online: 20 Apr 2013
Pagine: 26 - 31

Astratto

Keywords

  • orphan drugs
  • policy in the field of orphan drugs
  • European orphan medicinal product (OMP) regulation
access type Accesso libero

Newborn Screening in Slovakia – From 1985 Till Today / Novorodencký skríning na Slovensku – od roku 1985 doposiaľ

Pubblicato online: 20 Apr 2013
Pagine: 32 - 36

Astratto

Keywords

  • Newborn screening
  • Hereditary metabolic disorders
  • Rare Disease
access type Accesso libero

National Health Information Centre Task Regarding the Data Availability on Rare Diseases in the SR / Úloha národného centra zdravotníckych informácií v dostupnosti údajov o zriedkavých chorobách v SR

Pubblicato online: 20 Apr 2013
Pagine: 37 - 40

Astratto

Keywords

  • National Health information centre
  • rare diseases
  • registries
access type Accesso libero

Patient Empowerment in Rare Diseases Slovak Rare Disease Alliance − Contribution to the Creation of the National Plan of Rare Diseases in Slovakia Eurordis – Benefits of Membership / Pacientske organizácie v oblasti zriedkavých chorôb – ich činnosť aj pri príprave národného plánu v SR slovenská aliancia zriedkavých chorôb Eurordis - európska aliancia zriedkavých chorôb – výhody členstva

Pubblicato online: 20 Apr 2013
Pagine: 41 - 45

Astratto

Keywords

  • Alliance RD
  • National strategy
  • National plan
  • EURORDIS
access type Accesso libero

Practical Experience with Providing Specialized Social Services for Rare Disease Patients / Praktické skúsenosti v poskytovaní špeciálnych sociálnych služieb pre pacientov so zriedkavými chorobami

Pubblicato online: 20 Apr 2013
Pagine: 47 - 54

Astratto

Parole chiave

  • neuromuscular diseases
  • specialized services- social counselling
  • relief services
access type Accesso libero

Psychological Aspects of Patients and Their Families Suffering from a Rare Disease / Psychologické aspekty pacientov a ich rodín postihnutých zriedkavou chorobou

Pubblicato online: 20 Apr 2013
Pagine: 55 - 60

Astratto

Keywords

  • rare disease
  • patient’s psyche
  • adaptation difficulties
  • family problems
  • psychological counselling
access type Accesso libero

Poster session – Abstracts

Pubblicato online: 20 Apr 2013
Pagine: 61 - 82

Astratto

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